IFCCA – International Federation of Crohn’s and Ulcerative Colitis Associations

IFCCA – International Federation of Crohn’s and Ulcerative Colitis Associations International Federation of Crohn's and Ulcerative Colitis Associations

The European Federation of Crohn's & Ulcerative Colitis Associations is an umbrella organisation representing 46 national patients’ associations. EFCCA aims to work to improve life for people with IBD and give them a louder voice and higher visibility across Europe and beyond.

"Here I was, encouraging other people to support their health and I was letting all the stress and pressure sabotage min...
26/07/2025

"Here I was, encouraging other people to support their health and I was letting all the stress and pressure sabotage mine."

Tina Haupert, who lives with UC, was blogging about health. But it took a diagnosis to force her to tune into her own.

Even though colonoscopy is the gold standard for the assessment of severity of  , it is an invasive technique. Intestina...
24/07/2025

Even though colonoscopy is the gold standard for the assessment of severity of , it is an invasive technique. Intestinal ultrasound is a noninvasive, real-time, cross-sectional imaging tool that may assess disease activity. Learn the pros and cons of this imaging tool.

Widely used in Europe for years, IUS is catching on in the U.S. to help monitor Crohn’s disease and ulcerative colitis—but this imaging test, while convenient and inexpensive, isn’t foolproof. Our experts explain how the test works, its benefits, and shortcomings.

ECCO Launches First-Ever Dietary Guidelines for IBD 📢 News in IBD care!The European Crohn’s and Colitis Organisation (EC...
23/07/2025

ECCO Launches First-Ever Dietary Guidelines for IBD

📢 News in IBD care!

The European Crohn’s and Colitis Organisation (ECCO) has released its first-ever consensus on dietary management in IBD — and IFCCA (former EFCCA) is proud to have been part of the process!

Our patient representatives actively contributed to the working groups, ensuring that the patient voice was central throughout. This new guideline reinforces the vital role of nutrition in IBD treatment and calls for a truly multidisciplinary approach.

We welcome this milestone and will continue to work towards better, more holistic care for people living with Crohn’s disease and ulcerative colitis.

💜 Read the full article https://buff.ly/bFZw5ss 📄

Do you experience foot and ankle pain to the point you can barely walk ? 🦶 Could it be related to  's?
22/07/2025

Do you experience foot and ankle pain to the point you can barely walk ? 🦶 Could it be related to 's?

MyCrohnsAndColitisTeam members have wondered whether foot and ankle pain may be connected to their inflammatory bowel disease (IBD). “Has anyone ever had

A diet composed mainly of ultraprocessed foods exposes people to unhealthy additives and increases the risk of chronic i...
21/07/2025

A diet composed mainly of ultraprocessed foods exposes people to unhealthy additives and increases the risk of chronic inflammatory diseases, like .

A new report states that ultra-processed foods are a major contributing factor to the obesity epidemic. Researchers say these foods are designed to be palatable, causing people to overeat and gain weight.

"I wanted to let you know that I live with  's disease. I haven't mentioned before because it hasn't interfered with my ...
20/07/2025

"I wanted to let you know that I live with 's disease. I haven't mentioned before because it hasn't interfered with my ability to do my job or to complete tasks on time."

A woman with Crohn's experiences an uptick in symptoms, and knows she will be disclosing IBD at work. How does she inform her new boss about her condition?

How can   impact heart health? 💗A new study aims to shed light on the question, potentially leading to the development o...
19/07/2025

How can impact heart health? 💗
A new study aims to shed light on the question, potentially leading to the development of diagnostic tools and treatments for greater heart protection.

People with ulcerative colitis are more prone to heart attacks and stroke. New research helps untangle why.

For those living with an stoma, fluid intake is even more important. When the colon is removed or altered, the body lose...
17/07/2025

For those living with an stoma, fluid intake is even more important. When the colon is removed or altered, the body loses its main site of fluid reabsorption. This is why it is so important to learn how to keep hydrated with a stoma and recognise the signs of dehydration...

Now the summer is upon us, it is even more important understand how to keep hydrated and recognise the signs of dehydration.

"People often struggle to comprehend that intense pain and discomfort can be hidden so easily."
16/07/2025

"People often struggle to comprehend that intense pain and discomfort can be hidden so easily."

They can't see our fatigue and pain

🟣 World IBD Day 2025 Report is out!From purple-lit landmarks to bold conversations and powerful patient stories — this y...
15/07/2025

🟣 World IBD Day 2025 Report is out!
From purple-lit landmarks to bold conversations and powerful patient stories — this year's World IBD Day brought together voices from over 50 countries to break taboos and raise awareness about Crohn’s and colitis.

📘 The 2025 campaign, “IBD Has No Borders: Breaking Taboos, Talking About It,” focused on ending the silence around IBDsymptoms and empowering people to speak up.

💬 Walks, talks, webinars, poetry slams, videos, and advocacy efforts filled this global day with action and solidarity — all captured in our detailed new report.

👉 Discover how the world united for IBD, and get inspired:
📥 https://bit.ly/40hVyBR

The World IBD Day 2025 Report 15 Jul Written By sanja frkanec We are pleased to share our comprehensive report for World IBD Day 2025 which captures the remarkable collective efforts of our members, IBD patient advocates, healthcare professionals, and partners worldwide. Under the campaign theme “...

New research shows "border patrol" immune cells retreat before a  's flare occurs. This discovery points to new strategi...
13/07/2025

New research shows "border patrol" immune cells retreat before a 's flare occurs. This discovery points to new strategies for treatment and even prevention of the disease.

Scientists have discovered that specific guardian immune cells that reside in the gut and help prevent dysregulation there retreat significantly before a flare occurs, providing fresh insight into how to better treat and possibly even prevent the disease.

Why is Leaky Gut Syndrome just a theory and not a recognized medical diagnosis?
12/07/2025

Why is Leaky Gut Syndrome just a theory and not a recognized medical diagnosis?

In short, no. Here’s what your symptoms might mean instead, according to experts.

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