IFCCA – International Federation of Crohn’s and Ulcerative Colitis Associations

19/04/2026

What if your blood could warn you about a disease half a decade in advance? 🩸 Scientists found a hidden immune signal that predicts Crohn’s long before symptoms hit. The goal? Early intervention to keep the gut healthy.

Sinai Health researchers have shown a blood test can predict Crohn’s disease years before symptoms appear, opening the doors to early diagnosis and potentially prevention.

18/04/2026

isn't just about digestion. From Erythema Nodosum to Sweet’s Syndrome, here’s how ulcerative colitis shows up on your skin—and what you can do about it. 🩺✨

Skin rashes and disorders are commonly associated with ulcerative colitis...

17/04/2026

🌿 𝗟𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗜𝗕𝗗: 𝗨𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 𝗵𝗼𝘄 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝘆 𝗶𝗻𝘁𝗲𝗿𝗮𝗰𝘁

Nutrition, stress, emotions, and daily habits are deeply connected—and this is exactly what we will explore in our upcoming Health Engagement Open Lab – Living with IBD.

Organised by the EU-Funded Project in collaboration with IFCCA.

📅 𝟮𝟳 𝗔𝗽𝗿𝗶𝗹 𝟮𝟬𝟮𝟲
🕟 𝟭𝟲:𝟯𝟬-𝟭𝟴:𝟬𝟬 𝗖𝗘𝗦𝗧
💻 𝗢𝗻𝗹𝗶𝗻𝗲

💡 In this interactive session, we will bring together research and lived experience to explore:

• How stress and eating habits interact in IBD
• Preliminary results from the Greek cohort of the miGut-Health survey on stress, eating habits, and IBD
• Practical tools from the ENGAGE-IBD Guide
• Co-creation of ideas to improve support in IBD care

🎤 Featuring contributions from researchers at Aristotle University of Thessaloniki and Università Cattolica del Sacro Cuore / EngageMinds HUB

This session is open to people living with Crohn’s disease and Ulcerative Colitis and their families.

👉 Register here: https://buff.ly/4is7g31
🔗 More info: https://buff.ly/2JBKo8D

17/04/2026

🌍 𝗜𝗙𝗖𝗖𝗔 𝗝𝗼𝗶𝗻𝘀 𝗣𝗔𝗡𝗖𝗖𝗢 𝟮𝟬𝟮𝟲 𝗶𝗻 𝗖𝗮𝗿𝘁𝗮𝗴𝗲𝗻𝗮 𝘁𝗼 𝗔𝗱𝘃𝗮𝗻𝗰𝗲 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗶𝗻 𝗜𝗕𝗗

We are proud to announce that IFCCA will participate in the Pancco Ibd 𝗖𝗼𝗻𝗴𝗿𝗲𝘀𝘀 (𝗣𝗮𝗻-𝗔𝗺𝗲𝗿𝗶𝗰𝗮𝗻 𝗖𝗿𝗼𝗵𝗻’𝘀 𝗮𝗻𝗱 𝗖𝗼𝗹𝗶𝘁𝗶𝘀 𝗢𝗿𝗴𝗮𝗻𝗶𝘇𝗮𝘁𝗶𝗼𝗻) , taking place on 𝟭𝟴-𝟭𝟵 𝗔𝗽𝗿𝗶𝗹 𝟮𝟬𝟮𝟲 𝗶𝗻 𝗖𝗮𝗿𝘁𝗮𝗴𝗲𝗻𝗮, 𝗖𝗼𝗹𝗼𝗺𝗯𝗶𝗮.

This important meeting will bring together patients, clinicians, and organisations from across the Americas to share knowledge, experiences, and advances in Inflammatory Bowel Disease (IBD).

IFCCA will be represented tomorrow, Saturday, 18 April 2026 by:

👤 Beatriz Capdevielle Gómez (𝗟𝗔𝗧𝗔𝗠 𝗖𝗼𝗼𝗿𝗱𝗶𝗻𝗮𝘁𝗼𝗿), in the session: “𝗛𝗼𝘄 𝗽𝗲𝗼𝗽𝗹𝗲 𝗹𝗶𝘃𝗲 𝘄𝗶𝘁𝗵 𝗜𝗕𝗗”, sharing lived patient experiences.

👤 𝗥𝗼𝗯𝗲𝗿𝘁𝗼 𝗦𝗮𝗹𝗱𝗮ñ𝗮 (𝗜𝗻𝗻𝗼𝘃𝗮𝘁𝗶𝗼𝗻 & 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗖𝗼𝗼𝗿𝗱𝗶𝗻𝗮𝘁𝗶𝗼𝗻), in the DIVA workshop: “𝗡𝗲𝘄 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀 𝗳𝗼𝗿 𝗜𝗕𝗗: 𝘄𝗵𝗮𝘁 𝘆𝗼𝘂 𝗻𝗲𝗲𝗱 𝘁𝗼 𝗸𝗻𝗼𝘄 ” (molecules, clinical studies and biosimilars), focusing on treatment innovation and patient understanding.

We look forward to being part of 𝗣𝗔𝗡𝗖𝗖𝗢 𝟮𝟬𝟮𝟲 and contributing to the global IBD community! 🌍

16/04/2026

It took 14 years to get the right 's disease diagnosis. ⏳ Michael’s story highlights why we must close the gap in education and access for patients of color living with an ostomy.

By Michael Ashley Turner Having physicians not listen to you Not being taken seriously Not having affordable health options Having organizations want to use your story but not see representation […]

15/04/2026

🌍 𝗜𝗕𝗗 𝗰𝗮𝗿𝗲 𝘀𝘁𝗮𝗿𝘁𝘀 𝘄𝗶𝘁𝗵 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴!

What if endoscopy didn’t feel intimidating — but empowering?

Join IFCCA’s upcoming webinar to explore exactly that.

📅 𝟮𝟭 𝗔𝗽𝗿𝗶𝗹 𝟮𝟬𝟮𝟲
🕔 𝟭𝟳:𝟬𝟬-𝟭𝟴:𝟬𝟬 𝗖𝗘𝗦𝗧
💻 𝗟𝗶𝘃𝗲 𝗼𝗻𝗹𝗶𝗻𝗲 𝘀𝗲𝘀𝘀𝗶𝗼𝗻

“𝗟𝗲𝘁’𝘀 𝗧𝗮𝗹𝗸 𝗘𝗻𝗱𝗼𝘀𝗰𝗼𝗽𝘆: 𝗔 𝗦𝗵𝗮𝗿𝗲𝗱 𝗟𝗮𝗻𝗴𝘂𝗮𝗴𝗲 𝗳𝗼𝗿 𝗜𝗕𝗗 𝗖𝗮𝗿𝗲” brings together patients, clinicians, and nurses to break down barriers in communication and support better understanding of endoscopy in IBD.

Hosted by IFCCA in partnership with Johnson & Johnson, the session will also launch a new patient resource designed to support more confident conversations between patients and healthcare teams.

🔗 Secure your spot: https://buff.ly/zlZ3gz9
💻 Learn more about the webinar: https://buff.ly/bm3VG0Z

Let’s Talk Endoscopy: A Shared Language for IBD Care Join us for a live webinar, “Let’s Talk Endoscopy: A Shared Language for Inflammatory Bowel Disease (IBD) Care” , taking place online on 21 April 2026, from 17:00 to 18:00 CET . Hosted by IFCCA in partnership with Johnson & Johnson,

14/04/2026

💜 𝗦𝘁𝗿𝗲𝗻𝗴𝘁𝗵𝗲𝗻𝗶𝗻𝗴 𝗰𝗼𝗹𝗹𝗮𝗯𝗼𝗿𝗮𝘁𝗶𝗼𝗻 𝗮𝗰𝗿𝗼𝘀𝘀 𝗯𝗼𝗿𝗱𝗲𝗿𝘀

On 11 April, Tallinn hosted the 𝟮𝗻𝗱 𝗕𝗮𝗹𝘁𝗶𝗰 𝗜𝗕𝗗 𝗠𝗲𝗲𝘁𝗶𝗻𝗴 — bringing together patients, healthcare professionals, and advocates from Estonia, Lithuania, and Latvia.

IFCCA was represented by Alexandra Mitria, our Youth Group Leader.

This exchange of experiences highlighted the importance of patient-centred collaboration and the value of connecting patients, clinicians, and advocates to strengthen IBD care across the Baltic region.

13/04/2026

🌿 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗻𝗴𝗮𝗴𝗲𝗺𝗲𝗻𝘁 𝗢𝗽𝗲𝗻 𝗟𝗮𝗯 - 𝗟𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗜𝗕𝗗
𝗨𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 𝗵𝗼𝘄 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝘆 𝗶𝗻𝘁𝗲𝗿𝗮𝗰𝘁

We are pleased to invite you to a new interactive session organised by the miGut-Health EU-funded project in collaboration with IFCCA.

📅 𝟮𝟳 𝗔𝗽𝗿𝗶𝗹 𝟮𝟬𝟮𝟲
🕟 𝟭𝟲:𝟯𝟬 - 𝟭𝟴:𝟬𝟬 𝗖𝗘𝗦𝗧
💻 𝗢𝗻𝗹𝗶𝗻𝗲 𝗲𝘃𝗲𝗻𝘁

This Open Lab will explore the complex relationship between 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻, 𝘀𝘁𝗿𝗲𝘀𝘀, 𝗮𝗻𝗱 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝘆 in Inflammatory Bowel Disease (IBD), bringing together patients, researchers, and healthcare professionals in an open and collaborative exchange.

✨ 𝗣𝗿𝗼𝗴𝗿𝗮𝗺𝗺𝗲 𝗵𝗶𝗴𝗵𝗹𝗶𝗴𝗵𝘁𝘀 𝗶𝗻𝗰𝗹𝘂𝗱𝗲:

• Keynote lecture 𝗟𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗜𝗕𝗗: 𝗨𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝗶𝗻𝗴 𝗵𝗼𝘄 𝗻𝘂𝘁𝗿𝗶𝘁𝗶𝗼𝗻 𝗮𝗻𝗱 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝘆 𝗶𝗻𝘁𝗲𝗿𝗮𝗰𝘁 by 𝗖𝗵𝗿𝗶𝘀𝘁𝗶𝗻𝗮 𝗠𝗮𝘀𝘁𝗼𝗿𝗶, (PhD Candidate, Aristotle University of Thessaloniki, Greece)
• Presentation of preliminary results from the Greek cohort of the “Stress, Eating Habits, and IBD” survey by 𝗗𝗿. 𝗗𝗶𝗹𝗮𝗿𝗮 𝗨𝘀𝘁𝗮 (Università Cattolica del Sacro Cuore / EngageMinds HUB)
• Introduction to the ENGAGE-IBD Guide by 𝗣𝗿𝗼𝗳. 𝗚𝘂𝗲𝗻𝗱𝗮𝗹𝗶𝗻𝗮 𝗚𝗿𝗮𝗳𝗳𝗶𝗴𝗻𝗮 (Università Cattolica del Sacro Cuore / EngageMinds HUB)
• Interactive workshop to review pilot ideas and project recommendations

The session is open to people living with Crohn’s disease and Ulcerative Colitis, as well as their families, offering a unique opportunity to reflect on how nutrition, stress, and engagement influence IBD management.

👉 Register now to secure your place: https://buff.ly/4is7g31
💻 For more information visit our website: https://buff.ly/2JBKo8D

12/04/2026

Could your next "treatment" have four paws🐕‍🦺 It’s not just about emotional support—it's about medical alerts and physical assistance. Dive into how these animals are trained specifically for needs.🩺

Discover how service animals can help you manage Crohn's and colitis symptoms. Learn about the types of animals available, their benefits, and how to get o

11/04/2026

🌟 𝗡𝗘𝗪 𝗜𝗙𝗖𝗖𝗔 𝗣𝗿𝗼𝗷𝗲𝗰𝘁𝘀 𝗗𝗶𝗴𝗲𝘀𝘁 – 𝗜𝘀𝘀𝘂𝗲 #𝟵 🌟

The latest edition of the IFCCA Projects Digest is now available, featuring updates from across our EU-funded research projects in IBD.

This issue highlights a wide range of activities, from scientific progress and clinical studies to patient engagement initiatives, Open Labs, consortium meetings, and new educational resources co-created with the IBD community.

Across projects such as INTERCEPT, miGut-Health, GENEGUT, METHYLOMIC, PerPrev-CID, IDEA-FAST and FIBROTARGET, we continue to see strong collaboration between researchers, clinicians, and patient organisations working together to advance more personalised, effective, and patient-centred care.

📘 Explore the full issue here: https://buff.ly/ug29ceY

10/04/2026

📢 𝗦𝗮𝘃𝗲 𝘁𝗵𝗲 𝗱𝗮𝘁𝗲! 𝗝𝗼𝗶𝗻 𝗼𝘂𝗿 𝗹𝗶𝘃𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿: “𝗟𝗲𝘁’𝘀 𝗧𝗮𝗹𝗸 𝗘𝗻𝗱𝗼𝘀𝗰𝗼𝗽𝘆: 𝗔 𝗦𝗵𝗮𝗿𝗲𝗱 𝗟𝗮𝗻𝗴𝘂𝗮𝗴𝗲 𝗳𝗼𝗿 𝗜𝗕𝗗 𝗖𝗮𝗿𝗲”

🗓 𝟮𝟭 𝗔𝗽𝗿𝗶𝗹 𝟮𝟬𝟮𝟲 | 𝟭𝟳:𝟬𝟬–𝟭𝟴:𝟬𝟬 𝗖𝗘𝗦𝗧

Hosted by IFCCA in partnership with Johnson & Johnson, this interactive session will launch a new patient resource to help people living with IBD better understand endoscopy and discuss it confidently with their healthcare teams.

Speakers:
• 𝗗𝗿 𝗔𝗹 𝗕𝗮𝘄𝗮𝗿𝗱𝘆 – Gastroenterologist, King Faisal Specialist Hospital and Research Center, Saudi Arabia
• 𝗦𝗶𝗺𝗼𝗻𝗮 𝗥𝗮𝗱𝗶𝗰𝗲 –IBD Nurse, Italy
• 𝗔𝗹𝗲𝘅𝗮𝗻𝗱𝗿𝗮 𝗠𝗶𝘁𝗿𝗶𝗮 – Leader of the IFCCA Youth Group

𝗖𝗵𝗮𝗶𝗿: 𝗟𝘂𝗶𝘀𝗮 𝗔𝘃𝗲𝗱𝗮𝗻𝗼, IFCCA CEO

🔗 Register now: https://buff.ly/zlZ3gz9
✉️ For more information visit our website: https://buff.ly/bm3VG0Z

10/04/2026

💡 𝗪𝗵𝗮𝘁 𝗶𝗳 𝘆𝗼𝘂𝗿 𝘃𝗼𝗶𝗰𝗲 𝗰𝗼𝘂𝗹𝗱 𝗶𝗻𝗳𝗹𝘂𝗲𝗻𝗰𝗲 𝘁𝗵𝗲 𝗻𝗲𝘅𝘁 𝗴𝗲𝗻𝗲𝗿𝗮𝘁𝗶𝗼𝗻 𝗼𝗳 𝗖𝗿𝗼𝗵𝗻’𝘀 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀?

Across Europe, people living with Crohn’s disease are helping researchers better understand what truly matters when it comes to new therapies—and you can be part of it.

🧬 Through the 𝗚𝗘𝗡𝗘𝗚𝗨𝗧 EU-funded project, IFCCA and partners are exploring an innovative oral RNA-based treatment. But science alone isn’t enough—your perspective is key.

By taking part in this short survey, you can:
✔️ Share what living with Crohn’s disease really means to you
✔️ Highlight what you value (and worry about) in new treatments
✔️ Help shape therapies that reflect real patient needs

⏱️ Takes just 𝟭𝟱-𝟮𝟬 𝗺𝗶𝗻𝘂𝘁𝗲𝘀
🌍 Open in 𝟭𝟯 𝗹𝗮𝗻𝗴𝘂𝗮𝗴𝗲𝘀
🔒 Fully 𝗮𝗻𝗼𝗻𝘆𝗺𝗼𝘂𝘀 𝗮𝗻𝗱 𝘃𝗼𝗹𝘂𝗻𝘁𝗮𝗿𝘆

📅 Deadline: 𝟭𝟴 𝗠𝗮𝘆 𝟮𝟬𝟮𝟲

📢 Your experience can help turn innovation into meaningful impact.
🔗Learn more and choose your preferred language: https://buff.ly/NKtSlEt

GENEGUT Patient Survey 16 Mar Written By sanja frkanec Chose your language DutchEnglishFrenchGermanGreekHungarianItalianPolishPortugueseRomanianSpanishSwedishWelsh If you are living with Crohn’s disease, we invite you to take part in a new survey that will help shape the development of future trea...