Myeloma Patients Europe

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Myeloma Patients Europe

Myeloma Patients Europe is an umbrella organisation of myeloma and AL amyloidosis patient groups

Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma patient groups and associations from across Europe. MPE was formed following the merger in 2011 of the European Myeloma Platform and Myeloma Euronet. MPE is registered as a non-profit organisation (AISBL) under Belgian law and its headquarter is located in Brussels. MPE has a number of broad aims including:
• Collaborating on pro

jects to the benefit of the myeloma community
• Exchanging information and best practice
• Developing existing patient groups and encouraging and facilitating the setting up of new groups
• Helping to shape appropriate health- related policies and initiatives on a European and national level
• Ensuring patients across Europe receive timely access to new treatment
• Stimulating and promoting patient- centred research and clinical trials
• Developing a strong evidence base for the needs and wants of patients and their role in research
• Providing information, educational and outreach programmes to member groups

To meet its aims and in addition to its membership, MPE works directly with healthcare professionals, reimbursement authorities, regulators, politicians, pharmaceutical companies, the media and anyone involved in the ‘myeloma community’.

21/04/2026

What is minimal residual disease (MRD) testing in myeloma?
MRD testing is becoming an important tool in myeloma care. Our short video explains what MRD testing is, what your results might mean and how it could affect treatment decisions
https://f.mtr.cool/ypyeznqher

20 likes. "What is Minimal Residual Disease (MRD) in myeloma?"

20/04/2026

We're proud that our President, Barbara Leonardi joined Heather Cooper Ortner last week at in Prague to present on MPE programmes and the importance of including the patient voice in research.

A powerful platform and conversation, in one of Europe’s most beautiful cities.

Great to present with . Thank you to the European Myeloma Network (EMN Trial Office) for inviting us and we look forward to next year!

15/04/2026

Sleep disruption is common for people living with myeloma, whether from pain, medication side effects, anxiety or fatigue. Getting enough rest matters for recovery and wellbeing.

Some approaches that may help:
- Try to keep a regular sleep and wake routine
- Limit screen use before bed
- Exercise during the day
- Gentle relaxation techniques, such as slow breathing, can help settle the mind
- If sleep problems are persistent, it's worth raising with your medical team

14/04/2026

: AL amyloidosis insights

Dr. Paolo Milani provides an expert overview of the most important AL amyloidosis updates presented at ASH 2025, including the emerging role of CAR-T therapy and key challenges in improving treatment outcomes.

Important viewing for the AL amyloidosis community.

Dr. Paolo Milani, University of Pavia, Italy, explains the most important AL amyloidosis updates presented in the American Society of Hematology Annual Congr...

13/04/2026

Did you know? Myeloma is the 3rd most common blood cancer in Europe. During 2022, there were over 50,000 new diagnoses reported alone.

01/04/2026

As draws to a close, one message always stands out: myeloma is often diagnosed late because its key symptoms; bone pain, fatigue, frequent infections – can often look like other common conditions.

If you or someone you know has persistent, unexplained symptoms, it's worth speaking to a doctor and asking about testing. For more information

https://f.mtr.cool/apohmnbogk

30/03/2026

and here's a reminder that we're hosting a webinar on generic medicines in Europe - this evening! 🕔 17:00 CET

Generics can open the door to wider access to treatments, but the market is complex — supply pressures, pricing competitio,n, local health systems and policy challenges all affect what patients can actually access.

Tonight's webinar looks at how the generics market works across Europe and what that means in practice for cancer patients, with real examples from Central and Eastern Europe.

Join us this evening — all are welcome

🔗 Register here for the meeting link https://www.mpeurope.org/join-our-webinar-the-generics-market-in-europe-and-implications-for-cancer-treatment-and-care/

27/03/2026

In case you missed our European Young Myeloma Patients Group (EYMPG) webinar on mental health and emotional well-being, you can catch the recording now.

In case you missed our European Young Myeloma Patients Group (EYMPG) webinar on mental health and emotional well-being, you can catch the recording now.

The European Young Myeloma Patients Group (EYMPG) on behalf of Myeloma Patients Europe hosted a webinar on mental health and emotional wellbeing. This lectur...

27/03/2026

Kayleigh, from the UK shares her experience of the sudden reality of caring for her husband as he was diagnosed with myeloma.

27/03/2026

"If I'm not in a good place, I'm no good to Mart. You have to take time out for yourself."

Kayleigh, Myeloma patient carer, UK

Hear more from Kayleigh as part of our campaign. Kayleigh shares stories and insights as a carer of someone who is living well with myeloma.
https://f.mtr.cool/teucsszahj

26/03/2026

A reminder that this meeting takes place tonight and we would love to see you there.

Join us for the first European Young Myeloma Patients' Group meeting of 2026! 💙
On 26 March at 19:00 CET, we're hosting an interactive session on mental health and emotional well-being — a topic we know matters deeply to so many in our community.

The session will feature a 30-minute presentation from expert psychologist Mitch Golant, Ph.D., followed by a live Q&A. Mitch is a Senior Consultant at the Cancer Support Community and a pioneer in psychosocial support for people living with cancer, with over 100 published research studies to his name.

This session is open to all myeloma patients but is aimed at those aged under 65, and those who support or care for someone with myeloma under 65.

Join us one week today using the link below 👇

https://mpeurope-org.zoom.us/j/81765036787?pwd=bij4Dwi6j0vbB5K7BqPbtfrkjxgJ6k.1&from=addon

25/03/2026

Keeping connected can be important for emotional wellbeing and this is just as important as your physical health. Try to stay connected with family, friends and support groups even if it feels hard.

What wellness practices help you? Share your tips in the comments.

Adres

Avenue Louise 143/4
Brussels
1050

Website

http://www.mpeurope.org/

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