Myeloma Patients Europe

Myeloma Patients Europe Myeloma Patients Europe is an umbrella organisation of myeloma and AL amyloidosis patient groups

Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma patient groups and associations from across Europe. MPE was formed following the merger in 2011 of the European Myeloma Platform and Myeloma Euronet. MPE is registered as a non-profit organisation (AISBL) under Belgian law and its headquarter is located in Brussels. MPE has a number of broad aims including:
• Collaborating on projects to the benefit of the myeloma community
• Exchanging information and best practice
• Developing existing patient groups and encouraging and facilitating the setting up of new groups
• Helping to shape appropriate health- related policies and initiatives on a European and national level
• Ensuring patients across Europe receive timely access to new treatment
• Stimulating and promoting patient- centred research and clinical trials
• Developing a strong evidence base for the needs and wants of patients and their role in research
• Providing information, educational and outreach programmes to member groups

To meet its aims and in addition to its membership, MPE works directly with healthcare professionals, reimbursement authorities, regulators, politicians, pharmaceutical companies, the media and anyone involved in the ‘myeloma community’.

  - Approximately 10–15% of myeloma patients will develop AL amyloidosis.Find out more in our guide to AL amyloidosis ht...
12/01/2026

- Approximately 10–15% of myeloma patients will develop AL amyloidosis.

Find out more in our guide to AL amyloidosishttps://www.mpeurope.org/wp-content/uploads/2023/01/AL-amyloidosis-Patients-Guide.pdf

If you are experiencing neuropathy from treatment, cold weather can worsen symptoms. Try to keep hands and feet warm wit...
07/01/2026

If you are experiencing neuropathy from treatment, cold weather can worsen symptoms. Try to keep hands and feet warm with quality gloves, thermal socks, and appropriate footwear. Be careful on icy surfaces, as neuropathy can also affect balance.

Share any personal tips you have in the comments.

  Make sure you tell your doctor or nurse if you have any new symptoms, or if yourexisting symptoms get worse, so that y...
05/01/2026



Make sure you tell your doctor or nurse if you have any new symptoms, or if your
existing symptoms get worse, so that you can discuss your options.

Find out more about living with myeloma in our Myeloma Patients guide
https://f.mtr.cool/kjzvaljfpr

Happy New Year from Myeloma Patients Europe! As we welcome 2026, we're filled with hope and gratitude for all that we've...
31/12/2025

Happy New Year from Myeloma Patients Europe!

As we welcome 2026, we're filled with hope and gratitude for all that we've achieved together as a community in 2025.

In case you missed it, take a moment to explore our Year in Review and discover the highlights of last year: https://f.mtr.cool/sdfwadqbet

Wishing you health, happiness and continued progress as we look forward to seeing you in 2026.

   Did you know approximately 10–15% of myeloma patients will develop AL amyloidosis.Find out more about this in our pat...
29/12/2025



Did you know approximately 10–15% of myeloma patients will develop AL amyloidosis.

Find out more about this in our patient guide to AL amyloidosis https://f.mtr.cool/hyohimszkp

Wishing you and your loved ones a joyful holiday season filled with health, happiness and hope.From all of us at Myeloma...
24/12/2025

Wishing you and your loved ones a joyful holiday season filled with health, happiness and hope.

From all of us at Myeloma Patients Europe, thank you for being part of our community. May this festive period bring you moments of peace and joy.

🎄 Happy Holidays from all at MPE

The holiday season brings welcome opportunities to spend time with loved ones. However, it's important to remember that ...
19/12/2025

The holiday season brings welcome opportunities to spend time with loved ones. However, it's important to remember that infections are a significant risk for people living with myeloma and those undergoing treatment.

Your immune system may be compromised, making you more vulnerable to common colds, flu, and other infections.

In this video, Dr Charlotte Pawlyn explains how patients can help protect themselves with up-to-date vaccines and some treatment-specific measures.

How do you balance staying connected with family while protecting your health? Share your tips in the comments.



Dr Charlotte Pawlyn explains how patients can help protect themselves with up-to-date vaccines and some treatment-specific measures.

Our post ASH 2025 Webinar is now available to watch back  Led by Dominik Candea (MPE) and Prof. Dr. Hermann Einsele, key...
18/12/2025

Our post ASH 2025 Webinar is now available to watch back

Led by Dominik Candea (MPE) and Prof. Dr. Hermann Einsele, key topics included:

- Bispecific antibody combinations (MajesTEC-3)
- Therapies moving to earlier treatment lines
- Novel in-body CAR T-cell creation (inMMyCAR)

Dr. Einsele shared details of why the future for myeloma patients can be optimistic.

Watch the webinar: https://www.youtube.com/watch?v=bxusv_EeOWQ

Feel free to share this recording with friends, family, or on other social media platforms to help raise awareness of these important advances in myeloma treatment.

On behalf of Myeloma Patients Europe, Prof. Dr. Hermann Einsele, shares his key myeloma highlights of the ASH 2025 conference.Prof. Dr. Einsele is hematologi...

Just a reminder that this is happening today.So please register and join us to hear about the amazing research presented...
17/12/2025

Just a reminder that this is happening today.

So please register and join us to hear about the amazing research presented at

💻 Join our webinar on ASH 2025 myeloma highlights!

To summarise the most important myeloma updates presented at the largest haematology congress in the world, the American Society of Hematology (ASH) Annual Meeting, Myeloma Patients Europe (MPE) will hold a webinar on Wednesday, 17 December.

The webinar will be delivered by Dr. Hermann Einsele, Director of the Department of Internal Medicine II, University Hospital Würzburg, Germany.

Register now! 👇

https://www.mpeurope.org/mpe-webinar-on-ash-2025-myeloma-highlights/

💻 Join our webinar on ASH 2025 myeloma highlights!To summarise the most important myeloma updates presented at the large...
15/12/2025

💻 Join our webinar on ASH 2025 myeloma highlights!

To summarise the most important myeloma updates presented at the largest haematology congress in the world, the American Society of Hematology (ASH) Annual Meeting, Myeloma Patients Europe (MPE) will hold a webinar on Wednesday, 17 December.

The webinar will be delivered by Dr. Hermann Einsele, Director of the Department of Internal Medicine II, University Hospital Würzburg, Germany.

Register now! 👇

https://www.mpeurope.org/mpe-webinar-on-ash-2025-myeloma-highlights/

ASH 2025 HighlightsLast week in Orlando, over 20,000 researchers, doctors, and patient advocates gathered at   to share ...
12/12/2025

ASH 2025 Highlights

Last week in Orlando, over 20,000 researchers, doctors, and patient advocates gathered at to share groundbreaking research in blood cancers, including myeloma. We were privileged to share our own patient research, 'Myeloma patients' attitudes and perceived burden of treatment administration routes and locations: insights from a pan-European survey' whilst in attendance.

Some of the key myeloma updates include:

🚀MajesTEC-3 trial: Bispecific antibodies showing unprecedented benefits when used earlier in treatment

🚀New CAR-T approaches: In vivo CAR-T therapy showing promise with fewer side effects

🚀Dual-target CAR-T: DURGA-1 trial exploring therapies that target both BCMA and CD19

For more on these and other key updates please read our summary now

| Learn more about myeloma and AL amyloidosis at the website.

NEW: Dr Charlotte Pawlyn explains groundbreaking results from the UK MRA FiTNEss trial, presented at  This important stu...
10/12/2025

NEW: Dr Charlotte Pawlyn explains groundbreaking results from the UK MRA FiTNEss trial, presented at

This important study examined whether the IMWG (International Myeloma Working Group) frailty score can help tailor myeloma treatment based on patients' fitness levels – a crucial step towards more personalised care.

Watch the full interview: https://youtu.be/OO5xYevqWZo

Want to dive deeper? Register for our post-ASH webinar where we'll discuss these findings and other key developments: https://www.mpeurope.org/mpe-webinar-on-ash-2025-myeloma-highlights/

The UK MRA FiTNEss trial aims to understand whether the International Myeloma Working Group (IMWG) frailty score can be used to tailor treatment according to...

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