Lifewithlol: Lauren's Journey

Lifewithlol: Lauren's Journey Life with lots of love, laughter, and Lauren! Following the journey of a child with Krabbe Leukodystrophy disease. www.lifewithlol.com

Lauren Olivia Loughheed (LOL) is a beautiful baby with a full head of brown hair and striking blue eyes. She likes stories, music, and hanging out with her puppy Buddy. Lauren developed normally and was meeting and even exceeding developmental milestones for the first eight months of her life. She was smiling, laughing, and playing in her jumparoo. Lauren then began to slow down, no longer sat up on her own and started to become irritable. In December 2011, after doing an MRI and a host of other neurological and metabolic tests, Lauren was diagnosed with Krabbe Leukodystrophy. Description from Mayo Clinic (http://www.mayoclinic.com/health/krabbe-disease/DS00937):

Krabbe disease (KRAH-buh disease) is an inherited, often fatal disorder affecting the central nervous system. Krabbe disease affects about 1 in every 100,000 people in the United States. The disease affects muscle tone and movement, and may cause vision and hearing loss, among other devastating effects. In most cases, Krabbe disease develops in babies before 6 months of age, although it can occur in older children and in adults. There’s no cure for Krabbe disease and treatment mainly involves approaches designed to ease symptoms. However, early studies using stem cell transplants to treat Krabbe disease before symptoms begin have had some success. Lauren leads a full life and is loved by many people around the world! "Like" this page to stay up to date on all the latest with Lauren!

Sweet Lauren would have been ten today. I can’t believe that she would have been such a big girl. I’m sure she would hav...
01/08/2021

Sweet Lauren would have been ten today. I can’t believe that she would have been such a big girl. I’m sure she would have adored Zoe and Grayson who both speak of her often. Today we will share cake and memories. 💜

Our beautiful Lauren left us for heaven today at 3:00pm. We were so lucky and privileged to be her parents. I am so proud of her strength and spirit. Thank you all for your wonderful prayers and thoughts. Her life was a miracle, we thought two years old would be something but she lived over four, everyday a wonderful memory

Notre belle Lauren nous a quittés pour le ciel aujourd'hui à 15h00. Nous étions tellement la chance et le privilège d'être ses parents. Je suis tellement fier de sa force et de l'esprit. Merci à tous pour vos prières et vos pensées merveilleuses. Sa vie est un miracle, nous avons pensé que deux ans serait quelque chose, mais elle a vécu plus de quatre, tous les jours un merveilleux souvenir

My two little loves. Everyday I can see Lauren in Zoe. She has grown up around lots of photos and special stories about ...
11/14/2020

My two little loves. Everyday I can see Lauren in Zoe. She has grown up around lots of photos and special stories about her sister. The other day she shared with her kindergarten class about Lauren. It was completely unprompted and blew me away. Zoe is a loving, responsible and caring sister - to both Grayson and Lauren.

Grayson is now 3! He is a little rascal but so loving and funny.

Watching them grow is such a gift. I find myself wondering how sassy and funny Lauren would have been. We miss her everyday

We are selling our beautiful home in Beaconsfield, QC. please wish us luck and share with your friends! It’s so difficul...
09/03/2020

We are selling our beautiful home in Beaconsfield, QC. please wish us luck and share with your friends!

It’s so difficult to say goodbye. This was our home with Lauren.

Thank you for your past support and for seeing us off to the next chapter.

❤️

Such great ideas in spreading kindness in Lauren’s memory, keep them coming! They warm my heart and soul so much 💜
01/11/2019

Such great ideas in spreading kindness in Lauren’s memory, keep them coming! They
warm my heart and soul so much 💜

So excited to see that someone already completed a Random Act today! Let’s keep the campaign growing!
01/08/2019

So excited to see that someone already completed a Random Act today! Let’s keep the campaign growing!

 Hi Everyone! I'm so late on sharing our Random Act of Kindness campaign this year. Tomorrow January 8th our little girl...
01/08/2019


Hi Everyone! I'm so late on sharing our Random Act of Kindness campaign this year. Tomorrow January 8th our little girl would have been 8 years old!
For my new friends who may not have known, we lost our precious princess when she was 4 years old, just 4 years ago to Krabbe disease.

For the fourth year in a row we are asking you to consider doing an act of kindness or many :) throughout the month of January in helping to celebrate the memory of our little girl.

Extra points this year if you manage 8 RAKS!
Please refer to the blog post below for more details and printable that you can include with your Random Acts of Kindness in hopes to keep the campaign growing!

2018 has been one full of many happy memories and also many challenges. Unfortunately this year I just couldn’t muster the energy to write a new blog post so I’m re-posting last years. …

Today is Lauren's 7th Birthday. While she celebrates in Heaven, we will be trying to spread some kindness in her memoryh...
01/08/2018

Today is Lauren's 7th Birthday. While she celebrates in Heaven, we will be trying to spread some kindness in her memory

https://lifewithlol.wordpress.com/2018/01/08/happy-7th-birthday-to-our-sweet-angel-lauren/

Please help us spread some kindness by participating in our Random act of kindness campaign in Lauren's memory.

Warning – This is a longish post I wrote at 4:30am on Lauren’s birthday. If you found us through Lauren’s Random Act of Kindness campaign and want to skip to those details you can…

Introducing Grayson David Loughheed, Lauren and Zoe's new little brother. Born on August 28th at 9:39am, weighing 7lb 3o...
09/15/2017

Introducing Grayson David Loughheed, Lauren and Zoe's new little brother. Born on August 28th at 9:39am, weighing 7lb 3oz. Grayson is Krabbe Free and very cute. Zoe is absolutely thrilled about her new baby brother.
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Nous voulons vous présenter Grayson David Loughheed, le nouveau petit frère de Lauren et Zoe. Né le 28 août à 9h39, pesant 7lb 3oz. Grayson est en bonne santé et n'a pas Krabbe - il est très mignon. Zoe est absolument ravie de son nouveau frère.

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Beaconsfield, QC

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