Sickle Cell Advocate Board of Calgary

Sickle Cell Advocate Board of Calgary Our aim is to be a holistic advocate for those living with or caring for individuals with sickle cell disease.

Our hope is to bring positive societal and community experiences that affect change within policy and institutions from our work.

03/29/2026

We did it! Watch the video to make your own!

Strawberries, Blueberries, Banana, Coconut Water, Ice.

It came out really good!!

Our first Sickle Cell Impact Night was a success!We had good conversations, great food, and wonderful company! We may ha...
03/14/2026

Our first Sickle Cell Impact Night was a success!

We had good conversations, great food, and wonderful company! We may have been a small group, but like they say in Jamaica, every mikkle makes a mukkle. This is just the start of something that will get bigger each year.

Syd worked with us to create an amazing painting. We tried to incorporate symbols that are meaningful to our work and community. We love the end result!

Thank you to all who attended!

And a big thank you to for allowing us to use their wonderful space!

Tell us in the comments what we should do next year…

Kids, this one’s for you! Warriors, siblings, and friends. Come hang out with us on Sunday March 29 at 2pm. Our very own...
03/06/2026

Kids, this one’s for you! Warriors, siblings, and friends. Come hang out with us on Sunday March 29 at 2pm. Our very own Princess Warrior, Nesha will be showing you how to make her special hydration smoothie.

1. Talk to your parents first
2. Scan the QR Code
3. Fill out and submit the form
4. We will email you the recipe and meeting details
5. See you online!!

Join us on March 13, 2026 at Jamrock Lounge & Grill! Brush up. Sign up. Save lives. Sickle Cell Impact Night is bringing...
03/03/2026

Join us on March 13, 2026 at Jamrock Lounge & Grill!

Brush up. Sign up. Save lives.

Sickle Cell Impact Night is bringing our community together for an evening of creativity, conversation, and connection.

What’s happening:

🎨Syd the Artiste guiding a group painting experience
🩸Sylvia - Founder of Black Donors Save Lives speaking on the importance of blood and stem cell donation in the Black community
🗣️Racquel- Chair of the Sickle Cell Advocate Board sharing insights on Calgary’s Sickle Cell Community

Admission is free, but registration is required as space is limited! Food available for purchase.

Join us on March 13, 2026. Brush up. Sign up. Save lives. Sickle Cell Impact Night is bringing our community together fo...
03/03/2026

Join us on March 13, 2026. Brush up. Sign up. Save lives.

Sickle Cell Impact Night is bringing our community together for an evening of creativity, connection, and life saving action

What’s happening:

🎨Syd the Artiste guiding a group painting experience
🩸Black Donors Save Lives hosting a stem cell drive
🗣️Racquel- Chair of the Sickle Cell Advocate Board sharing insights on Calgary’s Sickle Cell Community

Admission is free, but registration is required as space is limited!

From our family to yours, we wish you a wonderful Christmas!🎄 ☃️🎅🏿❄️
12/25/2025

From our family to yours, we wish you a wonderful Christmas!🎄 ☃️🎅🏿❄️

🎃👻As we gear up for spooky fun, here are some tips to help children with sickle celll enjoy trick-or-treating safely:🧥Dr...
10/28/2025

🎃👻As we gear up for spooky fun, here are some tips to help children with sickle celll enjoy trick-or-treating safely:

🧥Dress Warmly: Cold weather can trigger a crisis

💧Stay Hydrated: Bring a water bottle

🛑Take Breaks: Plan short routes and take breaks

📞Emergency Plan: Call someone in case of pain crisis

Let’s make this Halloween safe, fun, and inclusive for all our little warriors!

This tip is personal. My daughter is living with Sickle Cell Disease and I continually have to remind her and sometimes ...
09/30/2025

This tip is personal. My daughter is living with Sickle Cell Disease and I continually have to remind her and sometimes myself that this disease does not define her!

To all Warriors, you are wonderful, awesome, beautiful, strong, sweet, smart, handsome, intelligent, educated, kind, thoughtful, funny, joyful, vivacious, vibrant, visionary, trendy, talented, charismatic, charming, champions!

I could go on and on! What I really want you all to know is that you have sickle cell, sickle cell doesn’t have you!

Comment with your own descriptive words dedicated to all Sickle Cell Warriors. I will start it off in the comments 💜.

Did you know?If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost! 💉T...
09/26/2025

Did you know?

If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost! 💉

These vaccines offer added protection against meningitis and pneumonia-two serious infections the Sickle Cell patients are more vulnerable to.

✅ These vaccines are part of AHS public health offerings
🗣️ If you haven’t had this conversation with your health care provider yet, now is the time!!

Did you know?If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost!The...
09/26/2025

Did you know?

If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost!

These vaccines offer added protection against meningitis and pneumonia-two serious infections that Sickle Cell patients are more vulnerable to.

✅ These vaccines are part of Alberta’s public health

🗣️ If you haven’t had this conversation with your healthcare provider yet, now’s the time!!

Winter is coming! I know that the cold can wreak havoc on your body. But the key word here is “invest”. There are lots o...
09/22/2025

Winter is coming!

I know that the cold can wreak havoc on your body. But the key word here is “invest”. There are lots of good quality winter wear. Some can be pricey, but you are worth it!

Some materials to consider while shopping:

Wool 🐑

Down 🦆

Flannel/Fleece 🧥

And remember layering is your best bet to staying toasty!

Base layer: wicks moisture (merino wool, silk)
Middle layer: insulates (fleece, wool, down)
Outer layer: protects from wind and water (waterproof)

Winter is inevitable in Alberta, so why not be prepared and embrace the cold!

I found this out this year! Parents, you can ask your child’s nurse for a letter that will explain your child’s conditio...
09/16/2025

I found this out this year! Parents, you can ask your child’s nurse for a letter that will explain your child’s condition and how it may affect attendance etc. As well as any special accommodation that may have to be arranged. I am actually using it for my daughter’s school and the dentist!

Don’t hesitate to tell your care team what you need. They won’t know if you don’t say anything!

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Calgary, AB

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