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Sickle Cell Advocate Board of Calgary

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Sickle Cell Advocate Board of Calgary

Our aim is to be a holistic advocate for those living with or caring for individuals with sickle cell disease.

Our hope is to bring positive societal and community experiences that affect change within policy and institutions from our work.

10/28/2025

🎃👻As we gear up for spooky fun, here are some tips to help children with sickle celll enjoy trick-or-treating safely:

🧥Dress Warmly: Cold weather can trigger a crisis

💧Stay Hydrated: Bring a water bottle

🛑Take Breaks: Plan short routes and take breaks

📞Emergency Plan: Call someone in case of pain crisis

Let’s make this Halloween safe, fun, and inclusive for all our little warriors!

09/30/2025

This tip is personal. My daughter is living with Sickle Cell Disease and I continually have to remind her and sometimes myself that this disease does not define her!

To all Warriors, you are wonderful, awesome, beautiful, strong, sweet, smart, handsome, intelligent, educated, kind, thoughtful, funny, joyful, vivacious, vibrant, visionary, trendy, talented, charismatic, charming, champions!

I could go on and on! What I really want you all to know is that you have sickle cell, sickle cell doesn’t have you!

Comment with your own descriptive words dedicated to all Sickle Cell Warriors. I will start it off in the comments 💜.

09/26/2025

Did you know?

If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost! 💉

These vaccines offer added protection against meningitis and pneumonia-two serious infections the Sickle Cell patients are more vulnerable to.

✅ These vaccines are part of AHS public health offerings
🗣️ If you haven’t had this conversation with your health care provider yet, now is the time!!

09/26/2025

Did you know?

If you or someone you love is living with SCD in Alberta, extra vaccines are available at no extra cost!

These vaccines offer added protection against meningitis and pneumonia-two serious infections that Sickle Cell patients are more vulnerable to.

✅ These vaccines are part of Alberta’s public health

🗣️ If you haven’t had this conversation with your healthcare provider yet, now’s the time!!

09/22/2025

Winter is coming!

I know that the cold can wreak havoc on your body. But the key word here is “invest”. There are lots of good quality winter wear. Some can be pricey, but you are worth it!

Some materials to consider while shopping:

Wool 🐑

Down 🦆

Flannel/Fleece 🧥

And remember layering is your best bet to staying toasty!

Base layer: wicks moisture (merino wool, silk)
Middle layer: insulates (fleece, wool, down)
Outer layer: protects from wind and water (waterproof)

Winter is inevitable in Alberta, so why not be prepared and embrace the cold!

09/16/2025

I found this out this year! Parents, you can ask your child’s nurse for a letter that will explain your child’s condition and how it may affect attendance etc. As well as any special accommodation that may have to be arranged. I am actually using it for my daughter’s school and the dentist!

Don’t hesitate to tell your care team what you need. They won’t know if you don’t say anything!

09/16/2025

Friendsgiving Potluck!

Join us for a heartfelt Friendsgiving Potluck where warriors, friends, and allies come together to build community, raise awareness and uplift one another.

Registration is required. You can bring a dish or purchase a dish to share with everyone. Space is limited!

✨Good food, great vibes, and even better purpose.

📍3208 8 AVE NE Unit 115

🗓️October 11, 2026 6 PM to 9 PM

Link: https://www.zeffy.com/en-CA/ticketing/friendsgiving-potluck

Note: 18+ event

09/15/2025

You have spoken-and we are listening!

To celebrate the remainder of Sickle Cell awareness month, we’re launching a fundraising campaign focused on one powerful goal: building community.

Link: https://www.zeffy.com/en-CA/donation-form/donate-to-build-community

The link is also in our bio. Please read the description carefully to get all the details!

Your support means the world to us!

09/14/2025

For the second half of the month, we’re sharing practical tips for living with Sickle Cell-whether you’re a warrior or a caregiver, these bite-sized insights can help make life a little easier.

This tip comes from one of our incredible warriors, Helima. She keeps her care plan on her phone, and when she visits the ER, she shows it to advocate for herself.

A care plan can include:
📌Medications 📌Pain med dose
📌Immediate action steps for ER staff

This simple tool helps ensure she receives timely and appropriate care. Thank you Helima for sharing your wisdom!

09/14/2025

The Walk for Sickle Cell was a roaring success!

Mother Nature blessed us with sunshine and smiles, and our walkers ranged from age 3 to 74-a beautiful reflection of the journey across generations.

Thank you to everyone who showed up, stepped up, and supported the cause. Your presence helped us build awareness, and community.

A special thank you to the volunteers and those that donated water, juice, and snacks. We couldn’t have done it without you!

09/07/2025

Happening September 13, 2025, Walk for Sickle Cell! Registration open now! Use QR code or link in bio!

09/07/2025

It’s been a few years and the Walk for Sickle Cell is baaack! Once again in partnership with Caribbean Heritage Sports Competition!

It’s going to be a blast! An easy 3K walk around Rotary Challenger Park on September 13, 2025. Registration is open now, and it’s only $5!!

Why walk? We are spreading awareness. We want to shine a light on our warriors that battle this condition everyday as well as the caregivers that are by their sides.

Use the QR code or the link in our bio to register!

LET’S GO!!!

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