Lincoln's leukemia journey

Lincoln's leukemia journey on January 19, 2021 Lincoln was diagnosed with acute lymphoblastic lukemia - here is where you will

September is Childhood Cancer Awareness Month, and for us, those words are not just symbolic—they are our lived reality....
09/12/2025

September is Childhood Cancer Awareness Month, and for us, those words are not just symbolic—they are our lived reality. My son has faced relapse, endured remission, and undergone CAR T-cell therapy, treatments so intense that they take away the very essence of childhood. Cancer doesn’t just attack the body—it steals moments that can never be returned. It takes away the chance to make friends at school, to laugh and run at recess, to learn by making silly mistakes.

To fish at the lake on a summers morning, to laugh until their stomachs hurt, to run, to play, to just be. It takes away birthdays celebrated without hospital walls, family dinners without fear, and nights of sleep without worry. It forces a child to sacrifice every part of innocence, joy, and normalcy in exchange for a battle that no adult should ever have to fight—yet somehow, our children stand at the front lines. Childhood cancer doesn’t just steal hair, energy, or time—it steals childhood itself. Childhood cancer brings life to a halt and forces our children to sacrifice everything that makes those years magical—just to stand at the front lines of a fight they never asked for. My son is more than brave; he is living proof of resilience. But awareness isn’t just about bravery—it’s about acknowledging the unimaginable cost these kids pay for the chance to keep living. 💛

This month is more than a cause—it’s a reminder. September is about honoring the bravery of children like Lincoln, who face the unimaginable with courage beyond their years. It’s about remembering the children who didn’t get the chance to grow up, and about fighting for the ones still in the battle. For me, September will always carry the weight of what was lost, but also the gratitude that Lincoln is here, a living testament to resilience, strength, and love. He is my hero, my heart, and my reason for wearing gold. 💛

Hey you…  Yeah, you 🫵🏼.  Wanna know a secret? This guy, right here 👇🏼, his B CELL count is 0. And his minimal residual d...
09/06/2025

Hey you… Yeah, you 🫵🏼.

Wanna know a secret?

This guy, right here 👇🏼, his B CELL count is 0. And his minimal residual disease percentage, yeah you guessed it.. it’s 0% too.

Which in other words, means the CAR T CELL therapy is working exactly as it should! And theres no evidence of active disease visable.

Yes, we are over the moon excited.

For now, we are unplugging and taking off camping for awhile to soak in the blissful feeling of being able to not only breathe again, but go to sleep and wake up knowing that our son, he’s gonna be ok!

We know, things can change in a very quick instant. We also know theres a 50% chance of early relapse.. However we are choosing to forget about that for .. a little while at least, while we soak in what a privilege it is to have a healthy, happy, full of energy 8 year old little boy again.

And also sleep, we’re definitely taking time to sleep. Because - his energy, want to explore, curiosity, and immense desire to see how far he can push me “today” has me ready for bed by noon.

A feeling I resent ( the tired by noon & being groggy the rest of the day ) yet I am so thankful & so incredibly blessed to say I can once again experience it thanks to my little guy.

❤️🎉

We’re officially on day 14 post car t therapy infusion. Lincoln has been absolutely outstanding. He’s had no side affect...
08/11/2025

We’re officially on day 14 post car t therapy infusion.

Lincoln has been absolutely outstanding. He’s had no side affects ( knock on wood ) thus far, and has been energetic, laughing, playing, and in good spirits majority of the time. There’s been a few days where’s he’s been slightly cranky or has slept literally the entire day but I’ll take that as a sign that his body is working extra hard to reproduce the modified cells so that they can do the hardwork from the inside. We should be discharged Wednesday from the hospital it’s self and moved over to the Ronald McDonald where we’ll stay for 2 weeks in case any late post infusions complications arise.

The doctors are blown away by how incredible Lincoln is doing and how phenomenally his little body is handling the infusion of his car T cells. Over the next 2 weeks we will have 3 clinic appointments to check his levels and then we will move to once a month after we go home.

We have “ the big “ appointment scheduled for mid September to check to see if there are any B cells present. If there are NOT any B cells then that means the car t therapy is working, if there are B cells present then that’s an indicator that it unfortunately is not working… at that point there isn’t any options left other then to try again, which would be the final attempt at curability. If at that point it didn’t work we would go back to doing chemotherapy to keep it at bay as best as we could until we moved into end of life care.

But none of that is going to happen because Lincoln’s a superstar and is kicking major ass. Thank you all for the continued messages, positive vibes, the love, the check in’s, from near and far. We couldn’t do it without all of you.

❤️❤️

Address

Calgary, AB

Website

Alerts

Be the first to know and let us send you an email when Lincoln's leukemia journey posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram