05/04/2026
Health Journey Update š¤
As many of you have heard, Iāve been on an unexpected health journeyā¦ and it has been one of the hardest things Iāve ever faced.
On April 16, while doing a clientās hair, I suddenly lost the ability to walk. I went to emergency and was sent homeāstill unable to walk. The next morning, I woke up feeling completely normal. I went back to work, walking and carrying on as usualā¦ until around 4:30 pm when my legs started to feel weak again. By 8:00 pm, I could barely walk. My gait had completely changedāit felt like my brain wasnāt communicating with my body (cue the āFrankenstein walkā).
I returned to emergency in Arcola, where Dr. Khalili, Azadeh was incredibleāso kind, compassionate, and truly listening. She made the calls that got me in to see a neurologist in Regina, Dr. Shahab, whose level of care and knowledge has been nothing short of amazing. He is brilliant and patient.
Since then, itās been a long road of testingāMRIs, CT scans, EMGs (the neck and groin onesā¦ I would not recommend š
), and more. Iāve had 5 IVIG treatments, a Rituximab infusion, and have been on countless medications, including high doses of prednisone, as doctors work to stabilize my symptoms and find the right treatment plan.
Through all of this, my people have been beside me every step of the way (or lack of steps, lol). My amazing Mom and Dad my sisters Lindsay and Chelsea and their families, my womb mate and best friend Brit the hours spent helping in anyway has been incredible. Her fiancĆ© Colby (aka Uncle Buck), Coryās mom Valerie, and his family, my incredible little boy Jack he is my whole world , and my supportive boyfriend Cory have helped me through this in ways I will never be able to fully express.
Coryāaka Nurse āClark,ā my real-life Supermanāhas quite literally carried me through this. The patience, care, and love he shows me every single day is something I will never be able to put into words. I am so incredibly lucky. When I go to bed at night heās by my bedside and when I open my eyes he is there smiling positive, bright and ready to help me with everything I need. He is my rock.
After many tests and evaluations, Iāve been diagnosed with an autoimmune disease called Myasthenia Gravis. We are still waiting to confirm if itās the MuSK subtype. This condition affects how your nerves communicate with your muscles, causing extreme and fluctuating weakness. I might have strength in the morning, and by the afternoon, I can barely move.
To give you an ideaā I was able to shower using my wheelchair and take four supported steps at physio. By 12:45, Cory was spoon-feeding me because I couldnāt lift my arms. With this condition the go hard or go home mentally unfortunately doesnāt work. The more I do the less I can do, so itās very much a learning curve. Iām used to pushing through and being busy so this will be a new life for me to figure out.
I am not paralyzedāI do have feeling in my legsābut right now, I cannot walk. Each āattackā looks different and affects different parts of my body. In some cases the eye will droop, speaking can be slurred or hard. Initially, it was mostly my legs, but recently it has progressed to my upper body. Iāve been moved to a more intensive ward for monitoring, as my arms have weakened, my chest feels heavy, my breathing is more difficult, and even speaking has become hard. Myasthenia Gravis can change very quickly, and in severe cases, it can affect the muscles needed to breathe.
Today I woke up and my chest feels lighter and breathing has improved Iām hopeful to move to a different room out of the constant observation care side.
MG is a rare condition, affecting about 30 in 100,000 people, but there is ongoing researchāand Iām holding onto hope.
Right now, I am still admitted at Regina General. I had hoped to be transferred to Wascana Rehab, but due to the nature of my condition, it may not be the best fit for my recovery. Being away from my son Jack, and the normal life that I knew. There really arenāt words for that kind of pain.
To say this has been a struggle feels like an understatementā¦ but Iāve fought through hard things before, and I will fight through this too.
As I navigate this new chapter, I ask for a little extra graceāpersonally, and with the salon and boutique. Things may not be perfect for a while, and it may look like the blind leading the blind. but Iām doing my best to figure it out as I go. I didnāt want to have to do a big āpostā about my health but I decided it was easier than trying to explain it individually to people when talking isnāt always easy. Thanks for reading ā¤ļø
Thank you, from the bottom of my heart, for all the love, support, and kindness youāve shown me. It truly means everything.
-B
