04/14/2024
Sharing something today that is near and dear to my heart today friends.
Many of you know, but many of you don't, that my youngest, Margaret, was diagnosed with Childhood Apraxia of Speech about a year ago when she was 2.5 years old.
You may be wondering what Apraxia of Speech is. I, too, hadn't heard of it until we were down the diagnosis road with our Margie babe.
So, what is Apraxia of Speech?
"Childhood Apraxia of Speech (CAS) is a motor speech disorder that affects a child's ability to coordinate the movements of the mouth and tongue needed for speech. It is a neurological disorder in which the brain has difficulty sending the correct signals to the muscles involved in speech. Children with CAS know what they want to say, but have difficulty planning and sequencing the movements necessary to produce speech sounds, syllables, and words."
Our journey began when I noticed that Margaret wasn't saying any words, not even "Mama," by a year old. As a Mama of 3, this was a red flag for me. I got Margaret into speech therapy right away.
We started speech therapy when Margaret was 15 months old. We continued with bi-monthly appointments with NO progress for months. Red flag #2.
I started researching, as I tend to do. (If you know, you know!) This is when I first discovered something called Childhood Apraxia of Speech.
After learning more.... it started to sound very familiar. All the common signs to watch out for, I was seeing in my Margaret.
This is when I contacted Sara with Blue Water Speech Therapy. THE go-to expert in Apraxia.
We started working together right away, and Sara confirmed my suspicions. Margaret was diagnosed with Severe Childhood Apraxia of Speech when she was 2.5 years old.
Fast forward a year later, and now Margaret is 3.5 years old.
We have her in a special preschool program and she is in intense speech therapy 3 times a week.
Thanks to this - Margaret is excelling. She is talking more now than we ever imagined, and her growth has blown us all away. Margaret needs to learn and create the pathway for every single word and she is determined to do so.
Apraxia Is a life long disability, and she will continue to struggle with this her entire life. Reading and writing will be especially challenging, but I have no doubts that my Margaret will crush it.
All of this to say, Calgary Apraxia is hosting a walk on May 25th to spread awareness of this rare disorder and my family of 5 will be there.
Calgary Apraxia supports local families, just like mine, who have a child with Apraxia. All donations for the walk will go to Calgary Apraxia.
To sign up or to donate please head to the link below. Any little bit helps.
Margaret's team name is MARGIE'S MARCHERS (you'll select my team to donate to!)
Hope to see you there!!
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