Little Steps for Linkoln and Ataxia Telangiectasia

11/23/2018

08/03/2018

August is A-T awareness month, please donate to www.atcp.org so we can find a cure❤

08/24/2017

So my amazing friend Jess put our name in for a fundraiser that this company Pro Star Energy puts on every year. They contacted us so myself and the kids met up with them. Unbelievably they chose our family!!!!! What does this mean you ask? Well they have put together a night of entertainment food and drinks along with a silent auction. All proceeds go to helping with anything Linkoln and Bentleigh need!!!

06/08/2017

So we had an awesome neurology appointment today aside from still not getting Linkolns walking completely under control we are so happy to report he has put on 22 pounds in 1 year his head circumference went from being in 3% tile to the high 30%, weight went from 30% tile to in the 80% and his height went from being in the 15% tile to the 30% so he is doing so so great and Bentleigh has put on 5 pounds and grew almost 3 inches. We were also told not only her movement specialist believes she is mild so does her neurologist. We truly believe all of these positives are due to the fact that they are on medical ma*****na. We are so thankful for all the positives right now 💚💚

06/06/2017

This is exciting news for Linkoln but we are still pretty sad Bentleigh can't participate in the trail.