UAlberta Parkinson and Movement Disorders Program

05/28/2024

https://www.parkinsonsecrets.com/blog/applying-the-unlonely-project-to-parkinsons-disease

By Indu Subramanian, M.D. “To be unlonely in this world, we each need to find “our” people, the ones who accept us as we are, and welcome hearing our story.” - Jeremy Nobel I was reading “ Project UnLonely ” by Dr. Jeremy Nobel and was struck by how much ‘negative’ impact accompanies...

05/28/2024

Exercise and Parkinson’s disease. Check this very useful MJFF session of "ask the MD".

In this video, Rachel Dolhun, MD, DipABLM speaks with Cristina Colón-Semenza, PhD, a physical therapist, rehab scientist and assistant professor of kinesiology at the University of Connecticut, about exercise tips for life with PD.

05/10/2024

Join the The Michael J. Fox Foundation for Parkinson's Research on May 16th to learn more about pain in Parkinson's disease and how to best manage it.

Register at https://www.michaeljfox.org/webinar/when-parkinsons-hurts-treatments-managing-pain?em_cid=mc-a1bVL000001DDGb

04/26/2024

Are you interested in Parkinson's research? Please join one of our UofA researchers to use the app Ameya in order to assess your movements and nutritional status.

04/25/2024

Congratulations to Dr. Richard Camicoli on his latest publication on the prevention of falls in Parkinson's disease!

04/19/2024

Welcome to the third week of Thriving with Parkinson’s!

A big thank you to Dr. Joyce Lee, Ruth, Susan and Roseleen for initiating and running the program.

04/09/2024

Living with Parkinson's isn't easy. Join the The Michael J. Fox Foundation for Parkinson's Research on April 18th to talk about all the embarrassing and difficult symptoms of PD:

Join our expert panelists as they get frank about some of the more difficult-to-discuss realities of living with Parkinson’s from drooling to bladder issues to memory problems to sexual dysfunction. They’ll cover research, treatment and practical tips for dealing with hard conversations, embarra...

04/08/2024

Every year, the month of April is dedicated to raising awareness of Parkinson's. World Parkinson's Day is celebrated on April 11 in honour of the birthday of Dr. James Parkinson, who first identified Parkinson's disease more than 200 years ago (1817).

During this year's Parkinson's Awareness Month, we want to celebrate the strength and resilience of the Parkinson's community across Canada and share their stories and successes to show that living well with Parkinson's is still possible.

We encourage Canadians to help us raise awareness by following along on social media and visiting parkinson.ca/PAM.

03/20/2024

Ethnic and Gender Disparity in Access to Deep Brain Stimulation
Run Dates: Ongoing

The University of Alberta, Parkinson and Movement Disorder Program is seeking volunteers to participate in our study “Ethnic and Gender Disparities in Access to Deep Brain Stimulation (DBS)”. The goal of this project is to find out what the potential factors are contributing to the different access to DBS. Our current data showed that much less women and non-White received DBS. Therefore, the study will focus on women and racialized people to better understand the potential challenges they face.

We are seeking volunteers to do an interview and a few questionnaires.

Who are eligible to participate in the study?
• You have a diagnosis of Parkinson’s Disease, tremor or dystonia
• Females aged 18 to 75 and/or
• People do not identify as European descent/White
• Individuals who were suggested by their doctors that DBS could be beneficial, but have not yet undergone the procedure
• People who are reluctant to go through DBS work-up or surgery

What is required of the participants?
• Engage in a virtual interview, lasting for 30-40 minutes
• Answer questions related to your disease experience, symptoms, decision-making, any relevant knowledge on DBS

If you are interested, please call or leave a message for Gail Dimapilis at 780-777-4960 or email [email protected]

03/17/2024

Congratulations to Dr. Janis Miyasaki for being awarded the International Neuropalliative Care Society Lifetime Achievement Award!

Learn more at https://www.inpcs.org/i4a/pages/index.cfm?pageid=3454

03/12/2024

What causes Parkinson's?

Join The Michael J. Fox Foundation for Parkinson's Research on March 21 at 10 AM to learn more about the various environmental factors that affect your relationship with Parkinson's.

Register at https://www.michaeljfox.org/webinar/everyday-exposures-parkinsons-environmental-connections-disease

03/10/2024

https://dystoniacanada.org/
If you have dystonia, and in an educational program, please check the website of the Dystonia Medical Foundation of Canada to see your eligibility of "Jackson Mooney Dystonia Patient Grant".

03/06/2024

Register for the "Estate Planning for Families Impacted by Parkinson's Disease" webinar on March 26 to learn more about how to prepare you and your family.

https://www.parkinson.org/events/2024/Estate-Planning-March

03/04/2024

It's a busy March for Parkinson Association of Alberta - be sure to register for the programs most important for you!

https://parkinsonassociation.ca/wp-content/uploads/2024/01/2024-Program-Calendar-V02.pdf

11/10/2022

Parkinson’s and Bowel Health: What do you do when you can’t poo? Constipation is a frequently reported symptom of Parkinson’s but we often get stuck not talking about it.

Register for our program’s first education session of 2023 here: https://forms.gle/L6zoBKiAoZA6yZop9

10/31/2022

A research team at the University of Alberta is looking for research participants. If you are interested or have any inquiries about participating, please phone the number listed in the post.

Please note that comments are turned off to protect confidentiality about medical history. Any inquiries sent to this account will not be answered, as it is not affiliated with this research group.

08/25/2022

A research team at the University of Alberta is looking for research participants. If you are interested or have any inquiries about participating, please phone the number listed in the post. Please note that comments are turned off to protect confidentiality about medical history. Any inquiries sent to this account will not be answered, as it is not affiliated with this research group.

10/05/2021

https://www.parkinson.org/blog/awareness/New-Exercise-Recommendations?fbclid=IwAR3GQB-Qxu8jvnZcu_bUoROcWDuXCOjFi5lLSMjr9UOf6BsfJH9hRr9CaBI