Virtual Heart Connection

05/23/2026

We presented our experience with online choirs and Fontan Family camps at AEPC 2026.

05/23/2026

We presented our experience with online choirs and Fontan Family camps at AEPC 2026.

05/01/2026

Last 2 weeks to register for our Fontan Family camp, May 29-31 at Gull Lake. All children with a Fontan operation and their family members are invited to attend a weekend of activities, education and connecting with others. Registration closes on May 15th. See link for further details. https://forms.gle/EFpEXSGJ3ncSL3y16.

04/29/2026

Join our annual CHD picnic on June 6, for anyone with a heart condition and your entire family. Hotdogs and ice cream provided for all who register. Games & activities for everyone. Brought to you by the and and sponsored in part by the Scan qr code to sign up. stollerykids

04/26/2026

Join our annual CHD picnic on June 6, for anyone with a heart condition and your entire family. Hotdogs and ice cream provided for all who register. Games & activities for everyone. Brought to you by the and and sponsored in part by the Sign up here http://qrto.org/IpPd8Z

04/07/2026

Last call CHD parents. 💙

This Saturday is our first CCHA Connect Session, and we really don't want you to miss this.

Here's what makes it different:

🎓 Education: A focused, practical topic to help you navigate your child's CHD journey.

💬 Connection: You'll get to connect with other parents navigating CHD and we will have adults with CHD as special guests to share their wisdom of what it's like navigating life with CHD.

This isn't just a support group. It's a learning space + a community + a rare chance to ask adults who've walked the walk.

📅 Saturday April 11th, 2026
⏰ 11:30AM EST, 8:30AM PT, 9:30 GMT, 12:30 AST
💻 Virtual – join from your couch

Register here: https://cchaforlife.org/news/ccha-connect/

Tag a CHD parent who needs to hear from an adult survivor this week. 💙

04/05/2026

Happy Easter! May Spring come soon and you have a tune in your heart. Our choir is wrapping up so watch out for the video. Fontan camp is coming up and a Family picnic is in the works. Watch this site for event dates , .

03/24/2026

03/24/2026

We’re so excited to officially introduce CCHA Connect 💛

A virtual space for parents of children with congenital heart disease to come together through open conversations, shared stories, and educational discussions.

🗓 April 11
⏰ 11:30 AM EST
💻 Online / Virtual

Together, we’ll explore:
• Supporting teens as they transition to adulthood
• Strategies for managing caregiver burnout
• Open conversations with adults with lived CHD experience
• Connecting with parents in similar situations

This is a space to feel supported, heard, and understood — because no one should navigate this journey alone.

03/23/2026

Join on April 11. 2026 at 11:30 EST for a Parent Chat about Mental health for Careaivers and children with CHD organized by the Canadian Congenital Heart Alliance. We aim to connect parents across the country who have children living with CHD.

Registration will be limited to 30 people so register early. The deadline to register is April 8, 2026.
https://forms.gle/uPC3erspYaoZDxUd8

03/20/2026