Karters Cancer Crusade

Karters Cancer Crusade it is important to me that the battles fought by brave kids fighting DIPG/Childhood are acknowledged Welcome to Karter's Cancer Crusade. He is our hero! Why not?
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We would like to introduce the world to our kind, loving, happy, sassy 5 year old only child, Karter. He is braver and stronger than most adults. Unfortunately he is also fighting for his life. On July 26/22 he was diagnosed with a terminal DIPG tumor. This is the day that our world was turned upside down and absolutely destroyed. DIPG is an inoperable and untreatable tumor on the PONS in the BRAINSTEM. We were not even aware that there was such a thing prior to diagnosis and have since been forced to realize that most have not heard of this terrible, destructive, fast moving, aggressive and deadly cancer. We want to change this. We want to change the stigma and taboo associated with discussing these very difficult subjects. We have discovered that DIPG and other childhood cancers receive single digits of all funding compared to adult cancers and DIPG receives even less. We understand how difficult, uncomfortable and disheartening talking about DIPG and Childhood Cancers can be. We understand how sad, heartbreaking and incomprehensible this subject can be however we need to change this. Hundreds of thousands of children and their families, and more, face DIPG annually and more cases are being diagnosed every day. Even more face other Childhood Cancers every year. We do not hear about DIPG or Childhood Cancers in the media, on social media and often not even in medical journals. We do not see a sea of Gold and Grey in every store, office, corporation, bank, government establishment or on every billboard, not even in September which is designated as Childhood Cancer month or on May 17, DIPG day. What can be more important than saving our children? Childhood cancer is a very sad and difficult topic to discuss. It is uncomfortable and incomprehensible because of the circumstances and reality involved. We really do get it! However we also understand that we must change the stigma and taboo surrounding this topic. We need to create the conversation. We need to change the conversation. We need to do better for the children facing this monster. We need to find treatments and cures! We are usually private people however we have been forced to re-evaluate and adjust our lives in ways we never thought we would. It is dumbfounding that in 2022 we are unable to talk about childhood cancers and even more mindboggling to learn that funding for childhood cancers and advancements have pretty much stagnated for decades. We want to make the public aware that Childhood Cancer and DIPG are very real and grossly underfunded and underrecognized. We want to change the conversation and promote funding and advancements in DIPG and all other Childhood Cancers. We invite you to join us on this life changing journey.

01/12/2026

It’s a big scan day tomorrow for Waylon. Not only is there the usual anxiety, uncertainty, and worry of what news an MRI will reveal, but this week also marks nearly a year since our sweet 3½ year old’s medulloblastoma diagnosis, and 5 months since the end of his treatment.💛

Make no mistake, Waylon is a little warrior. Facing every treatment, test, and hurdle of his brain cancer battle with a strength beyond belief. His latest love is all things music and singing (he’s got joy, joy, joy … where? Down in his heart!). He adores trucks. And mac-n-cheese. He’s silly and funny and sweet. Of course, at 3, he’s also super independent and oh-so opinionated.💪

We’re holding Waylon and his family so close in our hearts tonight, praying for good results, sending them our peace and positivity, hoping they feel both our support and comfort, knowing they are showered with love from their community of friends and family.🙏

01/11/2026

Our hearts are broken to share that sweet, strong Sophia has run into the arms of Jesus. At just 15 years old, Sophia battled DMG for nearly 2 years with unsurprising resilience and tenacity. That was just her way. Spunky and sassy, kind and caring, gracious and genuine. But driven to give this fight everything she had, as in the words of her family, only a badass girl like Sophia could.💪

Sophia loved all things SpongeBob and shopping, basketball and bowling. A loving combination of beauty, brains, and whip-smart humor, Sophia was a teenager beyond compare. Gregarious and outgoing, with the kind of smile that simply illuminated everyone and everything around her. Compassionate. Considerate. Joyful. Spiritual. Fully aware of the realities of her battle with this devastating brain cancer, but unfailingly determined to never give up, pouring her whole heart and courageous spirit into every option, every treatment. Sophia was an adventurer. A music lover. And a true warrior.💛

We’re holding all of Sophia’s family and friends close in our hearts, as they walk this unimaginable path. Hoping they feel surrounded by our love and light, our peace and comfort.

01/11/2026

Every donation, every dollar means another chance at a critical breakthrough. One that every family battling these aggressive, currently incurable brain cancers is waiting for. One that researchers like these are dedicated to uncovering. Congratulations, Dr. Wong!

Learn how new funding will support research uncovering hidden vulnerabilities in pediatric high-grade gliomas to help inform future targeted approaches: https://youtu.be/BY4sn6627pA

01/11/2026
01/11/2026
01/10/2026
01/09/2026

Support Our Niece and Her Parents During This Fight Against C… Armando Rodriguez needs your support for Standing Strong with Amber During Her Fight Against Cancer

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