Cavernous Malformation Canada

01/07/2026

Today's

Ce matin, au réveil, j'ai souri : 24 heures toutes neuves s'offrent à moi.

Je fais le vœu de vivre cette journée en pleine conscience, avec un regard empli d'amour, de gratitude et de compassion.

~Thich Nhat Hanh

12/16/2025

Without a cure and limited treatment options, cavernous malformation research remains a priority. Understanding the natural history of the disease, impact based analysis, finding a cure and/or treatment options change the lives of those affected.

Patients, with their real life experiences are vital contributors to scientific discovery. We are adding depth to our Registry project and need your help.

Take our registry survey today, and tell us what is important to you and how you can help move research forward.

https://tr.ee/xDNYDcSH6e

12/03/2025

Today's on

Peu importe ce que vous voyez, je suis entier, j'ai de la valeur, je suis aimé.

11/25/2025

Cavernous Malformation can be found in the spinal cord. This is referred to as Spinal CM.

The spinal cord is a column of nerves that extends from the brain to your lower back. It consists of bundles of nerves that send incoming and outgoing messages between your brain and the rest of your body.

People with spinal CM may be asymptomatic or experience a range of symptoms, with many reporting more than one symptom.

Similar to cerebral CM, treatment choices are limited, with surgery or a watch and wait approach as the only options.

For more information about spinal CM, access the information on our website at www.cavernousmalformation.ca/spinal-cms

Une malformation caverneuse peut se développer dans la moelle épinière. On parle alors de malformation caverneuse spinale.

La moelle épinière est un faisceau de nerfs qui s'étend du cerveau jusqu'au bas du dos. Elle est constituée de faisceaux nerveux qui transmettent les messages entre le cerveau et le reste du corps.

Les personnes atteintes d'une malformation caverneuse spinale peuvent être asymptomatiques ou présenter divers symptômes, et beaucoup en rapportent plusieurs.

Comme pour la malformation caverneuse cérébrale, les options de traitement sont limitées : la chirurgie ou la surveillance active sont les seules possibilités.

Pour plus d'informations sur la malformation caverneuse spinale, rendez-vous sur notre site web : www.cavernousmalformation.ca/spinal-cms

11/24/2025

A global movement towards giving and generosity takes place December 2. There are many important causes that rely on your support. This year, we ask that you work with us in changing lives impacted by cavernous malformation. Your time, your caring and unique skills are of great value, if interested in volunteering with us, pop us an email at contactus@cavernousmalformation.ca

To support our Mission, scan the QR code or go to https://fnd.us/cavernousmalformation?ref=sh_2DdFF0

Gratitude isn't only a word, it's a feeling we bring to our work towards a cure and treatment options for this rare disease, every single day. As we simply could not support and impact Canadians, without you.

11/05/2025

Today's

"Les nuages ​​flottent dans ma vie, non plus pour apporter la pluie ou annoncer l'orage, mais pour colorer mon ciel au coucher du soleil." ~Rabindranath Tagore

11/04/2025

We have partnered with milkjar.ca a Canadian company that has some amazing candle products and more! Great way to get some holiday shopping done and support Cavernous Malformation Canada too! Orders from Canada and US are eligible for the fundraiser. Add the code CMC2025 in the promo code box at check out!!

Ends on November 25!! Thank you for your support!

10/29/2025

It's World Stroke Day!
Raising awareness of stroke saves lives, and may reduce the impact of stroke effects, by helping patients access care as soon as possible.

An ICH (intracranial hemorrhage) is often the most feared outcome of having a cavernous malformation (CM). About 25% of patients with CM, experience a hemorrhagic stroke. Sometimes, it is the first time they find out they have a cavernous malformation.

Every stroke is different in how it impacts the brain. The effects and the impact to the life of a patient can only be evaluated in a medical setting with the use of imaging.

When in doubt, get checked out! Call 911 or get to an emergency department!

10/21/2025

It's Invisible Disability Week! We encourage everyone to look beyond what our eyes can see when we encounter another person.

Ask yourself "what don't I see?"

We know that around 20-50% of patients with a cavernous malformation (CM) don't experience symptoms. For those that do, symptoms can be varied and personal to their unique CM experience. At times they may be visible to others and many times, they are not.

Let's bring attention to invisible disability for our community and for all those that live with disability.

Instead of making assumptions, judging each other or inadvertently negatively impacting anyone, let's choose to listen, understand, and accept.

10/03/2025

As a registered charity, we are in our fundraising momentum time frame. The Province of Alberta has approved Cavernous Malformation Canada for match funding once we reach $2000 in donations! This is necessary to support our impact, our Mission and for a cure and treatment options for all patients. Access the link to contribute and learn more.

https://fnd.us/cavernousmalformation?ref=sh_8DgwjFJucKx8DgwjFJucKx

We need a cure and treatment options for the rare disease cavernous malformation! You can make a difference!

10/03/2025

We are pleased to share this incredible event taking place at The Hospital for Sick Children! Connect, ask questions and listen to leading cavernous malformation experts! You may attend in person or virtually.

Register at the link
https://web.cvent.com/event/0ffb9b42-cef3-4fa7-a06a-6058074fdb80/register

Thank you to the Paediatric Neurovascular Program for hosting this informative event!

10/01/2025

Je ne pense pas à toute la misère, mais à la beauté qui demeure
~Anne Frank