Mackenzie’s story

02/17/2026

Left with no oxygen came back and it was on her. Must have needed it, glad I brought someone that could sit with her so I could run home and grab some things!!

02/17/2026

We have done xray, catheter and iv blood work, they have confirmed aspiration pneumonia and I guess she also has a uti. We will be admitted for iv antibiotics but unsure for how long!!

02/12/2026

Mack was out of surgery around 12:30, she is still sleeping and has an oral trumpet and nasal trumpet in place. Dr. Strychowski said she did really well and the only concern was Dr. Bax did his scope and noticed lot of inflammation and with the cleft repair we need to try to prevent the reflux because if she vomits it puts her at high risk for not only infection but also tearing and bleeding. Dr. Strychowski started her on azithromizen to prevent infection and Dr. Baxput her on a strong reflux medication to help but said he will be back tomorrow with a rescue plan. I guess we stay in icu for the night so I'm unable to make any video calls at this time!! Thank you everyone for your support and prayers!!

02/12/2026

Now we wait!! Mack surgery runs from 10 to 1pm and then we will go to icu because of her complexity. Once out of the icu we will be taken to our room on the 6th floor.

02/11/2026

Lot happening this week... Mack goes for surgery tomorrow to repair the cleft in her throat she was born with, they are hoping that it will help with all the aspiration and frequent pneumonia she gets. During that procedure she will also be having tonsils and adenoids removed as well as an endoscopy, we will be admitt3d for 24 to 48 hours depending on how things go. Then on Friday Tyler is scheduled for his hip surgery so unfortunately I'm unable to be there for both of them so thank you Judy Miller for being willing to be there for him as I cant and thank you Amanda Sitzes for being willing to meet me at vuc to support during mack surgery.

09/24/2025

Look who is finally awake!! We have heard from infectious disease and they have prescribed 2 oral medications which we can donate home and we come back on Friday to follow up

09/24/2025

The Doctor was in and we are still waiting for the blood culture, infectious disease has sent a few different antibiotic choices however they are having a hard time finding one that will treat both the pneumonia and urine bacteria. The Dr. Said once they get the labs back they will communicate to the infectious disease team and see what their thought are. It will be up to them if we can try 2 seperate oral antibiotics and go home or if IV is what they are still wanting.

09/24/2025

IV blew and she is swollen on the IV sight so now we wait to have another put in. My poor girl is having a ruff go!!

09/24/2025

Even with everything happening she sleeps so peacefully... We are waiting for a bed to become available so we can get out of this ER.

09/24/2025

Well that didnt take long, I got home shortly after 4 and received a call from the ER doc that we saw yesterday after getting the urine sample back it tested positive for a rare bacteria that apparently hard to treat. The Doc told us we need to come back to the ER for an IV antibiotic and hopefully it will fight the rare bacteria. We will also be getting blood work done to make sure nothing else is happening that we are missing, not sure how long we will be here but if the bacteria is not showing improvement after a couple days then we can be sent home and have nursing available in the home. Needing prayers for my sweet baby!!

09/22/2025

Mack isn't feeling well again. After a visit in the ER with her they have done x-ray and see something so are suspecting that she has aspirated again. Starting antibiotics and if not better by Thursday I have to take her back in.. The Doctor also wanted a urine sample and I'm glad he did because I guess it came back positive for bacteria, poor girl is also battling a possible UTI.

09/08/2025