Together for Tyler-Ewing's Sarcoma Survivor

Together for Tyler-Ewing's Sarcoma Survivor Tyler is a 19-year-old young man, diagnosed with metastatic Ewings Sarcoma; bone cancer, Sick Kids H The day Ty was born, they found a hole in his heart.

Tyler is absolutely amazing & has been a fighter since the day he was born. When he was 2 years old, we were told that he was Autism; in 2003 Autism wasn't a disability people were familiar with, all the doctors told us is that he would not progress in life like other "normal" children. We had no idea what the future had to hold for us as a family or for him. Kaelyn was born 2 weeks before Ty was diagnosed in October of 2003 and Ryan would come to join the family in August of 2009. In August of 2013, Tyler started to say that his legs were sore; I had taken him to the doctor who said he had "growing pains" and to take Advil. October 2013 comes along, Tyler is still doing gym at school and going about normal day to day's and still saying that he has pain in his legs, to the point where it was keeping him up at night. I went to his doctor to get an x-ray request for his legs, and on the day I went to pick it up, his school called me and he was screaming in pain. I took him to the Guelph General Hospital, they did an x-ray and determined that the left side of his pelvis was missing and we needed to be referred to Sick Kids Hospital in Toronto. After MRI's, CT scans, and a bone scan; Sick Kids has determined that Tyler has a rare form of bone cancer called Ewing's Sarcoma. Ewing's Sarcoma are tumors within the bone, it occurs in adolescents mainly, but can be diagnosed in older as well. Ewings Sarcoma is usually found in the long bones of the body; pelvis, femur, tibia. If the cancer is localized it is easier to treat, Tyler's was metastasized. Tyler's cancer was found from his brain to his toes and his prognosis wasn't good. Tyler was given 2 months to live. After 14 rounds of chemo, 36 rounds of radiation, and Cannabis Oil around the clock, Tyler is now NED (no evidence of disease) since 2015. Miracles do happen & doctors aren't always right. Follow your gut.

04/25/2024
10/29/2021
❤️ Ty.. my hero.. my everything ❤️
11/22/2020

❤️ Ty.. my hero.. my everything ❤️

CT Scans came back clean!
09/15/2020

CT Scans came back clean!

09/09/2020

Waiting Waiting Waiting...
I think this is the worst part, the unknown is scary.

09/03/2020

Friends.. it’s been a while since I posted.
Tyler is doing great, graduated high school and now trying to figure out what to take in college.

Today we are going Tyler’s 6 month CT scan to McMaster.
It’s a nerve wracking day.
Wish us luck!

To be continued...

6:10am 19 years ago today,  I became a mom to someone who would become my biggest hero, a person who I could only strive...
03/24/2020

6:10am 19 years ago today, I became a mom to someone who would become my biggest hero, a person who I could only strive to be like and someone who is pretty friggin awesome.

Tyler you’re 19 years old today my friend, Happy Birthday!

Now let’s drink to that.. Cheers!

Hi everyone.. sorry I haven’t been posting but no post is a good thing right, means life is running smooth & normal. Yes...
06/20/2019

Hi everyone.. sorry I haven’t been posting but no post is a good thing right, means life is running smooth & normal.

Yesterday was Tyler’s last day of Grade 12 and Kaelyn’s last day of Grade 10, it is unbelievable how the years have just passed and I didn’t notice.

As you can see Ty is doing awesome.. going for his drivers license soon, starts a part time job next month, he’s going back to high school in September to do a coop to get more work/life experience.

Health wise, things are great!
He has a meeting with his oncologist next week and I believe that she is releasing him from her care; no more hospitals, no more scans, nothing. Scary as s**t for me but fantastic for him.
It will still be a daily thought & scare you think about; what happens if he relapses and I don’t see the signs again...

A new chapter called life is starting for Tyler again, a new chapter that we never thought we would see.. it’s such a beautiful thing. ❤️

At 6:10am 18 years ago today, I was blessed to become this young mans mom. In your 18 years of life you have had to over...
03/24/2019

At 6:10am 18 years ago today, I was blessed to become this young mans mom.

In your 18 years of life you have had to overcome more obstacles than most do in a lifetime, and you have always fought & came out on top... you’re my hero, my best friend, my heart and my everything.

Happy Birthday Tyler! Xoxo

It's been a long month, with not a lot of sleep (well not for me) but on Christmas Eve, I thought that it would be a goo...
12/24/2018

It's been a long month, with not a lot of sleep (well not for me) but on Christmas Eve, I thought that it would be a good time to give you an update on Tyler.

For the last month, Tyler has had an MRI and a CT Scan done (finally after waiting an extra two months because of hospital mess ups).
It came back that there was an area of focus in his MRI on his spine and in the CT Scan of his chest, they found a new small nodule the size of the tip of a pen.
The radiologist & our Dr at McMaster stated last Thursday that they think the area of focus on the spine is a result of injury(inflammation) but will be completing a Spinal MRI in January to confirm.
As for the nodule found in his chest, they will keep an eye on it, and we will have a new CT Scan done in February, but the Dr. doesn't seem too concerned as it could have been an old nodule that was never noticed before.

Tyler may not have cancer now, but it will never go away and it could come back very easily... needless to say, it's always something you think about.

So to make a long story short, Tyler is good.
Few more tests to be 110% positive but they are 99% positive all is well.

MERRY CHRISTMAS TO US!!

Thank you for the support of the few people we told as it meant everything to be able to vent, cry on your shoulder, kept me positive when I wasn't and for those who are special to me that were more wrapped up within themselves to even just send a simple text to even say "hello, how are you?" ... life is short and I'm sorry that you cannot see the simple things in life that make a world of difference to someone else.

11/23/2018

UPDATE: Looks like Tyler's MRI wasn't booked at the correct hospital. Back to waiting for a new MRI date!
Not happy!

This Friday is a huge day for Tyler and for us; so many emotions to come. Tyler has an MRI this Friday to see if he is s...
11/21/2018

This Friday is a huge day for Tyler and for us; so many emotions to come.
Tyler has an MRI this Friday to see if he is still cancer free, if he is cancer free.. and we pray to God he is.. it will be his last MRI and he will be going into McMasters After Care Program.
No more scans, no more blood tests, no nothing.
This will be amazing for him, for us; bittersweet... scary as crap but also an end to the worst 5 years of our lives.

Please pray for Tyler that Friday will be a huge win; he is the most precious person and I am so lucky & blessed every day to have him here with me(us). ❤️🙏❤️

Today is our family day!! It was the worst day of our lives, Tyler’s cancer diagnosis day. Today marks 5 years since dia...
11/14/2018

Today is our family day!!
It was the worst day of our lives, Tyler’s cancer diagnosis day.

Today marks 5 years since diagnosis and he has now been cancer free for 3.5 years!
Instead of making it a negative day, we have made it a positive day!!

Thank you everyone who has been there for us on our 5 year journey!
Xoxo

08/30/2018
08/30/2018
I wanted to give an update on my hero, it's been a bit since I posted. : MRI clean, no sign of cancer: CT Scan clean, no...
08/28/2018

I wanted to give an update on my hero, it's been a bit since I posted.

: MRI clean, no sign of cancer
: CT Scan clean, no sign of cancer
: Bones strong again, and pelvis completely fused back together like there was never a jumbo size tumor there
: Ty had a set of tests yesterday to check on his heart & on his lungs
: Ty has to have two more scans in November; an MRI and CT Scan
: If all is clear in those scans... he goes in McMasters After Care Program, which means the chapter is fully closed. No more tests, no more hospital visits, nothing.

: 5 years November 14th, 2013 from cancer diagnosis
: 3 years August 2016, cancer free and still cancer free as of today!

Again, thank you to all friends, family, and even strangers that have been there for our family over the last 4.5 years, your support has been amazing & I hope you all know, we are always here for you too.

So let's get through Novembers scans clean, and we are rockin and rollin :)

I am a 110% complete believer.. it does work. Please.. if yourself or your child has cancer, try CBD Oil.. you have noth...
06/23/2018

I am a 110% complete believer.. it does work. Please.. if yourself or your child has cancer, try CBD Oil.. you have nothing to lose and it’s completely natural.

https://www.cureyourowncancer.org/

Welcome to CureYourOwnCancer.org. Cannabis oil cures cancer! Look around the site to see testimonials of cancer patients, read scientific studies and even learn to make your own cannabis oil.

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