Scleroderma Society of Ontario

02/19/2026

02/04/2026

Today we pause together with heavy hearts to remember Maureen Worron-Sauvé, a woman whose presence shaped our community in ways that words can only begin to describe.

Those who worked alongside Maureen know well that she led by example, by persistence, by refusing to step aside when her presence could make a difference. Because she stayed, people felt less alone. Because she spoke, progress found a voice. Because she listened, others felt seen.

Diagnosed with scleroderma in 2002, Maureen transformed her lived experience into action almost immediately. She joined the Scleroderma Society of Ontario Board of Directors in 2003, eventually serving as Board President from 2007 until 2016. She went on to lead nationally as Board President of Scleroderma Canada from 2010 to 2016, helping guide the organization with clarity, empathy, and resolve. Right up until 2026, she continued to serve as Vice President of Advocacy, never stepping away from the work she believed so deeply in.

Maureen’s impact went far beyond titles. She was a deeply respected patient research partner. Internationally, she was recognized as a leader who helped ensure research was done with patients, not just about them.

What many of us will remember most isn’t only what Maureen accomplished, it’s how she made us feel. She made space. She made room. She reminded us, patients, caregivers, researchers, and advocates alike, that compassion and grit can coexist, and that progress is strongest when it is shared.

Maureen leaves behind a legacy that will endure long after us. She leaves a community more connected, a path forward more clearly marked, and a standard of advocacy rooted in courage, kindness, and unwavering purpose.

We mourn her deeply. We are grateful beyond measure. And we carry her spirit forward in the work she loved and the community she helped build.

With love, respect, and remembrance,

Scleroderma Canada & The Scleroderma Society of Ontario

We encourage you to visit Maureen's memorial page and to share your Maureen story on the memory wall.

https://ow.ly/GuUi50Y91h0

01/26/2026

When you donate to Scleroderma Ontario, your support stays right here in the province. 💙 Your contribution helps fund local events, support programs, educational resources, and initiatives that make a real difference in the lives of people living with scleroderma.

Together, we’re building a stronger, more connected community. 🌟

Help us continue making an impact in Ontario. Donate today to support local programs and resources: https://www.canadahelps.org/en/dn/12411

01/21/2026

Yes, that’s scleroderma. 💙

Scleroderma affects everyone differently, but these are some of the more common symptoms. From skin changes and joint stiffness to fatigue and digestive issues, each person’s experience is unique.

Understanding these symptoms is an important step in raising awareness and supporting those living with scleroderma.

01/19/2026

Do you know someone in the Ontario scleroderma community making a meaningful difference? We want to celebrate their efforts!

Highlight a community member who goes above and beyond by sending us a message, or emailing Kylie@scleroderma.ca

Let’s highlight the people who inspire and strengthen our community. 💙

01/14/2026

📅 January 19 | 5:00 PM EST

Join Dr. Danielle Rice for a webinar on navigating the challenges of supporting someone with scleroderma. Gain practical tips, guidance, and support in this important session. 💙

Register here: https://www.scleroderma.ca/event-details/strength-in-support-helping-caregivers-and-loved-ones-navigate-scleroderma

01/12/2026

Winter can present unique challenges for those living with scleroderma and Raynaud’s.

We’d love to hear from our community: what strategies or tips help you stay warm and manage the cold?

Share your experiences in the comments to support and inspire others. 💙

01/07/2026

As we step into a new year, we remain committed to our mission of awareness, advocacy, patient support, and research, and to showing up for one another every step of the way.

We’d love to start the year together:
• Introduce yourself in the comments
• Share where you’re joining us from
• Take a moment to reply to someone else and say hello!

12/04/2025

You're invited to our Holiday Mixer at the Scleroderma Ontario office! 💙

Join us for an evening of snacks, refreshments, and great company. This is a wonderful opportunity to connect with others in the scleroderma community, share experiences, and meet new people.

We’ll also be offering a sneak peek of some of the exciting things coming next year.
Whether you’re a patient, caregiver, volunteer, or supporter, we’d love to have you with us.

📍 Location: 41 King William St. Hamilton, ON.
📅 Date & Time: December 16th 2025 at 6:15PM

Let’s celebrate together!

11/24/2025

When you donate to Scleroderma Ontario, you’re supporting the core programs that make a real difference in the lives of people living with scleroderma across our province.

Education
Your support helps us provide clear, accessible information for patients, caregivers, and healthcare providers. From learning resources to webinars and events, donations ensure people have the knowledge they need at every stage of their journey.

Research + Fellowship Grants
You help drive progress by funding research and training the next generation of specialists. These grants support new discoveries, improved care pathways, and a stronger future for scleroderma expertise in Ontario.

Advocacy
Your gift strengthens our voice at Queen’s Park and beyond. Donations allow us to meet with decision-makers, push for better access to treatments, and ensure the needs of the scleroderma community are heard and represented.

Support Groups
You make connection possible. Donations help us run support groups across Ontario, giving patients and caregivers a space to share, learn, and feel understood.

Every contribution moves these programs forward and brings hope, community, and progress to people living with scleroderma across Ontario.

11/14/2025

✨ You’re invited! ✨

Join us at our Holiday Open House in Hamilton for an evening of connection, conversation, and community. Stop by to meet the team, enjoy refreshments, and hear what we have coming up in the new year.

📍 41 King William St., Hamilton

We’d love to see you there! R.S.V.P. Today: https://ow.ly/kUsE50XrO4R

11/04/2025

We are going back to the basics today! Scleroderma is a RARE, CHRONIC, MULTI-SYMPTOM autoimmune disease that affects the bodies connective tissue.

Let us know in the comments below if you learned something new!