Scleroderma Society of Ontario

08/02/2025

Wishing you a restful weekend!

Whether you’re recharging, catching up with loved ones, or simply taking things slow, we hope you find a moment just for you.

Living with or supporting someone with scleroderma can make rest feel even more important. So here’s your gentle reminder: it’s okay to pause. 💙

How are you spending your weekend? Let us know in the comments!

07/31/2025

Are you on the list?

Our email list is the best way to stay connected with the scleroderma community.

You'll get:
✔️ Our Quarterly Newsletter
✔️ Patient stories and advocacy updates
✔️ Upcoming events and opportunities to get involved

Whether you’re newly diagnosed, a longtime supporter, or just looking to stay informed, we’ve got something for you.

Sign up today: https://lp.constantcontactpages.com/sl/2Ihw5tK/SclerodermaCanada

07/27/2025

Sunday Reset!

Whether your week was busy, emotional, empowering, or all of the above, today is a good day to pause, reset, and take care of you.

Your reset might look like:
✨ Laying out meds or meals for the week
✨ Setting a small, doable goal
✨ Journaling or stretching
✨ Doing absolutely nothing, and that’s okay too!

What’s one thing you're doing today to reset or prepare for the week ahead?

07/26/2025

We want to hear from you!

There are so many ways to make a difference in the scleroderma community, and we’d love to know what you feel most passionate about.

What are you most interested in getting involved with?
- Advocacy
- Awareness
- Research
- Fundraising
- Or something else entirely?

Tell us in the comments or send us a message. Your ideas and energy help shape what we do next. 💙

07/24/2025

Thank you for all your support this summer!

From awareness campaigns and community events to sharing stories, fundraising, and showing up online, you made a difference!

Whether you liked a post, wore your merch, joined a walk, or simply reminded someone they’re not alone, we’re so grateful to have you with us.

Your support helps us push for research, advocacy, and better care for everyone affected by scleroderma in Canada.

Here’s to everything we’ve done together this summer, and all that’s ahead. 💙

07/22/2025

We’re looking for stories, and yours could make a difference!

Whether you’re a patient, caregiver, friend, healthcare provider, or researcher, your experience offers something powerful to our community. If you’ve been wanting to share but weren’t sure what to write about, here are 5 prompts to get you started:

For people living with Scleroderma:
“The symptom that changed everything for me.”

For caregivers:
“What I’ve learned while supporting someone with scleroderma.”

For friends or family members:
“How I’ve stayed connected when I didn’t always understand the illness.”

For healthcare professionals:
“What I’ve learned from my patients living with scleroderma.”

For researchers:
“Why I chose to focus my work on scleroderma.”

We’d love to include your voice on our blog. If one of these speaks to you, or you have your own story in mind, reach out!

📧 Email Kylie@scleroderma.ca to learn more about our blog and how you can get involved!

07/20/2025

Want to stay in the loop?

Our quarterly newsletter brings scleroderma updates straight to your inbox, including research news, patient stories, upcoming events, and ways to get involved.

It’s one of the easiest ways to stay connected to the community and never miss a thing.

Subscribe today: https://lp.constantcontactpages.com/sl/2Ihw5tK/SclerodermaCanada

07/19/2025

Let’s talk summer ☀️

Whether you’re heading out on a trip, enjoying time at home, or planning some well-earned rest, we’d love to hear what’s on your summer agenda!

Managing scleroderma can make planning a little different, so we’re also curious:

Do you have any summer tips, travel hacks, or go-to ways to enjoy the season while caring for your health?

07/17/2025

Why does awareness matter?

Scleroderma can be difficult to diagnose, and delays in diagnosis often mean delays in treatment. Raising awareness helps more people, including healthcare providers, recognize the signs earlier.

It also helps reduce stigma and builds a stronger community of support for those living with the disease.

Awareness isn’t just about visibility; it’s a vital part of improving outcomes for people living with Scleroderma across Canada.

07/15/2025

Have you subscribed to our Quarterly Newsletter? Our next edition goes out on August and you don't want to miss it!

Subscribe today: https://lp.constantcontactpages.com/sl/2Ihw5tK/SclerodermaCanada

07/13/2025

We want to make sure the content we’re sharing is meaningful, helpful, and relevant to you. Whether you're a patient, caregiver, friend, or supporter, we’d love to hear what you’d like to see more of.

➡️ Are you interested in more patient stories?
➡️ Research updates?
➡️ Educational posts?
➡️ Advocacy work or behind-the-scenes?

Let us know in the comments! Your feedback helps us shape future posts and better support the scleroderma community 💙

06/24/2025