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Scleroderma Canada

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Hamilton, ON
Scleroderma Canada

We advocate nationally for those affected by scleroderma.

Mailing List: https://lp.constantcontactpages.com/sl/2Ihw5tK/SclerodermaCanada

Ottawa 2026 Conference: https://www.sclerodermaconference.ca/

01/09/2026

Interested in joining our Exhibit Hall? Be part of a space curated specifically for our attendees, including patients, caregivers, doctors, researchers, and healthcare professionals. This first-come, first-served opportunity is a great way to network, connect, and share your work. Email Riva@scleroderma.ca for more information and to apply.

01/06/2026

💙 Thanks to you, real impact is happening every day.

Because of the dedication of doctors, researchers, volunteers, advocates, our board, and donors, people living with scleroderma are receiving the care they need, research is moving forward, and awareness continues to grow.

This work doesn’t happen in isolation, it happens through collaboration, commitment, and community. We are deeply grateful to everyone who shows up, speaks out, gives their time, and supports this cause in meaningful ways.

Together, you are helping build a stronger future for everyone affected by scleroderma.

Thank you for being part of it.

12/11/2025

Alberta community, you’re invited to our Movie Mixer Morning! 🎬

Join us for a cozy screening of Elf and a chance to connect with others in the scleroderma community.

Christmas sweaters and comfy pyjamas are highly encouraged 💙

📍 1631 Tamarack Way NW, Edmonton, AB T6T 0N3, Canadav
📅 December 20th at 9:15AM

Reserve your ticket today: https://www.scleroderma.ca/event-details/movie-mixer-morning

12/05/2025

Our final newsletter of the year is packed with updates, year-end highlights, upcoming events, patient stories, and a look at what’s ahead for 2026. If you’re not already on our mailing list, now is the perfect time to join.

By signing up, you’ll get:
✨ Important updates delivered straight to your inbox
✨ Early access to announcements, programs, and events
✨ Community stories and resources
✨ A closer look at the impact of your support throughout the year

We don’t want you to miss out, especially with so many exciting things coming in the new year!

👉 Join our mailing list today: https://lp.constantcontactpages.com/sl/2Ihw5tK/SclerodermaCanada

12/04/2025

We’re recruiting volunteers for the 2025 Scleroderma Conference, and we’d love to have you on our team!

Volunteers play a vital role in making the event welcoming, organized, and impactful for patients, caregivers, and healthcare professionals. As a thank-you, conference volunteers receive FREE registration.

If you’re interested in helping, learning, and contributing to an incredible thee days of connection and education, please fill out the volunteer application below.

Apply here: https://ow.ly/Ekp450XBUeB

12/03/2025

We are so grateful for this year’s Giving Tuesday impact.

With the support of our community and several generous matching donations, including a $50,000 match from Allan and Sharon Scott, we raised an incredible $107,356💙

Thank you for helping us make a meaningful difference for people living with scleroderma in Canada.

12/01/2025

A heartfelt thank you from our Board. 💙
Your support fuels real change for the scleroderma community.
If you haven’t given yet, there’s still time, donate today: https://www.canadahelps.org/en/dn/140066

11/30/2025

Interested in attending the Accepting a Scleroderma Diagnosis & Uncertainty Webinar?

To register: https://forms.gle/6svSAeb6aLx1H1RAA

Sydney Parkinson completed her Bachelor of Arts in Honours Psychology at MacEwan University in 2022. Subsequently, she began her PhD in Clinical Psychology at McMaster University and is currently in her third year. Sydney’s research focus is anxiety and related disorders, particularly investigating whether individuals completing the most common psychological treatments for anxiety disorders maintain their improvements over the long term. Clinically, Sydney has completed practica focused on providing treatment and assessment for individuals experiencing anxiety and depression. She also has clinical experience working with individuals living with life-altering medical conditions, including supporting people across early diagnosis and end of life.

11/28/2025

ScleroCare is a powerful example of how donations create real, tangible change.
This platform allows patients to easily track their medical information, understand new research in plain language, and connect with others in the community. And with donor support, it’s now being built into a full app to reach even more people.

Projects like this don’t happen without you.

This Giving Tuesday, every donation is being matched, which means your gift goes twice as far in helping us fund innovative tools that support patients, strengthen care, and make a lasting difference.

Donate today and double your impact: https://www.canadahelps.org/en/dn/140066

11/26/2025

2025 was a big year for scleroderma awareness!

We shared powerful patient stories and explained what scleroderma is through magazine features, both in print and online. Our awareness posts came to life as printed signs at every Make a Move walk, bringing our message directly to communities across the country. And we went big with a downtown Toronto billboard, reaching thousands and sparking conversation about this rare disease.

On top of all that, our team attended conferences to learn more, connect with experts, and bring back knowledge that helps us better support the scleroderma community.

None of this would be possible without your support. This Giving Tuesday, your donation goes even further thanks to a matching gift up to $10,000, doubling your impact and helping us continue these programs, and so much more, into 2026!

💙 Give today and help keep awareness, education, and support growing nationwide.
Donate Today and have your gift matched: https://www.canadahelps.org/en/dn/140066

11/25/2025

Your Giving Tuesday impact in action.

Because of donor support, two new Scleroderma Fellows have joined Ontario, strengthening research, training, and care for our community.

Dr. Carlos Enrique Toro Gutiérrez:
"Sponsorship during a clinical fellowship represents a vital investment in advancing medical knowledge and patient care. This support provides the opportunity to dedicate time and focus to research, innovation, and specialized training, all of which directly translate into better outcomes and stronger expertise. It is both an endorsement of commitment and a catalyst that allows meaningful progress in understanding and treating complex diseases like systemic sclerosis"

Dr. Tatiana Nevskaya:
"I have been doing research in the field of systemic sclerosis at Western University for 10 years. Prior to immigration to Canada, I had worked as a rheumatologist in the Scleroderma clinic of the Institute of Rheumatology in Moscow. This is a leading national Rheumatology institution in Russia, a quaternary referral center with an exceptionally large referral area - from all across the country. We dealt with the most severe and difficult clinical scenarios when patients with systemic sclerosis were referred to us by rheumatologists as they did not respond to standard care treatment or they experienced clinical symptoms mimicking systemic sclerosis while having other fibrotic conditions which required a different treatment approach.

I hope this experience with challenging situations in terms of diagnosis and treatment, and innovative approaches can be valuable for my clinical practice during the fellowship. I believe we need to pool all knowledge and resources from the Rheumatology centers worldwide to accelerate research and treating this rare disease.

Thank you again for this opportunity and for your commitment to support and fund research. I hope to one day be able to give back to the scleroderma community in Canada"

This is what donor impact looks like. Thank you for helping shape the future of scleroderma care.

Give today for Giving Tuesday: https://www.canadahelps.org/en/dn/140066
Scleroderma Society of Ontario

11/21/2025

Double the Impact is back! We’ve received a generous $10,000, that means when you give between Nov. 25th and Dec 2nd, your donation is doubled!

Address

41 King William Street, Suite 203
Hamilton, ON
L8R1A2

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+18662790632

Website

http://www.scleroderma.ca/

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