Hudson’s Journey with Spinal Muscular Atrophy- SMA Type 2

04/10/2026

So proud that our local school has joined in! As Muscular Dystrophy Canada has helped many even in our little community over the years🥰
Harvey High School

Middle school leadership organized event coming up. Middle school will be joining in this event to help support an important cause!

04/10/2026

Viva has been focusing on the aac device with Hudson when they come out twice a week, helping little man have a voice everyone can understand🥰

04/08/2026

Got the call, Hudson’s new sleep safe/medical bed is in! They are coming out end of next week to get it set up for him.. super exciting for both Hudson and me🥰

The fight for the needs my child has can be exhausting and aggravating, as everything he needs is always a fight and jumping thru loop hole after loop hole.. but when stuff finally gets done and he gets what he needs it makes it all worth it.
Hopefully little man will love his new big boy bed, I know I will as it will adjust up and down..etc making it much easier for me caring for Hudson.
Will post photos once it’s here and together 😊

04/05/2026

We wish all followers a happy Easter!

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04/02/2026

We hope everyone enjoys their Easter weekend! 🐰🐣

03/23/2026

Growing like a bad w**d❤️ chilling in his new stander

Tomorrow we have VIVA coming out, this will be the first time meeting Hudson’s personal worker who will be coming out twice a week. They will be extending time/days as Hudson adjusts to it, but nice to have a consistent schedule for him to get used to it. I believe we’ll be getting his AAC device back as well ready to use! They took it with them last week so they could get it all properly set up for Hudson’s use😊

Muscular Dystrophy CanadaSpinal Muscular Atrophy SupportSMA News TodayAutism Awareness PageAutism SpeaksAutism FamilyAutismCure SMA Canada

03/23/2026

Still lots of time to get donations in for the walk and roll in may! Link in post to make a donation 🥰

“Muscular Dystrophy Canada helps bring families together, young and old, who face some of the same challenges. They are always hosting and organizing various events that may seem small to some, but have a huge impact on everyone who attends. Muscular Dystrophy Canada has been there when we've needed them, as they have for millions of others.” Hudson Nason is our Walk & Roll Champion for Fredericton.

To learn more about Hudson and his family and to donate to a Walk & Roll event, visit: https://muscle.akaraisin.com/ui/WalkRollMDC26/g/48337

03/22/2026

Very excited to see Harvey High school is doing the Walk and roll day for Muscular Dystrophy Canada on April.30th!!
This is the school that Hudson’s older sister Dakota attends.

Muscular Dystrophy CanadaHarvey Rural Community Municipality

03/19/2026

What a hectic day two😂 Hudson did really good today with everything again.
The amazing folks at Stan Cassidy hooked us up with a special chair for him, as he’s out grown the high chairs. This chair is amazing and I’ll have to post a clip after of it to show how much easier it’ll make it for me and Hudson as it raises and lowers as well.
Behind the chair picture you can see his new stander has made it home as well, all fitted and ready to jump back into things.
They were also amazing and helped find a car seat for little man, not only is it more of a big kid seat for him but it spins around too! Being able to turn it to the side to put Hudson in is going to make it so much easier.

Now the downside today.. they have been keeping a close eye on Hudson’s hips for a couple years now, doing X-rays every 6 months to track changes.. Hudson’s hips have hit the point that something will need to be done for both sides (30%). Dr. Tallin being the amazing dr she is already put the information thru to the IWK, so now we wait for a phone call to meet the Dr that will be doing surgery on our little warrior as well as his game plan for what procedure he’s looking at doing. There is a new surgery that hasn’t been available/around till this past year, so we’re hopeful this is what they will be able to do as less invasive. This does involve putting screws thru some bone to help hold the ball of the thigh bone in the hip joints kinda thing, we’ll know for sure what approach and details when we meet the surgeon who will be handling hudson.

Cure SMA CanadaMuscular Dystrophy CanadaSMA News TodaySpinal Muscular Atrophy SupportSMA AwarenessSMA Awareness Ribbon

03/18/2026

Day one of intensive therapy at Stan Cassidy, they were very happy with his progress. He’s come so far this past year, so it definitely feels good knowing that they can see his progress.
We’re figuring out a game plan for little man the next 18months as he’ll be starting school sept/2027🤯
we have had some MAJOR issues with Woodbridge and Hudson has fallen thru the cracks over and over again, which means he’s going without things he needs like his PT (Hudson should be going monthly, but only went once last year and the new worker he had was useless) one of the many many issues with Woodbridge..so Stan Cassidy is helping come up with a plan to help get Hudson some private help so he’s not missing out on his needs.

Hudson’s been with Stan Cassidy since before his 1st birthday (before he started Spinraza) so they have seen first hand how far he’s come and how he keeps improving.. very happy we have the team we do at Stan Cassidy, they are all very welcoming and absolutely amazing with Hudson ❤️

Hudson’s new stander is in and fully fitted! It’ll come home tomorrow with us.. tomorrow we’re also going to be going over some car seat and “high chair” options as he’s growing like a bad w**d and will be in need of some new specialty equipment😊

Spinal Muscular Atrophy SupportMuscular Dystrophy CanadaSMA News TodayCure SMA CanadaSMA AwarenessSMA Awareness RibbonStan Cassidy FoundationAutism SpeaksAutism Awareness Page

03/17/2026

Happy saint pattys day🍀

03/15/2026

Sundays are for watching the new Dino documentary on Netflix ,with your fave Dino’s🦖🦕