06/02/2021
Wow , it has been so long since I tylers mom have updated his site.
I think we can all agree that covid has made times difficult and such a challenge. We pray that your family and friends are staying safe and healthy during this time. We hope that things get back to normal soon.
Now about Tyler . He has grown into such a respectful, kind hearted , all around amazing young man. Despite all his challenges he still remains positive and hopeful.
We have been struggling since covid to get seen by a doctor . Since moving to Toronto we were always in a red zone this making it impossible to be seen at any doctors in person as we lived in a high risk area ( despite our area being safe and one of the lowest in the city).
When contacting doctors I felt as though I was being pushed from one doctor to the other to receive the care Tyler deserves and so very well needs . I waited months for him to have a phone call doctors appointment , however with the issues and changes I have seen with Tyler they couldn’t adequately be assessed. This put stress on all of us.
I decided the best option would be for Tyler to switch doctors to my amazing new family doctor here in Toronto .
While switching came a new hurdle , because of covid and some receptionist working from home I was never able to get tylers chart switched/transferred resulting in it taking months . 
Finally last month I got everything switched and taken care of and he had a phone appointment on the 28th of May.
With the changes I am seeing in Tyler such as his legs giving out randomly , him dropping items way more often , his balance being the worst it’s even been and his headaches more intense and often , both his family doctor and I decided the best routine is to have a mri ASAP !
Tyler is 16 now , so while speaking to his doctor I asked if we could get his mri done at an adult hospital and once the results are in we can make a collective decision on whether to send him to sick kids or to a neurologist at Mount Sinai hospital . I wouldn’t want Tyler to be seen for just a year , develop a relationship with a doctor and then once again be transferred to an adult clinic . We will decide once everything is said and done .
So today is scan day. We are staying positive and are so very blessed to have a new family doctor, who takes all my concerns about not only my kids but my own health seriously. I think the best choice I could have made for tylers complexed medical needs was moving to Toronto And switching medical professionals:).
I will try my best to update with results . It will take a bit of time to get everything done and such. As he doesn’t have a new team just yet however Dr Rez is on top of everything .
Have a great Wednesday . Send thoughts and prayers ,be positive and stay safe
With love - Danielle and Tyler
