Soft Bones Canada - Hypophosphatasia 'HPP' Community

Soft Bones Canada - Hypophosphatasia 'HPP' Community SBC: source of education, info, encouragement, and support those affected by Hypophosphatasia.

Happy Rare Disease Day! Let us know how you celebrate, raise awareness and stand for rare disease!
02/28/2026

Happy Rare Disease Day!

Let us know how you celebrate, raise awareness and stand for rare disease!

Tomorrow is Rare Disease Day!
02/27/2026

Tomorrow is Rare Disease Day!

Did you know Hypophosphatasia is a genetic disease and the exact number of people in the world with hypophosphatasia (HP...
02/24/2026

Did you know Hypophosphatasia is a genetic disease and the exact number of people in the world with hypophosphatasia (HPP) is unknown due to underdiagnosis and the wide spectrum of disease severity.

Let’s raise awareness for HPP and all rare diseases on Friday, February 28. It’s almost Rare Disease Day!

Six days until Rare Disease Day! Get ready to share, support and celebrate!
02/21/2026

Six days until Rare Disease Day! Get ready to share, support and celebrate!

Did you know rare disease affects so many? You are definitely not alone! Get ready for Rare Disease Day on February 28th...
02/13/2026

Did you know rare disease affects so many? You are definitely not alone! Get ready for Rare Disease Day on February 28th!

The countdown is on! Rare Disease Day is February 28, 2026. Join us is recognizing and celebrating Rare Disease Day and ...
02/04/2026

The countdown is on! Rare Disease Day is February 28, 2026. Join us is recognizing and celebrating Rare Disease Day and spreading awareness of rare diseases.

Head over to rarediseaseday.org to download your own shareable infographics.

Happy 2026 from your Soft Bones team! Wishing you all a happy New Year!
01/01/2026

Happy 2026 from your Soft Bones team!

Wishing you all a happy New Year!

Happy Holidays from all of us at Soft Bones Canada!
12/25/2025

Happy Holidays from all of us at Soft Bones Canada!

Reminder! IQIVA is conducting a survey on HPP patients and caregivers and they need YOU! Please contact the project mana...
11/20/2025

Reminder!

IQIVA is conducting a survey on HPP patients and caregivers and they need YOU!

Please contact the project manager on the flyer for more information or to participate.

Thank you to all the veterans who gave their lives so we can enjoy freedom today. We will remember them!
11/11/2025

Thank you to all the veterans who gave their lives so we can enjoy freedom today. We will remember them!

Happy HPP Day!!!!
10/30/2025

Happy HPP Day!!!!

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