Conner was born April 5, 2009, and 3 days later our world was forever changed! Conner was diagnosed with multiple heart defects that will mean a life time of surgeries, cardiac follow ups, not to mention blood work, echos, EKG's and xrays! He was diagnosed with the following;
DORV- Double outlet right ventricle- which means the large hole between his ventricles was causing a serious flow problem a
llowing "red" and "blue" blood to travel incorrectly. Sub-Aourtic VSD- which was the large hole bellow his aourtic valve
3 muscular VSD's- all in the septle area of his lower heart
Double Oarfsis Mitral Valve- a VERY rare congential defect- his mitral valve had 2 smaller openings instead of one
Mitral Stenosis- which is a narrowing of the valve area, which is also not very common in congential heart defects at birth
Aourtic Stenosis- narrowing of that valve area as well
Conner has had 3 OPEN HEART surgeries, as well as 2 pacemaker implantation surgeries;
1.Sept 30th 2009, age 6mths- repair of the Sub Aourtic VSD, corrected the DORV, repair of the Mitral valve by resecution of the tissue growing around the valve
2.Oct 5th 2010- age 18 months- repair of the Mitral and Aourtic valves by resecting the tissue/muscle again
3. Dec 2 2011- age 2 1/2yrs- Mitral Valve REPLACEMENT, Aourtiv valve repair, VSD patch re-do// COMPLICATION- 3rd degree heart block- his ventricle no longer functions alone
Dec 5th 2011- FIRST permendant Pacemaker implantation
Oct 23rd 2012- SECOND pacemaker surgery- put in a Bi-Venticular pacemaker
Since Conner's 3rd open heart surgery, he continues to require a lot more care from his team. In 2012 alone, we made 18 trips to Edmonton, stayed 3 weeks in the hospital, and there was the countless trips locally for Pediatrition, Family Doctor, and emergency room visits. Since Dec 15th 2012 even, Conner has required over 2 DOZEN trips to Edmonton alone.. and things are not getting better for him. He has been in Heart Failure since his heart surgery in 2011, requires BLOOD THINNERS for as long as he has an artificial VALVE.. so the unforeseen future for sure.. not to mention the other 5 HEART medications he is on, the DAILY monitoring required.. all done at home by his mom and dad! THIS page is to help keep us going.. to update family/friends and followers and to allow an avenue for prayers and kind words to reach Conner and his family. Its hard to believe Conner is 4 now, and has been through SOO MUCH already.. he is truly a gift from God to us, and we will continue to support him on his journey!!
