Luke's Story: Journey to a new liver

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Luke's Story: Journey to a new liver

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11/26/2025

Today Luke and I made our way back to SickKids for a cardiology followup for the pulmonary stent he had done in August.
Good news! His pressure numbers have come down and the stent is holding strong. Doctors are extremely happy with everything, no further investigations are needed at this time and next followup is for 1 year!!!!!!

11/06/2025

Back at our home away from home! It was an early but quick visit and I mean early! For the past 6-8 months Drs have been monitoring his hepatic artery for narrowing and unfortunately they can’t get an accurate measurement with ultrasound so he had a CT with contrast done this mornong. If it shows what the ultrasound shows they will leave it and just monitor for now but if it is worse then the transplant team will discuss and come up with a plan for the next step.
Luke’s doing great and unfazed by the 4am wake up, mom on the other hand is ready for a nap!

11/03/2025

2 years ago (yesterday) Luke and I packed up our things and moved up to Toronto. Since then a lot has changed - he’s turned into a LOUD energizer toddler, learned some new tricks and stories, turned into a good little helper (when he wants to be) and weighs in at 15.4kg He still loves a good broom, music and melting the hearts of everyone. Most importantly he is still super brave when it comes to Drs. and tests.
It has been amazing to see how far he has come and can’t wait to see what the next year brings.

11/01/2025

Luke would like to say Happy Halloween!
Clark Kent during the day and Dracula at night! But if you ask him he was a ghost!
He had so much fun today and I think we will playing trick or treat all weekend!

09/03/2025

Big day in Luke’s world (and also moms!)
First Day of School (daycare)
He loved it, walked in like he owned the place and didn’t want to leave at the end! Teachers said he never stopped moving or smiling and wasn’t too sure about nap/quiet time!
I’d say it was a success

07/29/2025

Luke was welcomed as an honorary member of the Superior Classic Car Club today! We can’t thank everyone involved enough. It was extra special for Luke to experience just how much the small town of Terrace Bay looks out for their past, present and you just never know maybe future residents. I’m sure in 14 years he’ll be telling me he’s going to race at the Terrace Bay Dragfest!
We would like to congratulate the club on all their hard work prepping for this weekends Dragfest and if you need any help Luke is great with a broom!
Thank you once again to the Superior Classic Car Club!

07/23/2025

Luke has had a busy and fun summer so far and this week is no different! He had his 1.5yr transplant checkup and the Drs are very happy with his progress. In January they were concerned about his growth and even talked about feeding tubes again but this month he is exactly where he’s suppose to be. Measuring in at 14.9kg and 91cm he is the friendliest bully there is! Besides having an ultrasound every 3 months to keep an eye on the narrowed artery to his liver, he has finally reached the point of yearly checkups!
Next month he will go in for another heart cath but until then we are going back to enjoying our summer with a trip to visit Nanny and Poppa!

Address

London, ON

Website

https://gofund.me/f5d1b505

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