Kisses For Caius Living Liver Lobe Donation Drive

Kisses For Caius Living Liver Lobe Donation Drive Our son needed a liver transplant becauuse of his rare liver disease. We had our prayers answered by anonymous angel living donor. Caius is 11 years old.

We are now here to help others needing transplants need to find their anonymous angel. His Birthday is 15 October 2012. His Blood Type is O.

📢🥰❤️ Newsletter Update: Fundraiser for Lake Muskoka Swim for Camp Kivita, Jillian Best 📢🥰❤️Hello everyone!  We hope ever...
07/14/2024

📢🥰❤️ Newsletter Update: Fundraiser for Lake Muskoka Swim for Camp Kivita, Jillian Best 📢🥰❤️

Hello everyone! We hope everyone is having a wonderful summer.

Caius is doing very well health wise and we are looking to a bright future for him—one highlight we have in mind for him is to attend Camp Kivita later this summer.

This journey has brought us in contact with some amazing people, Jillian Best, is one such person. A liver transplant survivor herself, she is raising money to help support a most incredible camp experience for children who have received transplants, Camp Kivita through the Move For Life Foundation.

She has taken on the inspiring challenge of swimming 30km across Lake Muskoka on July 27.

Jillian has become an inspiration to Caius. As he continues to build his constitution, swimming is an integral part of his rehabilitation program, and when he is sore, Jillian gives him hope that with some hard work, a strong mind, and loving support, anything is possible, no matter the pain in the moment.

This camp is like no other. It is staffed by transplant doctors and nurses, many of whom tended to Caius while in hospital. It is a chance for all children who have undergone a transplant to experience a special sense of community. At this camp, they can share their stories with others who have had the same experiences and understand their journeys, making them stronger for a bright and caring future.

I invite you all to please take a look at Jillian’s efforts and see if we can help keep this incredible

Liver Transplant Survivor Jillian Best Takes on Solo 30km Swim Across Lake Muskoka for Kids' Camp Kivita Support the Cause Here! Team Relay and Solo Swim Efforts Each Swimming 30km to Support Camp Kivita on July 27th, 2024 The Relay Team The Organ Donor Swim is moving into its 9th year! 5-6 swimmers...

📢🥰❤️ Newsletter Update: Transplant Complete and in Recovery 📢🥰❤️Hello everyone:With spring in full swing, it is a time o...
05/25/2024

📢🥰❤️ Newsletter Update: Transplant Complete and in Recovery 📢🥰❤️

Hello everyone:

With spring in full swing, it is a time of rebirth and regrowth. With that sense of renewal in mind, I am writing today to share that Caius has received his liver transplant.

At the time of this writing, we are all in Toronto together.

Our family can’t thank you all enough for all of your continued support, interest, and prayer in helping this miracle manifest. To the donor, we feel a limitless sense of gratitude.

The teams here responsible for the transplant program—doctors, nurses, social and family workers, support staff, and many others—have been unbelievably competent and compassionate in their care.

Out of respect for the donor’s anonymity, we are not releasing dates of when the surgery happened, but we also feel it is only right to let all who have shared in this experience through love, support, and prayer know that your good intentions have been heard and answered.

I would like to invite everyone to please continue to think of and pray for Caius through this stage of his recovery. According to the numbers, 50% of all recipients of a liver graft can experience rejection within the first three months. Caius is currently in that camp.

In someways, the hardest part is over, but each stage has its own challenges, and we cannot get ahead of ourselves as we look toward a full recovery. We trust in the program and ask for prayers to allow this phase to resolve and the next phase to begin—a summer bloom that will yield the most abundant fruit.

We would like to wish everyone a wonderful spring and summer. We have many incredible stories to share. We hope that you will continue to follow our son’s incredible journey and share in the celebration of his rebirth.

With love and care,

Darren, Cleito, and Caius

Thank yo all for your continued support in this amazing adventure by our brave young man.

📢🥰❤️ Newsletter Update: Lessons Learned While We Wait 📢🥰❤️Hello everyone! We are now in the waiting phase as potential a...
04/07/2024

📢🥰❤️ Newsletter Update: Lessons Learned While We Wait 📢🥰❤️

Hello everyone! We are now in the waiting phase as potential applicants are being processed to see if they are a match for Caius. And while we wait, we wanted to share how awesome everyone has been in this entry to our newsletter.

We have a profound sense of gratitude for everyone who has been touched and helped in what would have otherwise been an unbearable present and future. Every way someone has helped counts and we want to recognize some of them here and to say thank you.

Please feel free to check out the following to see how so many people have been able to help us out in so many different ways. All reasons to give thanks and share the peace and love we have felt from everyone.

Blessings to all!

https://www.kissesforcaius.com/newsletter/newsletterintro

📢❤️📢❤️Newsletter Update! The Inspiration Behind Team Caius📢❤️📢❤️Hello everyone.  The following is a contribution from a ...
04/01/2024

📢❤️📢❤️Newsletter Update! The Inspiration Behind Team Caius📢❤️📢❤️

Hello everyone. The following is a contribution from a wonderful human being and family friend, Dr. Muriel Brackstone.

https://www.kissesforcaius.com/newsletter/newsletterintro-gwc6w

Despite her many talents and her unbelievably busy schedule, the last time Caius was in hospital and we got the news of his worsening condition, Muriel took the time to make something special for Caius and our family.

She made us feel like we were not alone, that he was not alone. On the day of his return home, she was there, with yellow (his favourite colour) T-shirts, signed by all his classmates and teacher, a frame with picture of them all together wearing the same shirts, and a place for us to put our image to hang in his room.

Please enjoy this entry as good news to share with your friends and families. There is never enough.

📢🛑✋🛑✋🛑🥰❤️ Please Read & Share: Phase 1 Completed!!! Phase 2 Starts Now: The Waiting & Processing 📢🛑✋🛑✋🛑🥰❤️Hello everyone...
03/27/2024

📢🛑✋🛑✋🛑🥰❤️ Please Read & Share: Phase 1 Completed!!! Phase 2 Starts Now: The Waiting & Processing 📢🛑✋🛑✋🛑🥰❤️

Hello everyone. I can’t believe what I’m about to write. It seems as though Phase 1 is completed. We have heard through the grapevine, that there are enough for the first round of applicants for selection team to find a viable candidate. Now, we have to be careful not to slow the process down by having more people apply. This is the most precarious time and need to be respectful of the process, albeit poised in case we need to repeat Phase 1 (which is why I will include al the donor application information in the latter half of this message), and begin the search again. Please remember, 70 to 80% of all applicants are rejected.

What now? Now, I would ask you to look at the following steps and carry with you a pride in knowing that what we have completed in our first week of campaign is very, very rare. We are so blessed that so many people from across Canada and internationally have come to our support. Our family can hardly believe it. So a heartfelt thanks to all of you.

1. Share this post!!! We are at a delicate balance right now between having enough donor applicants and congesting the system, which can slow things down for Caius.

2. Copy and paste it into a document and save for later. This is the end of Phase 1 of this campaign and the beginning of Phase 2: the waiting. We hope we do not need to repeat p phase 1, but if we do, we need to be ready.

3. Rest. It is Easter time and we hope you and your families will come together with a bit of extra love in your hearts for the good you have created in the world by your sharing and support of our search.

4. If you have applied and wondering about your application, please contact UHN at livingdonorliver@uhn.ca and/or (416) 340-5400. We are given no updates on processing.

5. Subscribe to our page for updates and receive notifications of we need to repeat Phase 1.

6. Keep us in your hearts but look for others who need support in our communities. For those in particular with sick children, family, suffer, and silence, not because they want to, but because of the demand of places on them. it’s the sense of isolation and illness. That is sometimes the most challenging. By you reaching out and acknowledging and strengthening their path you can help a great deal. In particular, here is a family that could use your attention right now: https://www.facebook.com/febcentralchurchplanting/posts/pfbid0fbbG3Phjh7vUCQJrnEJzbuc48Bdt7hvw1zjYpZd8QFX8t7mk4Qu2cgzuanCQEKYTl

In the meantime, our own family is also going to take a bit of a rest. Those involved in this campaign have been working around the clock since we began a week last Sunday everyone needs to take a short break as we wait. Caius continues to be monitored by Sick Kids ‘ (He had a check up and bloodwork done yesterday). Now is a chance to remember why we are doing all of this and take the opportunity to spend more time with him and as a family.

I will make updates to our website, www.kissesforcaius.com adding more to our Resources Page and our Newsletter.

Donate here: http://www.uhn.ca/.../Centre_for_Living_Organ_Donation
Anyone with blood type O+ or O– between the ages of 16 and 55 years and in good health (no diabetes, cancer, kidney or heart disease) can apply to be a living donor for Caius.
The donor does not need to be a relative or of the same ethnicity (that matters for stem cells, not organs). The criteria for living organ donors are different than for blood donors. If you are not eligible to donate blood, you may still be able to be a living organ donor.


To learn more about living donation and to apply to become his living liver donor, please visit:
http://www.uhn.ca/.../Livin.../Pages/living_liver_donor.aspx
There is a 13-page health history. Completing and submitting this health history is your application. The application form asks for Caius’ full name (Caius David) and his date of birth (15 October 2012).


Candidates go through a comprehensive assessment to ensure they are healthy enough to donate.
For expenses like travel, food, accommodation and income replacement, there is a reimbursement program for the donor through Trillium Gift of Life. They will reimburse expenses even if you get part-way through the screening process and change your mind or aren’t accepted. You can also submit receipts for reimbursement throughout the process and don’t need to wait until after the surgery. You can live anywhere in Canada and will still be reimbursed to travel to Toronto.
Anyone can help by sharing this post.
If you’d like answers to any questions about living liver donation, contact:
Centre for Living Organ Donation at UHN
Phone: 416-340-5400
Email: livingorgandonation@UHN.ca
Website: http://www.uhn.ca/.../Centre_for_Living_Organ_Donation
You can ask questions anonymously to learn more about living liver donation. Communications between a potential living donor and donor team are confidential and not shared with the recipient.
The UHN Centre for Living Donation hosts a monthly online information session for Potential Living Liver Donors: http://www.eventbrite.ca/.../the-centre-for-living-organ...
There is also a Canadian Facebook group that may be helpful: Organ transplant recipients and living donors in Canada: Organ transplant recipients and living donors in Canada
Please share this with anyone you know who might be willing to help. We will need someone brave and generous to give the gift of life.
Thank you so much to anyone who applies and spreads the word. We are all deeply grateful to you.

There are stories online about non-direct living donors, but what about from 5 weeks ago?  Now on our Website, you can r...
03/25/2024

There are stories online about non-direct living donors, but what about from 5 weeks ago? Now on our Website, you can read about Megan Murray, who was kind enough to contribute to our cause. Please follow the link below and apply today! Thank you, Megan, for your kind contribution and love during our search! 🥰❤️

Donate here: www.uhn.ca/Transplant/Living_Donor_Program/Centre_for_Living_Organ_Donation

Anyone with blood type O+ or O– between the ages of 16 and 55 years and in good health (no diabetes, cancer, kidney or heart disease) can apply to be a living donor for Caius.

The donor does not need to be a relative or of the same ethnicity (that matters for stem cells, not organs). The criteria for living organ donors are different than for blood donors. If you are not eligible to donate blood, you may still be able to be a living organ donor.

👉👉 To learn more about living donation and to apply to become his living liver donor, please visit:

www.uhn.ca/Transplant/Living_Donor_Program/Pages/living_liver_donor.aspx

There is a 13-page health history. Completing and submitting this health history is your application. The application form asks for Caius’ full name (Caius David) and his date of birth (15 October 2012). 👈👈

Candidates go through a comprehensive assessment to ensure they are healthy enough to donate.

For expenses like travel, food, accommodation and income replacement, there is a reimbursement program for the donor through Trillium Gift of Life. They will reimburse expenses even if you get part-way through the screening process and change your mind or aren’t accepted. You can also submit receipts for reimbursement throughout the process and don’t need to wait until after the surgery. You can live anywhere in Canada and will still be reimbursed to travel to Toronto.

Anyone can help by sharing this post.

If you’d like answers to any questions about living liver donation, contact:

Centre for Living Organ Donation at UHN
Phone: 416-340-5400
Email: livingorgandonation@UHN.ca
Website: www.uhn.ca/Transplant/Living_Donor_Program/Centre_for_Living_Organ_Donation

You can ask questions anonymously to learn more about living liver donation. Communications between a potential living donor and donor team are confidential and not shared with the recipient.

The UHN Centre for Living Donation hosts a monthly online information session for Potential Living Liver Donors: www.eventbrite.ca/o/the-centre-for-living-organ-donation-at-uhn-18428442380

There is also a Canadian Facebook group that may be helpful: Organ transplant recipients and living donors in Canada: Organ transplant recipients and living donors in Canada

Please share this with anyone you know who might be willing to help. We will need someone brave and generous to give the gift of life.

Thank you so much to anyone who applies and spreads the word. We are all deeply grateful to you.

❤️📢 ❤️📢Hello everyone!  This was a tougher weekend for Caius.  And even though he was in more pain than he has been in a...
03/25/2024

❤️📢 ❤️📢Hello everyone! This was a tougher weekend for Caius. And even though he was in more pain than he has been in a while, he has been very brave and positive. He has such an incredible spirit and is able to remain so positive that it boggles the mind sometimes. He does ask, every night, when his liver is coming. We tell him soon. Please help us boost his chances by sharing far and wide.❤️📢 ❤️📢

In the meantime, we have added a Resource Page to our website. Over the last 48 hours, we have met some amazing Living Donors who have reached out to help us with our campaign for Caius. They have shared articles and interviews. Please check them out and read some amazing stories of people who living donors and why.

https://www.kissesforcaius.com/resources

Learn more about Caius on his website: www.kissesforcaius.com.

Anyone with blood type O+ or O– between the ages of 16 and 55 years and in good health (no diabetes, cancer, kidney or heart disease) can apply to be a living donor for Caius.

The donor does not need to be a relative or of the same ethnicity (that matters for stem cells, not organs). The criteria for living organ donors are different than for blood donors. If you are not eligible to donate blood, you may still be able to be a living organ donor.

👉👉 To learn more about living donation and to apply to become his living liver donor, please visit:

www.uhn.ca/Transplant/Living_Donor_Program/Pages/living_liver_donor.aspx

There is a 13-page health history. Completing and submitting this health history is your application. The application form asks for Caius’ full name (Caius David) and his date of birth (15 October 2012). 👈👈

Candidates go through a comprehensive assessment to ensure they are healthy enough to donate.

For expenses like travel, food, accommodation and income replacement, there is a reimbursement program for the donor through Trillium Gift of Life. They will reimburse expenses even if you get part-way through the screening process and change your mind or aren’t accepted. You can also submit receipts for reimbursement throughout the process and don’t need to wait until after the surgery. You can live anywhere in Canada and will still be reimbursed to travel to Toronto.

Anyone can help by sharing this post.

If you’d like answers to any questions about living liver donation, contact:

Centre for Living Organ Donation at UHN
Phone: 416-340-5400
Email: livingorgandonation@UHN.ca
Website: www.uhn.ca/Transplant/Living_Donor_Program/Centre_for_Living_Organ_Donation

You can ask questions anonymously to learn more about living liver donation. Communications between a potential living donor and donor team are confidential and not shared with the recipient.

The UHN Centre for Living Donation hosts a monthly online information session for Potential Living Liver Donors: www.eventbrite.ca/o/the-centre-for-living-organ-donation-at-uhn-18428442380

There is also a Canadian Facebook group that may be helpful: Organ transplant recipients and living donors in Canada: Organ transplant recipients and living donors in Canada

Please share this with anyone you know who might be willing to help. We will need someone brave and generous to give the gift of life.

Thank you so much to anyone who applies and spreads the word. We are all deeply grateful to you.

At UHN, we strive to deliver Compassionate Care & Caring. Learn more about the services and supports that are available to you throughout your journey.

📚 There certainly is alot of information on Alpha-1 AntiTrypsin Deficiency, including a lot about genetics, genotypes, a...
03/24/2024

📚 There certainly is alot of information on Alpha-1 AntiTrypsin Deficiency, including a lot about genetics, genotypes, alleles, and so on.

👇🏼Here is a breakdown on how Caius’ genotype was formed.

🧬 The Z allele produces no detectable amount of Alpha-1 protein, which is the protein that is created in the liver and protects the lungs and other tissues. The abnormality it does create accumulates in the liver and damages the organ.

Image from: A1ADSupport 2024
https://www.a1adsupport.com/genetics/how-is-alpha-1-inherited/

🧬 What is Alpha-1 AntiTrypsin Deficiency? Here are a few key points on the disease Caius has bravely fought over the pas...
03/24/2024

🧬 What is Alpha-1 AntiTrypsin Deficiency?

Here are a few key points on the disease Caius has bravely fought over the past 11 years.

📢❤️📢❤️Urgent! Please Pin, Share, & Post📢❤️📢❤️We now have posters! If you have a physical space, office, space of any kin...
03/21/2024

📢❤️📢❤️Urgent! Please Pin, Share, & Post📢❤️📢❤️

We now have posters! If you have a physical space, office, space of any kind, communal, space, please feel free to print and share far and wide! We are still on the search! All we need is a piece of one! Love and peace to all!



Download, Print, & Share……Save a Life Download Please Download and Share our Poster Please feel free to share our message of hope in your community and professional physical spaces Download

Hello everyone! We wanted to share a bit of background on our Son's disease, Alpha-1 Antitrypsin Deficiency, a rare live...
03/20/2024

Hello everyone! We wanted to share a bit of background on our Son's disease, Alpha-1 Antitrypsin Deficiency, a rare liver disease that mostly affects those from Northern European Climates. Read more on our website...

Alpha-1 Antitrypsin DeficiencyAATDWhat is it? Apply Here What is AATD? An inherited genetic disease affecting liver and lungsNo curecauses yellowing of the skin and whites of the eyes (jaundice)There are different levels and severities of the disease, Caius having the worst one 1 of the 3 most leth...

In only 3 days we have had over 7 000 visits to https://www.kissesforcaius.com!!!!  To all those who have shared, donate...
03/20/2024

In only 3 days we have had over 7 000 visits to https://www.kissesforcaius.com!!!! To all those who have shared, donated, applied so far, thank you! There is more work to be done, however. Please feel free to continue to share our story and increase our chances of a successful match! ❤️

Living Liver Lobe Donor for Caius (Blood Type O + or-) Apply Now Meet Our Son, Caius... Meet our 11 year old son (born 15 October 2012), Caius, suffering from a rare liver disease, alpha one antitrypsin deficiency.Doctors didn’t think he’d make it to his first birthday.But he proved them wrong.W...

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London, ON

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https://www.uhn.ca/Transplant/Living_Donor_Program

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