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The Sleep Advocates

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The Sleep Advocates

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12/01/2025

“It always comes back. I have no reason to believe that it will never happen again. It has happened my whole life,” said Brenda, who struggles with sleep paralysis.

What if we could create a world where people living with a sleep disorder finally have a reason to believe, “This won’t come back.”

Brenda has struggled with sleep paralysis for as long as she can remember. She knows firsthand the experience of living with a terrifying condition and has found ways that help her get it under control.

However, she also shares what she wishes could change about the way we talk about and handle sleep paralysis.

📚Beat stigma through normalization and education - lack of representation prevents individuals from speaking openly about their condition or finding words to explain the condition. How can we manage what we can’t describe?

🔬Increase research - develop effective treatments beyond prescribing the sleep hygiene techniques and identify the underlying cause.

Read Brenda’s sleep story: https://css-scs.ca/share-your-sleep-story/brendas-story/

Canadian Sleep Society
The Neuro

11/24/2025

Throughout our conversation, Brenda often said, “It’s really hard to explain” or “I don’t have words”. Lack of vocabulary can stem from a lack of representation and understanding of the experience.

Across cultures, sleep paralysis has been associated with many supernatural beliefs, such as nocturnal alien abductions and demonic attacks or paranormal connections, which in turn might hold back someone coming out and seeking help or identifying other underlying conditions.

Read Brenda’s sleep story, filled with blurry hallucinations, paralysis, and a desperate fight to reclaim control during moments that feel like eternity.

The story: https://css-scs.ca/share-your-sleep-story/brendas-story/

Canadian Sleep Society
The Neuro

11/14/2025

There is growing evidence on the coexistence of sleep and wakefulness, that our brains can possess hybrid states rather than being globally asleep or awake. These local brain islands can be beneficial in some cases, but at other times can be a cause of terrifying emotional distress, like for Brenda.

Brenda has had sleep paralysis since her childhood, an in-between state, where Brenda is hallucinating, but is physically stuck.

Read Brenda’s sleep story, filled with blurry hallucinations, paralysis, and a desperate fight to reclaim control during moments that feel like eternity.

The story: https://css-scs.ca/share-your-sleep-story/brendas-story/

Canadian Sleep Society
The Neuro
Fondation Sommeil

11/03/2025

🚨📰 Newsletter Alert!

The Sleep Advocates is excited to announce the launch of our monthly newsletter to nurture our community!

We want to send you new stories and our updates right to your inbox so that you never miss reading an important story!

Subscribe to the newsletter to read the newest monthly story, hear about our initiative’s updates and meet a member of our team on the 14th of every month.

Click the link: https://the-sleep-advocates.kit.com/00d8cb000e
Or scan the QR code

Subscribe and share!

10/27/2025

After years of struggling with narcolepsy and ultimately becoming a physician herself, Sarah understands the importance of lived experience and empathy between patient and doctor.

We asked Sarah what needs to be changed!

👶Diagnosing pediatric sleep disorders - Perhaps, a consistently sleepy kid is not just “lazy”.

👊 Beat stigma and stereotypes - Mischaracterizing narcolepsy and using it as a source of ridicule is sadly popular in media and movies even in 2025! This is hurtful and harmful for people living with sleep issues.

📚Education for doctors and the public - During medical school, Sarah designed a lecture that outlined an approach to complaints of sleepiness or fatigue. Lack of awareness amongst physicians and health care professionals is a systemic issue which needs fixing, but listening to patients’ persistent complaints with empathy and giving importance to lived experience is imperative.

💸Cost coverage - Narcolepsy medications are expensive and can add up quickly, especially for students!

Read Sarah’s full sleep story here: https://css-scs.ca/share-your-sleep-story/sarahs-story/

Narcolepsy impacts approximately 3 million people around the world. Let’s talk about it, and if you have a sleep story to share, reach out to the.sleep.advocates.zzz@gmail.com

Wake Up Narcolepsy
Canadian Sleep Society
McGill University
The Neuro

10/20/2025

In this month’s story, Sarah shares her experience with medical institutional stigma around narcolepsy.

Frustratingly, she said, “If I don’t successfully hide my narcolepsy at all times, it's seen as unprofessional, and it’s my fault. And if I do things to manage it, those behaviours are also considered unprofessional. I can’t win.”

She recounts many such anecdotes in her story. Pushing individuals to stay silent about their medical struggles because “it doesn't look good” to avoid criticism is harmful.

Read Sarah’s full sleep story here: https://css-scs.ca/share-your-sleep-story/sarahs-story/

Narcolepsy impacts approximately 3 million people around the world. Let’s talk about it, and if you have a sleep story to share, reach out to the.sleep.advocates.zzz@gmail.com

Wake Up Narcolepsy
Canadian Sleep Society
The Neuro
McGill University

09/12/2025

The first signs of sleep troubles emerged when Reg was in his early 20s and recently married. He recalls, “...my wife would wake me up saying, ‘Reg! Breathe, breathe, you’re not breathing!”

Reg’s 50-year journey with sleep apnea is a powerful testament to the hidden dangers of sleep disorders. It’s a call to listen to our bodies and to recognize that the fight for a good night's sleep can sometimes be a fight for life itself.

Sleep apnea is a condition that currently impacts ~20% of adult Canadians and still goes undiagnosed in 8 out of 10 people living with it.

Read Reg’s full sleep story here: https://css-scs.ca/share-your-sleep-story/regs-story/

Let’s talk about sleep apnea, and if you have a sleep story to share, reach out to: the.sleep.advocates.zzz@gmail.com

Canadian Sleep Society
The Neuro
McGill University

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