Pragmatic Health Ethics Research Unit

Pragmatic Health Ethics Research Unit We are an interdisciplinary research group based at the Montreal Clinical Research Institute - IRCM

📺 En rattrapage !Vous avez manqué la diffusion en direct du panel de clôture de l’édition 2025 de notre Série en éthique...
11/17/2025

📺 En rattrapage !

Vous avez manqué la diffusion en direct du panel de clôture de l’édition 2025 de notre Série en éthique pragmatique de la santé ?
✨ Pas de souci !
👉 Revivez les réflexions de Louise Harel et Michèle Stanton-Jean sur :
« L’évolution des politiques en matière de santé et de bien-être des femmes au Québec »

🎥 Regardez la vidéo ici :

🔗 https://www.youtube.com/live/b3gOMHFwwgM?si=vTp45Vj8cUymNiOd

̂tre ́québec ́minin

Institut de recherches cliniques de Montréal - IRCM

Ce panel, animé par Louise Harel et Michèle Stanton-Jean, explore l’évolution des politiques québécoises en matière de santé et de bien-être des femmes. Les ...

11/13/2025

Time is an under-recognised social determinant of brain health. 🧠

In a new Personal View, authors call for temporal justice through research and policies that recognise time as both a resource and a site of inequity in ageing and dementia. Find out more via the link in comments ⤵️

Figure: Micro (individual)-level, meso (relational and organisational)-level, and macro (systemic)-level factors that shape people’s experience, use, an availability of time.

11/13/2025
📣 NOUVELLE / NEW PUBLICATION!Cascio MA, Racine E. It’s a neurodiverse world: stories from neurodivergent people. Narr In...
11/11/2025

📣 NOUVELLE / NEW PUBLICATION!

Cascio MA, Racine E. It’s a neurodiverse world: stories from neurodivergent people. Narr Inq Bioeth. 2025;15(2):79-83. doi:10.1353/nib.2025.a974061.

Abstract. This symposium includes twelve personal narratives from contributors who identified their lived experiences as falling within the umbrella of neurodivergence, as well as four other stories that appear in the online supplement. Four commentaries on these narratives are also included, authored by scholars in anthropology, bioethics, psychiatric disability, and who have lived experience of neurodivergence or of parenting neurodivergent children. The goal of this symposium issue is to call attention to our neurodiverse world, i.e., the range of different ways that human minds and brains work.

The stories and commentaries introduce vocabulary and themes relevant to neurodivergent experiences, highlighting experiences of difference, diagnostic journeys in childhood and adulthood, experiences of (in)visibility and masking neurodivergence, the role of labels, as well as the experiences of learning and growth.

The commentaries highlight how some stories are absent, cautioning us that the world is far more neurodiverse than this (or likely any) collection of essays can represent.

Keywords. Communication, Diagnosis, Ethics, Narratives, Neurodiversity, Shared Decision-Making

https://doi.org/10.1353/nib.2025.a974061

11/07/2025

👶🛏️ Les boîtes à bébé, une solution à explorer ?👶🛏️

Les récents abandons de nouveau-nés à Longueuil et Brossard nous rappellent l’urgence d’agir pour offrir des solutions sécuritaires et bienveillantes aux parents en détresse.L’initiative des « boîtes à bébé » (ou « berceaux de l’espoir ») pour éviter les abandons dangereux serait peut être la solution! Ces dispositifs, déjà en place dans d’autres provinces Canadiennes, permettent aux mères de confier leur enfant de manière anonyme et sécurisée, tout en bénéficiant d’un accompagnement vers des ressources d’aide.

💬 « En tant qu’organisme engagé pour la protection de l’enfance, nous croyons qu’il est essentiel d’explorer toutes les pistes pour prévenir les drames. » PETALES Québec

📖 Pour approfondir le sujet, lisez l’article de Noovo Info : https://www.petalesquebec.org/fr/nouvelles/dans-lactualite

🧭 New publicationArthur Filleul & Eric Racine (2025), Envisioning a Living Ethics Approach to the Allocation of Scarce R...
11/04/2025

🧭 New publication

Arthur Filleul & Eric Racine (2025), Envisioning a Living Ethics Approach to the Allocation of Scarce Resources, American Journal of Bioethics, 25(11), 101–104

https://www.pragmatichealthethics.ca/fr/publication/envisioning-a-living-ethics-approach-to-the-allocation-of-scarce-resources-2/

🔹 Summary
In this article, we propose prioritization and allocation strategies for limited resources based on a living ethics stance. We suggest moving beyond the tradition of abstract, top-down normative models that have long dominated discussions on this topic. We advocate for a transformation in how ethical issues are approached by fully integrating the experiences of stakeholders. This shift also entails a redefinition of the role of ethics experts, emphasizing:

1️⃣ Experiential grounding and embodiment
2️⃣ Equality in capabilities for flourishing
3️⃣ Dialogue, co-learning, and co-imagination

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