PRRT for BC

09/11/2021

Very interesting.

04/29/2021

http://www.canadiancancertrials.ca//trial/Default.aspx?TrialId=NCT04804371&lang=en

Combined 68Ga-DOTATATE and 18F-FDG PET/CT Imaging in Patients With Well-differentiated, G2-G3, Gastroenteropancreatic (GEP)-Neuroendocrine Tumours (NETs) - A Pilot Study

03/31/2021

The Canadian Neuroendocrine Community is better for having Jackie Herman as, not only a fellow patient, but our advocate and friend, while living and navigating this rare and life changing disease.

https://qe2foundation.ca/our-impact/news/fighting-better-life-jackie-hermans-story?fbclid=IwAR1wIP8lIHzVVTcz-rq_QT7_TR4TNjVcHYqwJCfJLkjViGNJ8_P6S2Sx20Y

Unless by lived experience, it’s impossible to step in the shoes of someone diagnosed with a rare cancer. It might be something like waking up on an island no one’s ever heard of and searching for a map. Forged together by circumstance, you wander with others sharing your diagnosis, searching fo...

03/20/2021

https://www.miragenews.com/new-treatment-proves-more-effective-and-less-531462/

Reston, VA-A new treatment for late-stage neuroendocrine tumors (NETs) has been found to be more effective and have fewer side effects than the current...

03/19/2021

This is such an important issue. All Canadians should have the Right to Die with Dignity.

The Senate has passed a bill to expand access to medical assistance in dying, including eventually to people suffering solely from mental illnesses.

03/16/2021

Exciting news for B.C. Neuroendocrine patients!

LUTATHERA® Funded in British Columbia
CNETS is pleased to announce that BC Cancer will now reimburse LUTATHERA® for the approved indication.

The BC Cancer Benefit Drug List, published in March 2021, approved indication for LUTATHERA®:

Peptide Receptor Radionuclide Therapy (PRRT) using 177Lu-Dotatate (LUTATHERA) for Treatment in Patients with Somatostatin Receptor Positive Midgut Neuroendocrine Tumours.

For more information: BC Cancer Benefit Drug List

BC Cancer also provided the Protocol Summary for Peptide Receptor Radionuclide Therapy (PRRT) using 177Lu-Dotatate (LUTATHERA) for Treatment in Patients with Somatostatin Receptor Positive Midgut Neuroendocrine Tumours.

For more information: BC Cancer Protocol Summary

CNETS will continue provide updates on LUTATHERA® funding in other provinces, and information on PRRT on our website, please visit:
PRRT INFORMATION

CNETS | 1-844-628-6788 | info@cnets.ca | www.cnets.ca

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03/02/2021

The APPROVED PRRT PROTOCOL NOW AVAILABLE TO VIEW ON THE BCCA WEBSITE!!!!!

This is amazing news! Thank you to for making this happen!

http://www.bccancer.bc.ca/chemotherapy-protocols-site/Documents/Gastrointestinal/UGIPRRT_Protocol.pdf

02/04/2021

This man has pancreatic Neuroendocrine cancer. He needs PRRT treatments. Exactly what we are fighting for to be made available in BC. It’s wonderful to see the outpouring of support for him and his family.

We need this treatment in BC, now! The extra expenses, and travelling during a pandemic to obtain these treatments is happening. BC residents are risking what left they have of their lives to obtain these treatments. Please like, follow and share this post , as Neuroendocrine awareness needs a lot of help in Canada. Especially in BC.

https://globalnews.ca/news/7616101/cancer-treatment-gta-science-teacher-crowdfunding/

Within 12 hours, the entire amount to cover the treatment had been donated. Strangers moved by the story donated thousands of dollars as a show of support.

01/26/2021

Event:

VICTORIA/VANCOUVER CNETS SUPPORT GROUP MEETING (Zoom)

Date / Time: Thursday, January 28, 2021 @ 7:00 pm

AGENDA:

1. Update on joint advocacy regarding PRRT FOR BC;
2. Update on CNETS activities;
3. Discussion on vaccines;
4. Introductions and personal updates;

If you are interested in attending and are not a member, please contact Barbara, Victoria CNETS Support Group Leader, to obtain permission and Zoom details, at:

victoriagroup.cnets@gmail.com

We look forward to seeing you there.

01/08/2021

BC Cancer Agency liked our Tweet regarding PRRT!

01/04/2021

http://web-extract.constantcontact.com/v1/social_annotation_v2?permalink_uri=https%3A%2F%2Fmyemail.constantcontact.com%2FUpcoming-NET-SUPPORTIVE-CARE-WEBINARS.html%3Fsoid%3D1104247796296%26aid%3DcjYMOFgzCWU&image_url=https%3A%2F%2Ffiles.constantcontact.com%2F8423c4a1101%2Fc989b2ee-cd11-405f-b6ad-d0f41e544c38.jpg&fbclid=IwAR3auIRBvit2Y_49Sy2mlA19MM9IfB7YkRZX7LGPxJtTbdSsHO0cmB1OxhQ

JOIN US FOR NET SUPPORTIVE CARE WEBINARS Tuesday January 19, 2021 from 5:00 - 6:00 pm EST NET SUPPORTIVE CARE - SESSION 3 TOPICS & SPEAKERS Cognitive Disorders in NETs - Dr. Rachel Goodwin Psychologic

01/02/2021

Happy New Year Neuroendocrine Community!
This is the year we make PRRT available in BC!

12/27/2020

https://ronnyallan.net/2017/08/08/lanreotide-for-lung-nets-spinet-trial/

There’s been a lot of action in the area of what is termed Gastro-Entero-Pancreatic Neuroendocrine Tumors (GEP-NETs). It can therefore sometimes appear that Lung NETs are the poor relation. There are certainly some unmet needs in this area of the anatomy including a lack of research. Thus far, no ...

12/27/2020

Very Interesting!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7696055/?fbclid=IwAR3vJFhN5bawX_OsfM_vazzWQrRMl4nXXSb43O61O839YXdjgjRiW7CEKGk

12/24/2020

Merry Christmas to the Neuroendocrine Community!

12/22/2020

The more research, the better!

12/21/2020

Interesting Read.

Share on facebook Facebook Share on twitter Twitter Share on pinterest Pinterest Share on whatsapp WhatsApp Share on email Email When I see a trial for Gastroenteropancreatic NETs (GEPNETs), I know that BP (Bronchopulmonary) NETs (includes Lung) are not included. When you look at the approval wordin...