This is what EDS looks like

08/13/2025

Defining the Chronic Complexities of hEDS and HSD: A Global Survey of Diagnostic Challenges, Life-Long Comorbidities, and Unmet Needs

https://www.mdpi.com/2077-0383/14/16/5636?fbclid=IwQ0xDSwMI_7FjbGNrAwj_h2V4dG4DYWVtAjExAAEe3uoPY4FYRU7rShNvyZuGg4YGEwa2yyuOzLV6cfPfbdNsOIbGNAQvGouCCNg_aem_afbueY2f99an_Bj9UtJ0FA

Background: Hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSDs) are prevalent, complex conditions marked by chronic pain, joint instability, and multisystem involvement. Despite affecting an estimated 1 in 500 individuals, these conditions remain poorly understood...

05/28/2025

03/31/2025

For most of her life, Jacqueline Luciano, a nurse in Chicago, has experienced mysterious injuries and ailments, including a long list of sprains and tears, dizziness and fatigue, and chronic headaches and pain.

As Luciano would discover, many of her health issues could be traced back to the fact that she is hypermobile, or double-jointed. She joins an increasingly visible group of people, including the singer-songwriter Billie Eilish and author Rebecca Yarros, who are speaking out about their struggles with hypermobility.

Learn more about hypermobility and what the research says about its surprising health risks: https://on.natgeo.com/4j9Wwad

03/07/2025

https://www.facebook.com/share/r/1DhCM9xLuv/

06/04/2023

https://www.jillandrewmpp.ca/give_ontarians_with_ehlers_danlos_syndrome_their_life_back_invest_now?recruiter_id=334697

MPP, Toronto–St. Paul's

04/25/2023

Meet ‘the Zeen’: Philly inventor behind the Steadicam creates wheelchair-walker hybrid

Nearly 50 years ago, Garrett Brown invented the Steadicam for motion picture filming. Today, he’s using his skills to give people more mobility options.