09/07/2025
“What Home Means “
As I reflect on the journey that led me to become an end- of- life caregiver , I recognize the quiet, steady influence of those who walked ahead of me- lighting the path , often without even knowing it.
The guidance, inspiration, strength , compassion , and kindness of my colleagues have helped shape me into the caregiver I am today. For that I am forever grateful.
Most of my end- of- life caregiving has been with aging adults- holding space and offering support as they near the end of long, full lives .
But years ago, I had the profound honor of walking alongside a colleague in caring for a beautiful, strong, and kind 17 year- old young man named Finn!
Finn was in his senior year of high school- a football player through and through.
His hospital room said it all:
Posters, jerseys, even the curtains were covered in footballs. It was more than a theme, it was who he was .
But one day, in a quiet moment , he looked up at my colleague and myself simply saying , “I want to go home!”
We gently asked him, “Can you tell us what home feels like?”
He paused, then spoke with clarity that stayed with me :
“It’s when my mom is home cooking , where the games on in the background, where no one whispers when they walk in the room. Where I can just be me!”
And then almost in a whisper , he added :
“It’s a place with no more pain.
No more needles.
No more fear.”
In that moment, we understood-
He wasn’t just talking about a place or map- He was longing for comfort.
For a return to who he was before the illness.
For peace.
And when someone is brave enough to speak from that deeply honest place,- We Honor It.
My colleague responded gently, with the kind of presence that only comes from truly listening . She said:
“That makes perfect sense. You’ve been so strong for so long .
It’s okay to be tired. You don’t have to be brave every single minute.”
As caregivers , we do everything we can to bring “Home “ to them- right where they are.
We remind them:
You are safe.
You are loved.
You are surrounded by people who care for you deeply.
Because sometimes , home isn’t a place ,
It’s a feeling.
And our job is to make sure they feel it- even in their final days.
Our role is not to fix the unfixable .
Our role is to walk beside them - with open hearts, gentle hands, and unwavering presence.
We may not be able to change the outcome, But we can shape the experience- with love, dignity, compassion.
And with the comfort of Home, wherever they are.
This end - of- life work teaches us to Listen.
To sit in the Silence.
To carry their stories- not as our own, but in a way that lets them change us.
Finn died 12 days later with his football in hand, the same worn leather, the same gentle grip, as if he was still waiting for the next pass.
And in that stillness, we understood:
Sometimes love looks like letting go,
And sometimes, it looks like simply being there-
Bearing witness, and being changed .
🏈❤️
Sandra