ALS Society of Saskatchewan

12/25/2025

At Christmas, we know that the season can hold many emotions.

For those living with ALS, for caregivers, and for families walking this journey together, the holidays can be a time of love, reflection, grief, hope, and resilience—all at once. Every path with ALS is unique, yet no one should ever have to walk it alone.

This year, we want you to know that you are seen. You are valued. And you are not forgotten.

Behind every diagnosis is a person, a family, a lifetime of memories, and a future shaped by courage. Behind every wheelchair, every piece of equipment, and every care plan is a story of strength, adaptation, and deep love.

To our ALS community across Saskatchewan—those living with ALS, caregivers, families, volunteers, health professionals, and supporters—thank you for your trust, your advocacy, and your strength. It is an honour to walk alongside you.

As the year comes to a close, we send wishes for peace, comfort, and moments of connection. May this season bring warmth to your homes, compassion to your hearts, and reassurance that you are not alone—today or in the year ahead.

From all of us at the ALS Society of Saskatchewan,
Merry Christmas.

12/19/2025

Hello all. Here is a sneak peak to a movie coming in 2026 about ALS and also contains a few familiar SK faces. Stay tuned.

What if a diagnosis wasn’t the end of the story?Another Tomorrow follows patients, families, physicians and researchers standing at the edge of a medical tur...

10/10/2025

Today we were honoured to accompany Terry (and Christine) and Kelvin (and Pat) when they met with Minister of Health Jeremy Cockrill. Today was about these two men and their families telling the story of ALS and it how it has impacted the lives of those closest to them and how unfair it is to have loved ones be burdened with so much of the care required by this disease. The ALS Society of SK is proud to facilitate these moments with the Government of SK, so that part of the legacy of those facing this disease is opportunities to tell the real story of what this disease really is and how it affects everyone it touches.

We are proud to stand with those facing ALS. If you have ALS in SK and would like to tell your story, reach out to us so we can help facilitate that for you.

09/22/2025

We’re so grateful for our families who continue to support the cause and raise awareness for ALS 💜
A heartfelt message from Montana Lechne:

"Good evening!

With the QCM over, I thought I would message to say a big thank you for creating the link/page for the boys to share for donations. We truly appreciate your help with everything and look forward to fundraising again next year!

It was the home stretch of my oldest race and I asked him if he needed to walk and he said “no I’m going to keep running because I’m running for those who can’t anymore.” And that was the whole point of them getting out there to fundraise in Kelvin’s honor - to appreciate what we have and help others anyway we can. Your assistance with getting everything set up was what kept them motivated in training and in their race.

Thank you!!!"

08/12/2025

💜 Why Donate to the ALS Society of Saskatchewan? 💜
ALS (Amyotrophic Lateral Sclerosis) is a devastating, progressive disease that robs people of their ability to move, speak, eat, and eventually breathe. Here in Saskatchewan, families facing ALS rely on the ALS Society of Saskatchewan for vital care, equipment, and emotional support services that aren’t covered by the healthcare system.

When you donate, you’re not just giving money you’re giving:
✨ Equipment loans: like wheelchairs, lifts, and communication devices, so people can stay mobile and connected.
✨ Caregiver support: because ALS affects the whole family, not just the person diagnosed.
✨ Home visits & advocacy: ensuring no one faces this disease alone.
✨ Hope for the future: by funding research and raising awareness to push us closer to a cure.

The ALS Society of Saskatchewan is 100% funded by community support. Without donations, these life-changing services simply wouldn’t exist.

💜 Every dollar matters. Every voice matters. Every act of kindness brings us closer to a world without ALS.

📌 Donate today: https://alssask.ca/en/donate
📢 Share this post to spread awareness.

08/08/2025

💜🐾 August 8: International Cat Day 🐾💜

Cats bring comfort and love, and their calm and care help ease tough days.

Today, let’s celebrate our furry friends and also support those fighting ALS. Your donation can make a big difference in research and care in our province.

Please consider giving: https://alssask.ca/en/donate

08/08/2025

Traveling with ALS: Quick Guide💜

1. Prep Your Wheelchair or Scooter
• Get it serviced before your trip and note the nearest repair shop at your destination.
• Label it: battery type (dry cell/gel cell), “Must remain upright,” “Unlock brakes before moving,” plus handling instructions.
• Request a gate delivery tag at check-in and make sure it’s attached before boarding.
• Remove and carry fragile or valuable parts (joystick, basket, cushion).
• Bring a small toolkit.

2. Research Your Destination
• “Wheelchair accessible” can mean different things; call hotels directly and ask specifics about room, bathroom, and bed height.
• Ask about accessible transport (vans, taxis, public transit).
• Save contact info for local ALS societies.
• Pack: doctor list, emergency contacts, meds, equipment instructions.

3. Eating & Drinking Away from Home
• Bring your own straws.
• For liquid food, get a doctor’s note (especially if homemade) to show security.
• Ask airlines (e.g., Air Canada) about special meals; give 24 hours’ notice.

4. Know the Transportation Rules
• Check airline/cruise/rail policies yourself (don’t rely only on travel agents).
• Inform carriers of special needs at least 48 hours ahead.
• Have proof that certain devices (ventilators, laptops, etc.) and liquids are medical necessities.
• Useful airline links:
• Air Canada Special Needs: Wheelchair | Medical Approval
• Air Canada Special Seating: Link
• WestJet One Person One Fare: Link

5. Special Seating
• Many airlines provide free seating for attendants if needed; usually with advance notice and a medical form.

6. Other Good Habits
• Ask to be notified of any booking changes before departure.
• Buy travel insurance (lost/damaged items).
• Carry your living will and any important documents; translate if needed.

Note: These are general tips to consider. For guidance that’s right for you, please talk to your healthcare provider or qualified professional.

Read more at https://alssask.ca/en/resources/facts-about-als

08/07/2025

💜 The ALS Society of Saskatchewan is always seeking new ways to support people living with ALS. If you have ideas for fundraising, or would like to contribute, we’d love to hear from you. Every donation makes a meaningful difference in the lives of those affected.You can donate or learn more here: https://alssask.ca/en/home Thank you for standing with us. 💜

08/07/2025

08/05/2025

💜Grief Is a Part of Love💜
For those living with ALS and for the families, caregivers, and loved ones walking this journey with them grief can begin long before goodbye.

This is called anticipatory grief; the quiet mourning of roles, dreams, or routines that begin to shift. It is natural, human, and a reflection of deep love.

As the ALS Society of Canada reminds us:
“Grieving gives us life experience and healing skills. It’s not a weakness; it’s a wave we ride together.”

You are not alone. Whether you’re coping, caring, or remembering your feelings are valid, and support is here for you.

Source: “Strategies for People Living with ALS” - ALS Society of Canada www.als.ca

08/05/2025

If you live with an intellectual disability or if you know someone with an intellectual disability and need support or advocacy, Inclusion Saskatchewan can help.

08/04/2025

🌾 Happy Civic Holiday! 💜

Today, we honour the beauty of this land and the strength of the people who call it home.

Whether you’re caring for someone with ALS, living with it yourself, or simply showing support this day is for you, too.

Rest, breathe, recharge, because health isn’t just medical, it’s emotional, mental, and deeply personal. 💜