Huntingtons Disease Awareness

05/01/2025

Raise awareness this may.

May is HD Awareness Month! Let’s Reach for Awareness together! 💙 Tell us: How are YOU celebrating HD Awareness Month? What would you love to see from HD Reach? 🎉

👉 Share your ideas with us — a few lucky winners will score gift cards! 🎁
https://buff.ly/RyLScd1

Let’s raise our voices and celebrate our amazing HD community! 🙌


Help 4 HD International HDYO (Huntington's Disease Youth Organisation) HDSA's National Youth Alliance - NYA Huntington's Disease Society of America HDSA North Carolina Chapter HDBuzz Global Genes

03/26/2025

On this day in 1993, researchers made a groundbreaking discovery—the CAG repeat mutation that causes Huntington disease.

This milestone was made possible by the dedication of the US/Venezuela Huntington’s Disease Collaborative Research Group, led by Nancy Wexler. Through the generosity of families in Lake Maracaibo and the commitment of scientists worldwide, the HD gene was identified, paving the way for advancements in research and care.

Today, 32 years later, we reflect on how far we've come and continue pushing toward a future free of HD.

03/06/2025

Someone who makes me very proud to be canadian and especially Nova Scotian

Terry Fox as a young child. 🇨🇦