Patient Advisors Network

06/22/2025

An excellent summary of the opening plenary panel discussion at , the nation’s largest annual conference focused on digital health.

Our very own PAN member Alies Maybee provided the patient perspective.

Read Pat Rich words here:

This link will take you to a page that’s not on LinkedIn

05/24/2025

A few of our members, including our Board Co-leads Donna Rubenstein & Alies Maybee will be attending Canadian Association for Health Services and Policy Research co-presenting with researchers they have been working with. Will you be there?

04/28/2025

In a recent podcast Artificial Intelligence in Medical Systems Society (AIMSS) Sacha Davis and Ehsan Misaghi talked with PAN members Alies Maybee and Chris Johnston about the impact of AI for patients.

They highlighted opportunities for patient/caregiver partners to influence the direction and use of AI in healthcare.

AI brings huge potential—but also ethical, legal, and social implications. Patient input is essential to ensure these technologies reflect real-world needs.

Digital health including AI is not new for PAN—we’ve been involved in multiple projects since 2019.

🎧 Take a listen to learn more. From Insight to Impact: Why Patient Networks Matter: https://lnkd.in/eZ8z5KcZ

09/26/2024

September is World Alzheimer's Month: A time for education and action.

My mom has dementia. A form of Alzhemimer’s. Its become difficult to have discussions with her as her short term memory is not working.

I had learned a lot from the Alzheimer’s course I took a couple of years ago. To keep up to date I follow McMaster Optimal Aging Portal.

Featured Resources
eLearning: Dementia Risk Reduction
eLearning: Physical Activity, Sedentary Behaviour, and Sleep
eLearning: Weight Management, Diet, and Nutrition
eLearning: Cognitive and Social Activity
eLearning: Smoking and Alcohol
eLearning: Blood Vessel Health

Check out their resources and other valuable information.

September marks World Alzheimer's Month, a time dedicated to raising awareness and understanding about Alzheimer's disease and other forms of dementia globally. Dementia is a growing public health concern worldwide, with Alzheimer's disease being the most common form.

09/12/2024

Are you following us on Linkedin? Check out our page.

PAN - Patient Advisors Network | 519 followers on LinkedIn. A community of practice for Patient/Caregiver Partners | The Patient Advisors Network (PAN) is a national community of practice for patient/caregiver partners - patient and family advisors committed to improving healthcare for all Canadians...

07/29/2024

🌟 Celebrating Alies Maybee & PAN's Global Impact 🌟

PAN’s co-founder and co-chair Alies Maybee received the 'Made with Patients' global award at the Patient Engagement Open Forum in Italy. This accolade celebrates PAN’s unique patient-caregiver partnership model and our drive for healthcare that’s equitable and accessible to all.

The introduction of our "Reimagining the Research Landscape" report at the forum initiated important discussions on the future of patient involvement in healthcare against the backdrop of AI, climate change, and potential health crises.

This honour acknowledges the entire PAN community’s efforts through the creation of a grassroots patient network community of practice and actively partnering in health research to improve healthcare for everyone.

Read more on our blog at https://bit.ly/3zPSTVD

Your voice matters: How can you contribute to reshaping healthcare? Share, comment, or message us to discuss how we can collectively forge ahead.

Discover the Patient Advisors Network (PAN), a self-funded non-profit leading the way in patient engagement and caregiving partner support. Co-founded by aw ...

06/20/2024

Have you reviewed Patient Advisors Network Report.

This report was created from our analysis of the survey results of patient/caregiver partners done to support the Canadian Institute for Health Information (CIHI) SPOR Patient Engagement Platform refresh process. See the full illustrated report below.

https://www.patientadvisors.ca/2024/04/02/why-do-we-often-feel-like-outsiders/

06/07/2024

Big news! The Federal Health Minister tables bill improving access to health data.
“Wow! Exciting to see this in the The Globe and Mail this morning. A huge step forward and reminder that the collective voice has impact. There are lots of people behind this movement, nice to see Teri Price and Greg's Wings Projects Ltd. acknowledged in this article.
Kudos👏to all who have been advocating this at the national, regional and local levels. Lots more work ahead for this to pass.Let’s celebrate this milestone, momentum is there.” Donna Rubenstein, PAN Co-Chair.

06/07/2024

Check out this weeks episode of As PER Usual , with host Anna Chudyk. She talks with PAN's co-chairs -Alies Maybee and Donna Rubenstein about PANs recent report “Remaining the Research Landscape".

We get inside this 100% Patient led project and share how it was done (the process) and the learnings.
If you have not heard of this excellent podcast series- it is worth a look. Anna covers topics that are meaningful to and the conversations are easy to follow. See the site for all the interviews to date.

https://open.substack.com/pub/asperusual/p/s2e8-patient-partners-weigh-in-on-78a?utm_campaign=post&utm_medium=web

05/23/2024

From Made with Patiennts Twitter post.

Honoring Alies Maybee, Hall of Fame Awardee ! Co-founder of Patient Advisors Network she's a leader in making healthcare patient-centered. A transformative force in patient advocacy, driving change through genuine engagement.

tinyurl.com/MWPA-Alies

Photo provided by https://patientfocusedmedicine.org/

05/21/2024

PAN is Hiring a Contract, Part-Time Virtual Communications Coordinator

Are you:
· skilled at writing, social media and other forms of communication?
· great at building community and engaging audiences?
· excited about patient/caregiver partnerships in healthcare?
· looking for remote, part-time work that is rewarding?

If you answered "yes" to these questions, consider applying to PAN as a Communications Coordinator!

Find out more details within the job posting. Apply today to be a part of a growing organization!

https://www.patientadvisors.ca/wp-content/uploads/2024/05/PAN-Communications-Job-Posting-2024-1.pdf

05/19/2024

Have you seen Patient Advisors Network Strategic Plan for (2023-2026)?
We launched a 3-year strategic plan beginning in 2023 to focus on actions going forward. The plan was a result of integrated feedback of the PAN community.

Check out our website to see our strategic plan.

https://www.patientadvisors.ca/about-us/