SUDEP Aware

04/20/2025

Dr. Itay Tokatly Latzer, an Epileptologist at Boston Children’s Hospital, and his team are conducting a qualitative research study looking at the experience of parents who have lost children to SUDEP through 30-60 min long interviews. The study aims to gain novel insights into the lives of parents who have lost a child to SUDEP and provide information on beneficial coping strategies and support systems to others. The study also looks to raise awareness of SUDEP and advocate for establishing additional guidelines around SUDEP. Harvard Medical School

If you are interested in participating, please contact Dr. Itay Tokatly Latzer directly at itay.tokatlylatzer@childrens.harvard.edu and he will explain more.

03/25/2025

March 26th is 💜 international PURPLE DAY for EPILEPSY! 💜 Help bring more awareness to and (Sudden Unexpected Death in EPilepsy) by encouraging its discussion and sharing postings 💜
www.purpleday.org

03/25/2025

Learn about Sudden Unexpected Death in Epilepsy (SUDEP) including who is at risk and the best ways to help keep your child with epilepsy as safe as possible.

10/30/2024

The U of T Engineering study employed wavelet phase coherence, a method that allows for the detailed examination of phase relationships between different brain regions during seizures

10/24/2024

Webinar assisting + encouraging the conversation - because discussion of Sudden Unexpected Death in EPilepsy + its risk is *essential* between families living with + their healthcare providers 💜

How to talk about SUDEP - 23 October 2024SUDEP conversations can be difficult to initiate, however studies show that patients and families do want to know ab...

10/16/2024

Today is , + this year’s theme, , focuses on our right to be informed + have access to life-saving information.

Families living with epilepsy are strongly encouraged to speak with their doctor to learn about their loved one's risk of Sudden Unexpected Death in ( ) + the actions that could potentially help reduce the risk.

Today is also a day we join together in love, honour + celebration of all those we have lost to SUDEP/epilepsy 💜

Honouring all those we have lost to epilepsy, who are always in our hearts.

03/26/2024

INTERNATIONAL PURPLE DAY for EPILEPSY 💜 Raising awareness of + Sudden Unexpected Death in EPilepsy ( ) around the world together 💜