Dystonia Medical Research Foundation Canada

Dystonia Medical Research Foundation Canada Dystonia Medical Research Foundation Canada

The Dystonia Medical Research Foundation was founded in 1976 by Samuel and Frances Belzberg of Vancouver, after their daughter was diagnosed with generalized dystonia. The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. DMRF Canada works in partnership with the Dystonia Medical Research Foundation in the United States and other like-minded research organizations to ensure funding of the best and most relevant dystonia medical research in Canada and worldwide.

Join the National Virtual Support Meeting on Saturday, February 28th, from 12:00pm – 2:00pm PST. Please check your local...
02/20/2026

Join the National Virtual Support Meeting on Saturday, February 28th, from 12:00pm – 2:00pm PST. Please check your local time zone. All are welcome! Thank you to our volunteer Soreyea for hosting this meeting!

For more information and to join the meeting, please visit: https://dystoniacanada.org/events/national-virtual-support-meeting-february-28th-2026

Support meetings bring together people living with dystonia, whether newly diagnosed or living with it for decades, to connect and support one another. They are a space not only to receive help, but to give back by sharing experiences, encouragement, and hope. Thank you for being part of this caring community.

This Valentine’s, skip the flowers 🌹 and give a gift that lasts, support research that changes lives ❤️🔬 Make your g...
02/12/2026

This Valentine’s, skip the flowers 🌹 and give a gift that lasts, support research that changes lives ❤️🔬

Make your gift today, visit: www.dystoniacanada.org/donateonline

Your birthday can be more than a celebration. It can be a lifeline 💙 This year, in lieu of gifts, join Do It for Dyston...
01/29/2026

Your birthday can be more than a celebration. It can be a lifeline 💙

This year, in lieu of gifts, join Do It for Dystonia. Invite your friends and family to support and show your love for a cause that truly matters.

✨Special for 2026, celebrate alongside DMRF as we mark our 50th anniversary. Turn your birthday into fuel for the next chapter.

Visit www.dystoniacanada.org/doit to start your campaign today.🎂✨

The University of Toronto invites you to a weekly Neurologic Music Therapy Zoom class for people living with . These 60...
01/26/2026

The University of Toronto invites you to a weekly Neurologic Music Therapy Zoom class for people living with . These 60-minute sessions use music-based movement and singing to help reduce tension and support overall quality of life. 💙

🗓 Thursdays | 5:30–6:30 PM ET
💻 Zoom
To learn more about and register, visit: https://dystoniacanada.org/events/NMT

is more than just a movement disorder. Non-motor symptoms are a significant burden and can be as disabling—or even mor...
01/21/2026

is more than just a movement disorder. Non-motor symptoms are a significant burden and can be as disabling—or even more disabling—as the involuntary movements and postures characteristic of dystonia. 🧠💙

On this day, let’s keep the conversation going.

Learn more about the non-motor symptoms on our website: https://dystoniacanada.org/nonmotor

We will remain closed from December 24, 2025, to January 1, 2026. During this time, we will respond to urgent matters on...
12/16/2025

We will remain closed from December 24, 2025, to January 1, 2026. During this time, we will respond to urgent matters only. Please email info@dystoniacanada.org or leave us a voicemail at 1-800-361-8061.

We wish you a safe and happy holiday season! 💙

12/02/2025

🌟 Today is , a day to make a meaningful difference for people living with dystonia.

Your generosity fuels research breakthroughs and helps train specialists who will shape the future of dystonia care in Canada.

Meet Dr. Talyta Grippe, our 2023-2025 Fellow. Supported by DMRF Canada, she is expanding expertise in dystonia and improving access to care for individuals and families across the country. This year, she also served as a key presenter and organizer at the 2025 Pan American Movement Disorders Clinical Neurophysiology Course. This program reached full capacity thanks in part to DMRF Canada’s support. It means that more medical specialists are trained in gold-standard treatment techniques for dystonia.

When you give to DMRF Canada, you directly support the research and training of emerging experts like Dr. Grippe. As the only national organization in Canada dedicated exclusively to dystonia, the impact of your gift cannot be replicated elsewhere. Your support helps bring the much-needed specialists into the field, strengthens care, and moves us closer to a future with a cure.

🎁 Give the gift of research today: www.dystoniacanada.org/donateonline
💙 Thank you for making a lasting impact.

🌟 Demain, le 2 décembre, c'est , une journée pour faire une réelle différence pour les personnes vivant avec la dystoni...
12/01/2025

🌟 Demain, le 2 décembre, c'est , une journée pour faire une réelle différence pour les personnes vivant avec la dystonie.

Votre générosité permet de réaliser des recherches essentielles, de faire de la sensibilisation et de soutenir des gens et des familles partout au Canada. 💙 Notre objectif est de recueillir 5 000 dollars en l'honneur des 50 000 Canadiens touchés par la dystonie.

Les familles comme celle de Julie savent à quel point ce soutien peut changer leur vie. Julie a lutté contre des symptômes douloureux pendant son enfance, sans jamais imaginer que son jeune fils serait un jour confronté à une forme de dystonie encore plus agressive. Grâce à la stimulation cérébrale profonde, tous deux sont aujourd'hui libres de se déplacer facilement.

Leur histoire montre ce qu'il est possible de faire, mais elle nous rappelle aussi qu'il est urgent d'accroître la sensibilisation, le soutien et le progrès. Trop de familles sont encore confrontées à de longues attentes pour obtenir des réponses et à des options de traitement limitées, et c'est exactement ce que nous nous efforçons de changer.

Votre don au « Mardi je donne » peut nous aider. Chaque dollar nous rapproche d'un avenir où plus personne ne sera confronté seul à la dystonie.

🎁 Offrez la recherche en cadeau.

Faites un don à l'adresse : https://dystoniacanada.org/fr/faitesundon
💪💙 Merci d’avoir un impact durable.

Dystonie-Partage

🌟 Tomorrow is , a day to make a real difference for people living with dystonia.Your generosity fuels vital research, r...
12/01/2025

🌟 Tomorrow is , a day to make a real difference for people living with dystonia.

Your generosity fuels vital research, raises awareness, and supports individuals and families across Canada. 💙 Our goal is to raise $5,000 in honor of the 50,000 Canadians affected by dystonia.

Families like Julie’s know how life changing this support can be. Julie struggled with painful symptoms as a child, never imagining her young son would one day face an even more aggressive form of dystonia. Thanks to Deep Brain Stimulation, both now enjoy the freedom to move with ease.

Their story shows what is possible, but it also reminds us how much more awareness, support, and progress are urgently needed. Too many families still face long waits for answers and limited treatment options, and that is exactly what we are working to change.

Your Giving Tuesday gift can help. Every dollar moves us closer to a future where no one faces dystonia alone.

🎁 Give the gift of research.
Donate at: www.dystoniacanada.org/donateonline

💪 💙 Thank you for making a lasting impact.

Team Dystonia / Greater Toronto Area Dystonia Support Group at the 2025 Toronto Waterfront Marathon. A big thanks to the...
10/18/2025

Team Dystonia / Greater Toronto Area Dystonia Support Group at the 2025 Toronto Waterfront Marathon. A big thanks to the participants for coming out in support of dystonia.

This Saturday, the Toronto Dystonia Support Group will be lacing up for those living with dystonia and their loved ones ...
10/17/2025

This Saturday, the Toronto Dystonia Support Group will be lacing up for those living with dystonia and their loved ones — raising awareness at the largest run in Toronto! 🏃♂️💙

There’s still time to show your support!

Your donations help improve quality of life for affected individuals and families through dystonia research and patient support programs.

Donate or share this message to spread the word. 👉 To donate, visit - https://raceroster.com/events/2025/95235/2025-tcs-toronto-waterfront-marathon/fundraising-organization/79431?aff=6ZUCT

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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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