Dystonia Medical Research Foundation Canada

04/07/2026

Registration for Freedom to Move: Run, Walk, and Wheel for Dystonia is now open!

Be part of a growing movement to raise awareness, fund research, and support Canadians living with dystonia. Every step you take helps move us closer to better treatments and, ultimately, a cure.

Join us virtually anywhere in Canada or in person in Toronto, and make your impact count.

👟 Register today: www.freedomtomove.org
⏰ Early Bird deadline is May 14, prices increase by 50% after

04/03/2026

Last year, the dystonia community across Canada came together for a powerful cause, running, walking, and wheeling to raise over $50,000 for research and support programs.
This year, we’re going even bigger to mark our 50 years of community in Canada! 👟

Get ready to move, support, and make an impact.

Stay tuned, more details coming soon.

03/30/2026

Looking for a simple way to give back and make a real impact?

Volunteering with DMRF Canada’s bingo program is flexible, meaningful, and a powerful way to support the dystonia community. No experience needed, just your time.

Stephen Rogow is one of the volunteers making it happen. Through his dedication, he has helped raise over $50,000 since July 2024. What keeps him coming back is something even more meaningful: raising awareness.

“Even small conversations can help people learn about dystonia and the support that’s available.”

From connecting with others to raising awareness, every shift makes a difference.
Be part of something meaningful.

Sign up to volunteer: https://dystoniacanada.org/ontariobingo
Thanks to Delta Bingo and Gaming and Charitable Gaming. Community Good.

03/23/2026

Collaboration drives impact. We’re proud to partner with Huntington Society of Canada and Parkinson Canada to better meet the needs of our communities. 💙

Read more in our press release:
https://dystoniacanada.org/news/canadian-movement-disorders-organizations-join-together-train-next-generation-specialists

TRAINING THE NEXT GENERATION OF MOVEMENT DISORDER SPECIALISTS

Parkinson Canada, Huntington Society of Canada, and Dystonia Medical Research Foundation Canada are pleased to launch the Clinical Movement Disorders Fellowship.

Through this collaboration, the partners will co-fund one clinical fellowship in 2026-2027, receiving $80,000 in support to an exceptional candidate pursuing specialized training in movement disorders.

The program addresses a critical need in the Canadian healthcare landscape, where many patients with movement disorders face long wait times and limited access to specialized care.

By pooling resources and expertise, the three organizations will provide comprehensive training opportunities in movement disorders, including Parkinson's disease, Huntington disease, dystonia, and related conditions.

We are excited about this collaborative step towards improved care for individuals and families living with movement disorders!

02/28/2026

Our February 2026 E-newsletter is now available in both French and English!

Discover the latest news, upcoming events, and important updates. Check your inbox or click the link in our bio to read the latest edition and sign up to receive it.

Check your inbox or visit: https://dystoniacanada.org/newsletters to read the latest edition and sign up to receive it.

Stay tuned. Stay engaged. Stay informed.

02/20/2026

Join the National Virtual Support Meeting on Saturday, February 28th, from 12:00pm – 2:00pm PST. Please check your local time zone. All are welcome! Thank you to our volunteer Soreyea for hosting this meeting!

For more information and to join the meeting, please visit: https://dystoniacanada.org/events/national-virtual-support-meeting-february-28th-2026

Support meetings bring together people living with dystonia, whether newly diagnosed or living with it for decades, to connect and support one another. They are a space not only to receive help, but to give back by sharing experiences, encouragement, and hope. Thank you for being part of this caring community.

02/12/2026

This Valentine’s, skip the flowers 🌹 and give a gift that lasts, support research that changes lives ❤️🔬

Make your gift today, visit: www.dystoniacanada.org/donateonline

01/29/2026

Your birthday can be more than a celebration. It can be a lifeline 💙

This year, in lieu of gifts, join Do It for Dystonia. Invite your friends and family to support and show your love for a cause that truly matters.

✨Special for 2026, celebrate alongside DMRF as we mark our 50th anniversary. Turn your birthday into fuel for the next chapter.

Visit www.dystoniacanada.org/doit to start your campaign today.🎂✨

01/26/2026

The University of Toronto invites you to a weekly Neurologic Music Therapy Zoom class for people living with . These 60-minute sessions use music-based movement and singing to help reduce tension and support overall quality of life. 💙

🗓 Thursdays | 5:30–6:30 PM ET
💻 Zoom
To learn more about and register, visit: https://dystoniacanada.org/events/NMT

01/21/2026

is more than just a movement disorder. Non-motor symptoms are a significant burden and can be as disabling—or even more disabling—as the involuntary movements and postures characteristic of dystonia. 🧠💙

On this day, let’s keep the conversation going.

Learn more about the non-motor symptoms on our website: https://dystoniacanada.org/nonmotor

12/31/2025

Your support THIS year shapes the progress we can make next year. 💙
Take a look at what YOU made possible: www.dystoniacanada.org/2025successes

There’s still time to make a meaningful impact. Your year-end gift fuels research, support services, and nationwide awareness. Make your gift today: https://dystoniacanada.org/donateonline

12/16/2025

We will remain closed from December 24, 2025, to January 1, 2026. During this time, we will respond to urgent matters only. Please email info@dystoniacanada.org or leave us a voicemail at 1-800-361-8061.

We wish you a safe and happy holiday season! 💙