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AlphaNet Canada

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Toronto, ON
AlphaNet Canada

AlphaNet Canada is dedicated to improving the lives of individuals in Canada affected by the genetic condition, alpha-1 antitrypsin deficiency (Alpha-1).

We provide complimentary disease management services to individuals diagnosed with Alpha-1. Alpha-1 Canada advocates on behalf of Canadians affected by alpha-1 antitrypsin deficiency. We also inform and educate the medical community about alpha-1 antitrypsin deficiency; and generate broad awareness about this genetic liver, lung and skin disease.

12/17/2025

⚠️ Glassia Storage & Infusion Guidance During Severe Weather ⚠️

‘Tis the season for inclement weather across Canada!

Stability concerns arise once Glassia is removed from refrigeration. It is advised to keep the refrigerator door closed during power outages. If there is an extended outage, consider a cooler bag for temporary storage.

If an infusion is missed due to weather conditions, resume your next scheduled infusion as planned. Need to cancel or reschedule an infusion appointment? Patients must contact the Patient Support Program (PSP) directly at 1-844-691-7284, press 4 for the Glassia team.

If you have any questions or concerns, please don't hesitate to contact AlphaNet Canada directly at 1-888-254-4993.

12/12/2025

Recordings of AlphaNet Canada Patient Information Sessions are now available on the AlphaNet Canada Subscriber portal: https://alphanetcanada.ca/subscriber-portal/. If you don’t currently have access to the portal, please request access from your Coordinator or contact our Intake Manager, Jon, at jholmes@alphanetcanada.ca to get set up.

12/10/2025

Studies in people with severe COPD show that longer daily use of oxygen therapy leads to greater health benefits. One study found that long-term oxygen therapy increased lifespan by up to 6–7 years.

To learn more, please visit bfrg.alphanet.org to access the Big Fat Reference Guide (BFRG).

12/08/2025

On Friday, our Executive Director, Angela, had the honour of delivering heartfelt gratitude to Dr. Isra Levy, VP of Medical Affairs and Innovation, during Canadian Blood Services’ December Board Meeting, in a warm farewell as he prepares for retirement after a truly distinguished career.

The Canadian alpha-1 patient community sincerely appreciates Dr. Levy’s unwavering commitment to ensuring that those who rely on life-saving therapies receive the necessary treatment. His leadership and vision have left a lasting, transformative impact.

We extend our deepest thanks for his exceptional service and wish him all the best in his retirement.

11/25/2025

Don’t miss our session on Thursday, November 27, 2025 at 7 p.m. EST with Rodrique Ngeleka, Program Manager at the OnePath Patient Support Program.

We’ll cover why proper storage of plasma-derived therapies is essential for maintaining treatment quality, along with key travel tips for patients on augmentation therapy, such as transporting medication, prescription requirements, and planning. Bring your questions and join the conversation.

Register here: https://us02web.zoom.us/meeting/register/Xag5CCU4RyS82FoHRvKXTg

The AlphaNet Canada Team

11/19/2025

Each alveolus is supplied by many tiny blood vessels called capillaries. For oxygen and carbon dioxide to be exchanged, they must cross the alveolar capillary membrane. This exchange is promoted by diffusion — the passage of gas molecules through respiratory membranes. In diffusion, oxygen passes to the blood, and carbon dioxide, a by-product of cellular metabolism, passes out of the blood and is channeled away through exhalation.

To learn more, please visit bfrg.alphanet.org to access the Big Fat Reference Guide (BFRG).

11/17/2025

This weekend, we were proud to address the misconceptions surrounding Alpha-1 Antitrypsin Deficiency and collaborate with fellow patient organizations, industry partners, and government stakeholders during the 2025 NRBDO Deliberative Dialogue & Fall Forum.

Our Executive Director and NRBDO Chair, Angela Diano, chaired the event, which featured in-depth policy conversations on plasma collection and product use in Canada. She was joined by Jon Holmes, AlphaNet Canada, Intake Manager, and Joanna Jagdeo, Canada’s Alpha-1 Patient Registry Coordinator.

A key takeaway from the weekend was the importance of understanding the full clinical patient experience to inform future patient needs. This is why participation in the global clinical patient registry, EARCO, is so essential.

Please contact Joanna at info@inspirationresearch.ca to confirm that you are enrolled in EARCO.

11/14/2025

November is Pulmonary Hypertension Awareness Month, aimed at raising awareness about this serious condition to promote early diagnosis, better treatment options, and the pursuit of a cure.

The Pulmonary Hypertension Association of Canada reports around 5,000 diagnosed cases, with estimates suggesting up to 10,000 may be living with this condition.

For more information, visit bfrg.alphanet.org for the Big Fat Reference Guide (BFRG), which includes an article on Alpha-1's role in pulmonary hypertension and its connection to heart failure (Cor Pulmonale).

11/11/2025

Today, we pay tribute to the memory of all Canadians who have served and sacrificed their lives in wars, conflicts, and peacekeeping missions.

11/05/2025

To learn more, please visit bfrg.alphanet.org to access the Big Fat Reference Guide (BFRG).

11/01/2025

November is Alpha-1 Awareness Month. We use this time to celebrate the Alpha-1 community, raise awareness about this rare genetic condition, and emphasize the importance of family testing.

To learn more about alpha-1 antitrypsin deficiency, click the link to sign up for access to the Big Fat Reference Guide -- a comprehensive guide to living with Alpha-1: https://bfrg.alphanet.org.

10/30/2025

If you missed our webinar session on October 4th with AlphaNet Canada's Medical Director Dr. Ken Chapman, you can now watch the full recording on our Subscriber Portal!

Dr. Chapman provided an overview of the ongoing Wave Life Sciences’ Phase 1b/2a RestorAATion-2 (WVE-006) study and its significance for the Alpha-1 community.

To access AlphaNet Canada's Subscriber Portal, visit the link here: https://survey.alphanetcanada.ca

If you are not yet enrolled in the portal and would like to join, please contact: infoca@alphanetcanada.ca

Address

Toronto, ON

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.alphanetcanada.ca/

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Our Story

Alpha-1 Canada provides information, education and support to Canadians affected by alpha-1 antitrypsin deficiency. We also inform and educate the medical community about alpha-1 antitrypsin deficiency; and generate broad awareness about this genetic liver, lung and skin disease.