The Dalglish Family 22q Clinic

11/06/2025

The CN Tower will light up in red again to raise awareness for 22q11.2 deletion syndrome (22q11.2DS or simply 22q) and 22q11.2 duplication syndrome (22q11.2DupS) on Saturday, November 22nd, 2025!
https://22q.ca/events/2025-11-22-cn-tower-lights-up-in-red-for-22q

The date November 22nd (“22/11”) is a play on the names of the conditions. The Dalglish Family 22q Clinic at Toronto General Hospital, University Health Network continues to be a national leader in providing care for adults with 22q11.2DS / 22q11.2DupS and their families. We also conduct internationally renowned research to advance our understanding of all aspects of the conditions and improve care and outcomes.

11/24/2021

CN Tower was lit up in red to raise awareness for 22q on November 22nd!

The weather condition was excellent, and we could spot the red CN Tower even from 30 km away. Nevertheless, seeing the tower in close proximity was a real experience. The most recognizable Toronto landmark was majestic when lit in bright red. Of course, we keep in mind the true meaning of this event - we want to let Toronto and even the whole world know about 22q, an under-recognized condition that affects 1 in 2,148 live births.

Thanks to everyone who shared this great news!

11/17/2021

Please share!!

We are delighted to let you know that the CN Tower will be lit up in red to raise awareness for 22q on November 22. We chose this date ("22/11") as a play on the name of the condition, 22q11.2 deletion syndrome (“22q”), an under-recognized condition that affects 1 in 2,148 live births.

The lighting of the CN Tower is part of the “Luces por el 22q/Lighting the 22q” international awareness movement that began in Spain in 2018. Buildings in Spain, Germany, Belgium, Finland and the city of Philadelphia, United States, were lit up as part of the movement in 2020, and will be again this year on the 22nd of November. Now joining this international awareness movement will be Toronto – a national leader in providing care for families through clinics at the Toronto General Hospital and at SickKids Hospital, and in internationally renowned research into adult outcomes and genetics.

If you wish to photograph or gather to watch the lighting, please note that the Tower will be lit at sunset (about 4:46 PM on Monday evening, November 22, 2021). However, the red light will only become visible as the sky darkens, which occurs approximately 30 minutes after sunset, so by about 5:15 PM.

In addition, the CN Tower presents a standard light show for 8 minutes at the top of every hour, so, at 5 PM, 6 PM, 7 PM, etc., until 5:08, 6:08, 7:08, etc., PM.

If you would like to view the lighting virtually, please visit the CN Tower’s website for their Earthcams.

If you take pictures to raise awareness for 22q, please tag them with or when you post them on social media.

Together we will be able to illuminate 22q!

05/15/2021

The 22q11.2 community is responding to perceived inaccuracies and unsubstantiated medical recommendations in a Washington Post article of May 1, 2021. The article in question is “Doctors said the boy was suffering from teenage psychosis. What he really had was a rare genetic condition.” The genetic condition the article refers to is 22q11.2 deletion syndrome. Three of the letters that 22q11.2 experts have written to the Washington Post can be found on the 22q11.2 Society website:
Responses to the Washington Post regarding an inaccurate article about 22q:
https://www.22qsociety.org/news/content.asp?ni=299

05/14/2020

22q and ZooM takes place this weekend. Please see our Events page for more information.

01/30/2019

Today is day in support of everyone who is affected by mental health conditions. Check out the video and spread the word!

07/19/2018

Our Clinic team had a wonderful time at the 11th Biennial International 22q11.2 Conference in Whistler, BC, Canada!
A big thank you to everyone who had a part in making this happen, and a lot was learned from the many presentations and research findings shared over these 3 days.
This event has gone a long way in helping us continue to provide the best care to our 22q family!

06/14/2018

This should be a radio special worth listening to. Starting June 16th, CBC Radio One will be broadcasting highlights of the recent CAMH town hall covering the topic of higher-needs kids and transitioning out of pediatric care.

Give it a listen and share your thoughts!

Help for parents and their high-needs kids as they age out of the system.

05/23/2018

Don't forget to register for the upcoming 22q at the Zoo Day on June 10th! Check out the link here: http://22q.ca/events/2018-06-10-22q-at-the-zoo-in-toronto

05/02/2018

Calling all 22q families: Have you checked out the International 22q11.2 Biennial Family Conference? It will be held this year July 14th to 16th in Whin Whistler, British Columbia. Early registration finishes May 15th, so check it out today!
https://chop.cloud-cme.com/aph.aspx?P=5&EID=599 #

Children's Hospital of Philadelphia, The International 22q11.2 Biennal Family Conference, 7/14/2018 8:00:00 AM - 7/15/2018 6:00:00 PM,