Can-SOLVE CKD Network

09/24/2025

Being a patient partner starts with one thing: your story. From there, you can help shape health research and care.

On Oct 9, join a free, interactive webinar designed for Black people in Canada living with kidney disease, their families, and caregivers. Hear from Black researchers and patient partners about what it’s like to get involved in kidney research and discover simple ways you can help shape kidney care by sharing your personal experience.

No research background needed — just curiosity and an interest in sharing your story!

EVENT INFO

📅 Oct 9 | 12–1:15 pm ET

✅ Register now: https://bit.ly/4mUtH3K
ℹ️ Learn more: https://bit.ly/4nyXb7h

09/24/2025

Knowledge is power — and learning our shared history is how we move from awareness to action. National Centre for Truth and Reconciliation (NCTR) is hosting Truth and Reconciliation Week (Sept 22–26, 2025), offering free events and resources to honour Survivors, learn about the legacy of residential schools, and take meaningful steps forward. The week includes Lunch & Learn sessions - bring what you learn back to your community, and help build a more respectful future.

If you missed any sessions, recordings are now available to watch at your own pace.

See details about Day 3 below and don’t miss Day 4 and 5: TRC Calls to Action, corporate reconciliation, and confronting denialism.

Learn more and see the full schedule: https://trw-svr.nctr.ca/lunch-and-learns/

On Day 3 of Truth and Reconciliation Week, we ask – how do residential schools continue to affect the present day?

Open to the public, join today’s FREE lunch and learn at 12:00PM CDT, discussing the direct throughline from the residential school system to the Sixties Scoop through to the overwhelming number of Indigenous children in child welfare today, including the directly related aspect of forced and coerced sterilizations of Indigenous women.

Residential school Survivor Vivian Ketchum and reproductive justice support worker Shelby Ponace will be joined in conversation by moderator Roxanne Balan, a child and family services worker.

There’s still time to participate in this year’s Truth and Reconciliation Week 2025 lunch and learn series at https://trw-svr.nctr.ca/lunch-and-learns/

All programming is available in English, French, and ASL.

When you know the truth about our history, you can take action 🧡
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Au troisième jour de la Semaine de la vérité et de la réconciliation, nous posons la question suivante : comment les pensionnats autochtones continuent-ils d’affecter le présent?

Ouvert au public! Joignez-vous dès aujourd’hui à un dîner-causerie GRATUIT à midi (HAC) qui abordera le lien direct entre le régime des pensionnats autochtones, la rafle des années soixante et le nombre écrasant d’enfants autochtones pris en charge par les services de protection de l’enfance aujourd’hui, y compris le drame concomitant des stérilisations forcées et contraintes de femmes autochtones.

Vivian Ketchum, survivante des pensionnats, et Shelby Ponace, travailleuse sociale spécialisée dans la justice reproductive, s’entretiendront avec la modératrice Roxanne Balan, travailleuse sociale auprès des enfants et des familles.

Il est encore temps de participer à la série de dîners-causeries de la Semaine de la vérité et de la réconciliation 2025 : https://trw-svr.nctr.ca/fr/diners-causeries/

Toute la programmation est offerte en anglais, en français et en langue des signes américaine (ASL).

Quand on connaît la vérité sur notre histoire, on peut agir. 🧡

09/22/2025

Decolonizing a space “can take many forms: making room for Indigenous ways of knowing, being and doing in decision-making, incorporating traditional knowledge into your work, or learning and using Indigenous place names.”

In advance of the National Day for Truth and Reconciliation (September 30), we invite you to reflect: What steps have you taken to decolonize your space—at work, in your community, or in your life? Read practical, culturally grounded ideas and resources to move reflection into action.

👉 Read more:

The word reconciliation is used often in mainstream society, but what does it really mean in practice? Beyond ceremonies and statements, what can each of us do to support it in our daily lives?

09/18/2025

Our Can-SOLVE CKD Network update is now available!

What’s new in this issue:

🔹Reflecting on Truth and Reconciliation Day
🔹Register: Black voices in kidney health webinar Oct. 9
🔹Honouring Inuit Knowledge
🔹IPERC welcomes new tri-chair
🔹Celebrating the gift of living donation
🔹A PKD diagnosis leads to a new purpose
🔹Can-SOLVE CKD research tackles barriers to living donation
🔹Your voice matters: Reader feedback survey

Read our network update and make sure to subscribe!
🔗 https://bit.ly/3KgG0cd

09/17/2025

Black voices are essential in shaping the future of kidney health in Canada.

Join us for a free interactive webinar designed for Black people living with kidney disease, their families, and caregivers.

Learn how you can share your lived experience with researchers as a patient partner

Hear from Black patient partners and researchers already leading change

Help shape care that reflects your community’s needs

EVENT INFO: Thu, Oct 9 | 12–1:15 pm ET | Zoom

✅ Register now: https://bit.ly/4mUtH3K
ℹ️ Learn more: https://bit.ly/4nyXb7h

09/13/2025

A personal story can spark powerful change.

As part of Living Donation Week, we’re spotlighting our Storytelling for Impact module — a free resource that guides you in reflecting on your healthcare journey and refining your story to share with others.

By sharing your experience, you can raise awareness, encourage conversations, and help inspire more people to consider living kidney and organ donation.

▶️ Watch the patient video below and explore the module here: https://bit.ly/3JUWDu5

CDTRP - Canadian Donation and Transplantation Research Program
The Centre for Living Organ Donation at UHN

https://youtu.be/K2-Eej5T5XQ?si=J3EmRY7XzXVHxUNZ

The Storytelling for Impact Module is a part of the Can-SOLVE CKD Learning Tree. The following video provides testimonials from Patient Partners who have tak...

09/11/2025

Every year, thousands of Canadians are waiting for a kidney transplant. Living donation can save lives — but it isn’t always easy.

Can-SOLVE CKD’s Living Donor Kidney Transplantation project is working with researchers, patient partners, and health professionals to make living kidney transplants easier, fairer, and more accessible for everyone.

Find out how they’re creating solutions that remove barriers and bring hope to kidney patients.

👉 Learn more: https://bit.ly/46xCxi2

The Centre for Living Organ Donation at UHN
CDTRP - Canadian Donation and Transplantation Research Program
Kidney Patient & Donor Alliance Canada
Canadian Institutes of Health Research

Around 3,000 people across Canada are currently waiting for a kidney transplant. The wait can take years and is never guaranteed. Every year, hundreds of people die before a kidney becomes available.

09/11/2025

Our joint awareness campaign with CDTRP - Canadian Donation and Transplantation Research Program for continues! Check out this exceptional video, "Sacred Gift", available in both English and Cree, which tells the living donation story of brothers Craig and Kevin.

09/11/2025

Black voices are essential in shaping the future of kidney health in Canada.

Join us for a free interactive webinar designed for Black people living with kidney disease, their families, and caregivers.

Learn how you can share your lived experience with researchers as a patient partner

Hear from Black patient partners and researchers already leading change

Help shape care that reflects your community’s needs

EVENT INFO: Thu, Oct 9 | 12–1:15 pm ET | Zoom

🔗 Register here: https://tinyurl.com/ardh4eka

09/09/2025

When Isabelle’s kidneys began to fail, her sister Tamara was by her side. Through faith, courage, and family, they discovered they were a perfect match.

Today, Isabelle has a second chance at life — and the sisters are raising awareness about living kidney donation.

This , read their inspiring story: https://bit.ly/46tlDB7



CDTRP - Canadian Donation and Transplantation Research Program
The Centre for Living Organ Donation at UHN

09/07/2025

Behind every statistic is a story of hope.

Living donation means shorter wait times, better outcomes, and more moments together with loved ones.

Last year, 590 Canadians stepped forward as living donors, giving a kidney or part of their liver — and hope for a longer, healthier life.

This , we honour donors and celebrate the lives forever changed through the gift of organ donation.

CDTRP - Canadian Donation and Transplantation Research Program The Centre for Living Organ Donation at UHN

09/05/2025

Polycystic kidney disease (PKD) is a chronic, genetic disease that affects 66,000 Canadians and millions worldwide.

For Javiera Navarrete, being diagnosed with as a young grad student was life-changing — but she's chosen to turn it into purpose. Today she's an active patient partner with Can-SOLVE CKD and a member of the Patient Governance Council, drawing on her personal and professional experience to support meaningful patient engagement in kidney research.

Read her inspiring story here 👉 https://cansolveckd.ca/patient-voices/javiera-navarrete/

Together, we can raise awareness and work to .

PKD Foundation of Canada

"I don't let [PKD] define me. But still, I acknowledge that it's a part of me and something that I share with my dad too. "