05/17/2025
🧬 Connective tissue disorders are complex genetic conditions that affect the make-up of connective tissue. Connective tissue is important for providing strength and flexibility to structures throughout the body.
❤️🩹 Conditions in these tissues can lead to symptoms in the blood vessels, eyes, bones, heart, skin, joints, and more.
Vascular connective tissue disorders include Ehlers-Danlos syndrome, Marfan syndrome, and Loeys-Dietz syndrome and are generally passed down on the mother’s side.
After my brother’s aorta dissected while at altitude on a skiing trip, he was diagnosed with a connective tissue disorder so I underwent genetic testing too.
I was diagnosed with Loeys-Dietz syndrome and underwent aortic repair surgery in 2009. 💪❤️
🤸🏽 Pilates has been the glue that has held me together and i cannot recommend it highly enough to you, your friends, and clients who might have it.
While the full spectrum of LDS is not yet fully understood, some of the symptoms in your clients might include:
• Herniations
• Eye abnormalities
• Translucent skin
• Easy bruising
• Hyper-mobility
• Abnormally long limbs*
• Curved spine*
• Flat feet*
👀 Look at my photo again and you’ll see these 3 symptoms more clearly. And though i have all these symptoms and more, I swear by Pilates for my continued well-being.
❓If you have any questions about LDS and Pilates feel free to ask. Please bear in mind that I am not a doctor and cannot provide diagnosis nor dispense medical advice.