Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

16/12/2025

🖌️ Humphrey and Silas, two talented poets from Nairobi, give voice to the resilience it takes when living with either haemophilia or sickle cell disease. Their art is a strong reminder that a medical condition should never define who you are. Nor what you can achieve.

❤️ We humbly and proudly share their original, candid poem telling their personal story.

⭐️ Our work goes beyond medical relief. It is about granting people their dignity and value in the world we live in. About achieving goals and living a worthy life despite a condition that makes it significantly harder to do so. Their thriving is our fuel to work towards granting care and treatment to all people with haemophilia and haemoglobinopathies, wherever they live.

Silas Aristidis

06/12/2025

06/12/2025

We are now the 𝗡𝗼𝘃𝗼 𝗡𝗼𝗿𝗱𝗶𝘀𝗸 𝗛𝗮𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝗮𝗻𝗱 𝗛𝗮𝗲𝗺𝗼𝗴𝗹𝗼𝗯𝗶𝗻𝗼𝗽𝗮𝘁𝗵𝗶𝗲𝘀 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻!

Proudly, we are unveiling our Foundation’s new chapter:

🩸𝗪𝗲 𝗮𝗿𝗲 𝗲𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗼𝘂𝗿 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗯𝗲𝘆𝗼𝗻𝗱 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗵𝗮𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝘁𝗼 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝘀𝗶𝗰𝗸𝗹𝗲 𝗰𝗲𝗹𝗹 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗮𝗻𝗱 𝘁𝗵𝗮𝗹𝗮𝘀𝘀𝗮𝗲𝗺𝗶𝗮 𝗮𝘀 𝘄𝗲𝗹𝗹. 🩸🩸

Building on two decades of work in haemophilia, and enabled by a renewed partnership with the Novo Nordisk Foundation and the continued funding from our founder Novo Nordisk, we are expanding our scope to include haemoglobinopathies. We will apply our proven, partnership-led model to develop tailored programmes that benefit people with haemophilia and haemoglobinopathies, their healthcare professionals, and families - always adapted to local needs.

Let us tell you more at https://bit.ly/4pmSjUd

01/12/2025

🌅 UNVEILING new horizons !

⏳The countdown is on! ⏳

On 5 December, the Novo Nordisk Haemophilia Foundation will share news that opens new paths for care, collaboration, and sustainable impact worldwide.

This is more than an announcement: it’s a commitment to stronger partnerships that drive sustainable change and healthier communities worldwide.

Stay tuned and follow our channels!

29/11/2025

✨ When voices unite, change becomes possible.

🌎 The NNHF is bringing patient organisations and healthcare professionals from five Latin American countries together in the Dominican Republic to collaborate on improving care for haemophilia and sickle cell disease.

🤝 Together, they are shaping powerful messages to influence decision-makers and improve access to care for patients across the region.

💡 This effort also includes the invaluable contribution of our expert volunteers: Lusianna Sánchez, Dr Ofelia Alvarez, and Dr Angelica Floren, whose knowledge and dedication help us build local capacity for our partners.
🌍 Next week is World Volunteer Day – let’s celebrate the incredible impact of volunteers everywhere!

🎥 Watch the full video and meet all the experts from Latin America driving this change!

25/11/2025

🌍 “Care shouldn’t be an accident of geography.” – Prof. Ulla Hedner

❓ Why should a person’s birthplace decide their access to care? It shouldn’t.

Discover the inspiring story behind the Novo Nordisk Haemophilia Foundation - founded over 20 years ago by Prof. Ulla Hedner and a team of visionaries who believed that quality haemophilia care should be possible everywhere.

🤝 Learn how a bold idea became a global movement, empowering local leaders and transforming care in more than 87 countries.

https://nnhf.org/why-geography-should-not-decide-care/

22/11/2025

🎉 NNHF Project of the Year 2025 goes to…

Thailand 🎉🇹🇭

We are thrilled to announce that Team Thailand has won the NNHF Project of the Year Award! This achievement celebrates the power of collaboration and the real change that happens when communities work together to improve care for people with haemophilia.

Two regional projects - Southern and Northeastern Thailand - united to make a difference, adapting a proven model to local needs and delivering even greater impact:

✅ Decentralised care: Strengthened training hubs in both regions, reducing travel time by up to 5 hours so people can access care closer to home.
✅ Empowered patients: In Southern Thailand, self-management transformed lives. At Songklanagarind Hospital, prophylaxis use jumped from 15% to 80% — with 22 people now self-infusing!
✅ Shared expertise nationwide: Partners advanced MSK care and expanded point-of-care ultrasound across the country.

A huge thank you 🙏 to our expert volunteers from SickKids, Canada and Indiana Hemophilia & Thrombosis Center, US: your guidance was invaluable.  

👉 What inspires you the most about this achievement? Share your thoughts!

10/10/2025

Angola, Mozambique and Cape Verde have formed a coalition supported by the Novo Nordisk Haemophilia Foundation.

Through this collaboration, healthcare professionals from Mozambique and Cape Verde joined a training in Angola, organised as part of the World Federation of Hemophilia twinning programme between Angola and Brazil’s Universidade Estadual de Campinas (UNICAMP).
The initiative is driving change through shared expertise, capacity building and advocacy.

🗣“With this approach, we can unify our efforts across borders while still ensuring the different needs of each country are met.” - Amos Gitonga Mbaabu, NNHF Associate Programme Manager

🎥 Watch the full video to hear more from the healthcare professionals joining this pioneering partnership!

07/10/2025

Fondation Pierre Fabre and Novo Nordisk Haemophilia Foundation are strengthening their partnership to transform care for people living with sickle cell disease and haemophilia in Kenya and Tanzania.📝

Together, we’re working towards:

✅ Expanded screening & integrated care
✅ Training hundreds of healthcare professionals
✅ Empowering patient organisations
✅ Establishing a Regional Training Centre
This collaboration is paving the way for lasting progress in building self-sufficient healthcare systems in East Africa.

👉 Discover further insights behind this partnership directly from the programme managers: https://nnhf.org/fondation-pierre-fabre-and-nnhf-strengthen-partnership-for-better-care-in-east-africa/

22/09/2025

Expertise in Action: A Leap Forward for Haemophilia Care in Jamaica 🏥

The expert volunteer He Wen Xiong from St. Michael's S. Hospital, Toronto, has facilitated a training for lab technicians at the University Hospital of the West Indies (UHWI) in Kingston. This marks a major step toward improving the quality of diagnosis of bleeding disorders nationwide.

The impact? Doctors at UHWI - Jamaica’s largest hospital - are aiming to increase diagnosis rates by more than 40%.

The is on track to become Jamaica’s national referral center for haemophilia diagnosis, and with that, to advocate for Ministry of Health support in treatment and reagent procurement. 🧪

👏 A huge thank you to Wen and the UHWI team for making this training a turning point for healthcare.

08/09/2025

👋 Our team had the great pleasure of visiting the Democratic Republic of Congo!

We connected with passionate healthcare professionals and partners who are making a real difference for people living with haemophilia and sickle cell disease.

The NNHF has been a long-standing partner in the DRC, supporting the establishment of haemophilia care, strengthening diagnostic capacities, and fostering patient community engagement. 🤝

We visited four key hospitals in Kinshasa- C**S Kinshasa, PNLCD, IRB-Health 1 CEFA/Monkole, CMMASS, and Cliniques Universitaires de Kinshasa and witnessed both the dedication and the challenges faced on the ground. 🏥

➡️ This visit was a powerful opportunity to deepen our understanding of needs, explore further ways to strengthen care, and move conversations and actions forward.
➡️ Thanks to ongoing efforts and support, partners have established haemophilia care in three centres across different regions (Kisangani, Lubumbashi and Mbuji-Mayi).

Thank you to everyone who welcomed us and contributed to this important dialogue.
Together, we are building stronger foundations for care and advocacy.

05/09/2025

At this year’s Symposium, NNHF joined under the energising motto to reflect on what makes a foundation’s mission future-proof.

For us at the Novo Nordisk Haemophilia Foundation, the answer is clear:
✔️ Local ownership and capacity that embeds self‑sufficient care pathways within health care.
✔️ Strategic partnerships and learning networks that amplify partners’ know‑how and expand integrated care across local and global levels.
✔️ Values at the core of everything we do: integrity, transparency, and co‑creation.

💡 Key insight from the day: Global collaboration is not optional – it’s the engine of scale. By connecting across borders we can accelerate access to care for people living with haemophilia.
As our NNHF General Manager, Denise Braendgaard, put it: “Our partners are the driving force behind the impact within healthcare. By scaling their know‑how and strengths, the collective impact accelerates.”

🤝We left the symposium inspired by the power of collective action.

📨If you share our vision for sustainable healthcare, let’s connect info@nnhf.org