Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

23/02/2026

⏰Last call!⏰

Submit your Community Award nomination by 1 March.

🏆 Every day, dedicated individuals or organisations are improving care for people with haemophilia, sickle cell disease or thalassaemia on a voluntary basis.
Now is your chance to recognise their impact with the Novo Nordisk Haemophilia & Haemoglobinopathies (NNHF) Community Award.

Celebrate engagement and long-term commitment by submitting your nomination today.

⏰Submission and more information on our website: https://nnhf.org/get-active/nominate-for-award/

10/02/2026

🌍The Novo Nordisk Haemophilia & Haemoglobinopathies Foundation NNHF Half‑Year Programme Report (July–December 2025) is now available! 📖

This edition highlights the powerful progress achieved across our partner network. In six months, two new programmes joined the NNHF portfolio - bringing us to 260 programmes since our founding in 2005.

A few snapshots from the report:
📝Guatemala: 33 physiotherapists and physiatrists received advanced training, enhancing musculoskeletal care for people with haemophilia across the regions.

📝Mali: Police and armed forces medical teams are now delivering haemophilia care in conflict‑affected regions, reaching communities once entirely beyond the health system’s reach.

📝India: A sensitisation event with 33 Members of Parliament and 4 ministers sparked government work on national haemophilia treatment guidelines.

🤝Every page reflects collaboration, commitment and shared purpose:
https://nnhf.org/six-months-in-review-progress-behind-the-numbers-in-2025/

02/02/2026

🏆 Every day, dedicated individuals or organisations are improving care for people with haemophilia, sickle cell disease or thalassaemia on a voluntary basis.
Now is your chance to recognise their impact with the Novo Nordisk Haemophilia & Haemoglobinopathies (NNHF) Community Award.

⏳ Submit your nomination by 1 March 2026.

Celebrate engagement and long-term commitment by submitting your nomination today.

⏰Submission and more information on our website: https://nnhf.org/get-active/nominate-for-award/

30/01/2026

📸 Impact Spotlight 📸

A new recurring series where we spotlight people, moments, and progress in haemophilia and haemoglobinopathies care.

January - Impact spotlight: Meet Johardys Montero. 👇

A young boy living with sickle cell disease in the Dominican Republic and who loves to play basketball.

For children like Johardys, the right diagnosis at the right time can be life changing. Accurate screening is more than a medical step. It opens the door to timely treatment, better care pathways, and improved quality of life. And for Johardys, it means being able to keep practicing basketball.

The NNHF has supported projects to improve haemophilia care in the Dominican Republic since 2012 and is now in dialogue with the local haemophilia and sickle cell disease community to identify further needs and opportunities.

This is what 'Impacting care. Together' looks like. ❤️💙

More 'Impact spotlight' - stories coming soon.

22/01/2026

After announcing our official expansion into haemoglobinopathies , we were thrilled to bring together partners from across the globe for an interactive virtual meeting about what the expansion means for them. Your questions and insights showed once again how strong and committed our community is.

A special thanks to Professor Léon Tshilolo and Dr Anupam Dutta for sharing their perspectives on care models for haemophilia, sickle cell disease and thalassaemia in the Democratic Republic of the Congo and India. Both presenters highlighted the importance of innovative solutions and strong measurement frameworks when it comes to integrated care.
We look forward to continuing this journey and 'Impactinge care. Together'.

👉 Do you want to dive deeper into our scope of work? Learn more at www.nnhf.org.

29/12/2025

🔥And this year, our partners proved it again!

2025 was shaped by partnerships that reached across borders and brought care closer to where people live.

🤝 From coalition building in Central America, Portuguese-speaking African countries (PALOP), East Africa and West Africa, to strategic planning in Asia that connected people across vast distances - your collaboration made the difference.

🧬 And as we expand our journey into haemoglobinopathies, we do so with deep appreciation for what makes progress possible: our partners are the engine of our impact.

✨To everyone who supported, guided, challenged, and championed our work - thank you!

Let’s keep building, connecting, and delivering in 2026.

💙❤️ Impacting care. Together

#2026

18/12/2025

We’re proud to announce Agnes Kisakye of Uganda as the recipient of the NNHF Community Award 2025! 🏆🇺🇬

Her grassroots leadership has helped transform haemophilia care in Uganda, from raising awareness to building treatment capacity across the country.

“Agnes's dedication has not only helped to enhance the standard of haemophilia care, it has also significantly raised public awareness in Uganda.” Denise Braendgaard, NNHF General Manager.

Read the full story and celebrate her impact: https://bit.ly/4aVotS4 🎉🌍

Aggie Mavis Haemophilia Foundation of Uganda

16/12/2025

🖌️ Humphrey and Silas, two talented poets from Nairobi, give voice to the resilience it takes when living with either haemophilia or sickle cell disease. Their art is a strong reminder that a medical condition should never define who you are. Nor what you can achieve.

❤️ We humbly and proudly share their original, candid poem telling their personal story.

⭐️ Our work goes beyond medical relief. It is about granting people their dignity and value in the world we live in. About achieving goals and living a worthy life despite a condition that makes it significantly harder to do so. Their thriving is our fuel to work towards granting care and treatment to all people with haemophilia and haemoglobinopathies, wherever they live.

Silas Aristidis

06/12/2025

06/12/2025

We are now the 𝗡𝗼𝘃𝗼 𝗡𝗼𝗿𝗱𝗶𝘀𝗸 𝗛𝗮𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝗮𝗻𝗱 𝗛𝗮𝗲𝗺𝗼𝗴𝗹𝗼𝗯𝗶𝗻𝗼𝗽𝗮𝘁𝗵𝗶𝗲𝘀 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻!

Proudly, we are unveiling our Foundation’s new chapter:

🩸𝗪𝗲 𝗮𝗿𝗲 𝗲𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗼𝘂𝗿 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗯𝗲𝘆𝗼𝗻𝗱 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗵𝗮𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝘁𝗼 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝘀𝗶𝗰𝗸𝗹𝗲 𝗰𝗲𝗹𝗹 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗮𝗻𝗱 𝘁𝗵𝗮𝗹𝗮𝘀𝘀𝗮𝗲𝗺𝗶𝗮 𝗮𝘀 𝘄𝗲𝗹𝗹. 🩸🩸

Building on two decades of work in haemophilia, and enabled by a renewed partnership with the Novo Nordisk Foundation and the continued funding from our founder Novo Nordisk, we are expanding our scope to include haemoglobinopathies. We will apply our proven, partnership-led model to develop tailored programmes that benefit people with haemophilia and haemoglobinopathies, their healthcare professionals, and families - always adapted to local needs.

Let us tell you more at https://bit.ly/4pmSjUd

10/10/2025

Angola, Mozambique and Cape Verde have formed a coalition supported by the Novo Nordisk Haemophilia Foundation.

Through this collaboration, healthcare professionals from Mozambique and Cape Verde joined a training in Angola, organised as part of the World Federation of Hemophilia twinning programme between Angola and Brazil’s Universidade Estadual de Campinas (UNICAMP).
The initiative is driving change through shared expertise, capacity building and advocacy.

🗣“With this approach, we can unify our efforts across borders while still ensuring the different needs of each country are met.” - Amos Gitonga Mbaabu, NNHF Associate Programme Manager

🎥 Watch the full video to hear more from the healthcare professionals joining this pioneering partnership!

22/09/2025

Expertise in Action: A Leap Forward for Haemophilia Care in Jamaica 🏥

The expert volunteer He Wen Xiong from St. Michael's S. Hospital, Toronto, has facilitated a training for lab technicians at the University Hospital of the West Indies (UHWI) in Kingston. This marks a major step toward improving the quality of diagnosis of bleeding disorders nationwide.

The impact? Doctors at UHWI - Jamaica’s largest hospital - are aiming to increase diagnosis rates by more than 40%.

The is on track to become Jamaica’s national referral center for haemophilia diagnosis, and with that, to advocate for Ministry of Health support in treatment and reagent procurement. 🧪

👏 A huge thank you to Wen and the UHWI team for making this training a turning point for healthcare.