Novo Nordisk Haemophilia Foundation, The Circle 32/38, Zürich (2025)

08/09/2025

👋 Our team had the great pleasure of visiting the Democratic Republic of Congo!

We connected with passionate healthcare professionals and partners who are making a real difference for people living with haemophilia and sickle cell disease.

The NNHF has been a long-standing partner in the DRC, supporting the establishment of haemophilia care, strengthening diagnostic capacities, and fostering patient community engagement. 🤝

We visited four key hospitals in Kinshasa- C**S Kinshasa, PNLCD, IRB-Health 1 CEFA/Monkole, CMMASS, and Cliniques Universitaires de Kinshasa and witnessed both the dedication and the challenges faced on the ground. 🏥

➡️ This visit was a powerful opportunity to deepen our understanding of needs, explore further ways to strengthen care, and move conversations and actions forward.
➡️ Thanks to ongoing efforts and support, partners have established haemophilia care in three centres across different regions (Kisangani, Lubumbashi and Mbuji-Mayi).

Thank you to everyone who welcomed us and contributed to this important dialogue.
Together, we are building stronger foundations for care and advocacy.

05/09/2025

At this year’s Symposium, NNHF joined under the energising motto to reflect on what makes a foundation’s mission future-proof.

For us at the Novo Nordisk Haemophilia Foundation, the answer is clear:
✔️ Local ownership and capacity that embeds self‑sufficient care pathways within health care.
✔️ Strategic partnerships and learning networks that amplify partners’ know‑how and expand integrated care across local and global levels.
✔️ Values at the core of everything we do: integrity, transparency, and co‑creation.

💡 Key insight from the day: Global collaboration is not optional – it’s the engine of scale. By connecting across borders we can accelerate access to care for people living with haemophilia.
As our NNHF General Manager, Denise Braendgaard, put it: “Our partners are the driving force behind the impact within healthcare. By scaling their know‑how and strengths, the collective impact accelerates.”

🤝We left the symposium inspired by the power of collective action.

📨If you share our vision for sustainable healthcare, let’s connect info@nnhf.org

02/09/2025

✨ Welcome to the NNHF family!✨

We are thrilled to introduce Célia Rohrer, our new Communications Manager. 📣

Célia will strengthen the Foundation’s communications and support our partners in the French, Spanish, and Portuguese-speaking countries in their important advocacy work.
Her first mission already brought her to Luanda, Angola, where she joined the African Portuguese-speaking countries (PALOP) kick-off meeting, supporting in advocacy and training sessions. 🌍

We look forward to the impact of Célia’s expertise and commitment as we continue Impacting care. Together

22/08/2025

🎉🎈 Join us in celebrating the remarkable achievements of our partners in the first half of 2025! 🌍✨

Cambodia 🇰🇭: A haematologist and a nurse from Calmette Hospital attended a one-month specialised training in London to advance haemophilia care for adults. Special thanks to Dr Thynn Thynn Yee and her team from the Royal Free Hospital for hosting the training.

Paraguay 🇵🇾: Four days of coagulation training empowered 16 laboratory technicians from multiple hospitals in the region. Led by Dr Maria Sol from Salta, Argentina, this initiative sets the stage for a follow-up training in September 2025, along with diagnosis days aimed at increasing the national diagnosis rate!

Zambia 🇿🇲: Focused education sessions are helping people with haemophilia gain independence through self-infusion of clotting factors, alongside vital care for muscles and joints.

Together, we're building a future with better long-term outcomes! ❤️

🌟 Ready for more inspiring stories? Dive deeper into these incredible achievements and many more in our half-yearly update! 📄 Read it here:https://nnhf.org/wp-content/uploads/2025/08/250822_NNHF-half-yearly-update_H1-2025.pdf

29/07/2025

🤝 𝗦𝘁𝗿𝗲𝗻𝗴𝘁𝗵𝗲𝗻𝗶𝗻𝗴 𝗠𝘂𝗹𝘁𝗶𝗱𝗶𝘀𝗰𝗶𝗽𝗹𝗶𝗻𝗮𝗿𝘆 𝗖𝗮𝗿𝗲 𝗧𝗲𝗮𝗺𝘀 𝗶𝗻 𝗖𝗲𝗻𝘁𝗿𝗮𝗹 𝗔𝗺𝗲𝗿𝗶𝗰𝗮 🩺
We are excited to share a new video showcasing the incredible journey of three orthopaedic surgeons from Guatemala and Panama who attended a 5-day training in Milan, Italy. This training, led by Dr Luigi Solimeno at the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico, was in the framework of two ongoing projects to enhance haemophilia care.

🌍 Cross-country collaboration
Our NNHF project partners are co-building multidisciplinary teams to improve diagnosis and make care accessible for people with haemophilia. The training provided valuable insights and practical knowledge, empowering these surgeons to better serve their communities.

👥 Expected outcomes and common goals of the projects
• Improved access to specialised care for people with haemophilia
• Enhanced transitions from paediatric to adult services
• Strengthened multidisciplinary care teams in Guatemala and Panama
• Unleashing the potential of collaboration between countries.

We extend our immense gratitude to the Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico in Milan and Dr Luigi Solimeno for their invaluable support and expertise.

🎥 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝘃𝗶𝗱𝗲𝗼 𝘁𝗼 𝗵𝗲𝗮𝗿 𝘁𝗵𝗲𝗶𝗿 𝘀𝘁𝗼𝗿𝗶𝗲𝘀 𝗮𝗻𝗱 𝗹𝗲𝗮𝗿𝗻 𝗮𝗯𝗼𝘂𝘁 𝘁𝗵𝗲 𝗶𝗺𝗽𝗮𝗰𝘁 𝗼𝗳 𝘁𝗵𝗶𝘀 𝘁𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝘃𝗲 𝘁𝗿𝗮𝗶𝗻𝗶𝗻𝗴. 🎥

18/07/2025

🌍 𝗘𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗔𝗰𝗰𝗲𝘀𝘀 𝘁𝗼 𝗕𝗹𝗼𝗼𝗱 𝗗𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀 𝗖𝗮𝗿𝗲 𝗶𝗻 𝗘𝗮𝘀𝘁 𝗔𝗳𝗿𝗶𝗰𝗮! 🌍

We are honoured to share our project impact report, showcasing the incredible results achieved through our collaboration with partners in Rwanda, Uganda, Tanzania, and Kenya. With the support of the Novo Nordisk Foundation and the Novo Nordisk Haemophilia Foundation, we have made significant strides in strengthening haemophilia and sickle cell disease care across the region.

🩸 2,246 individuals with haemophilia and 2,227 with sickle cell disease benefited from our initiatives
🔬 538 people retested or newly diagnosed
📍 28 centres established/strengthened
🩺 667 healthcare professionals trained
👥 600 youth empowered

The work that started in 2023 has led to a 28% increase in diagnosis rates and up to a 10-hour reduction in travel time for care. National treatment guidelines have been endorsed in Rwanda and Tanzania, and a Centre of Excellence has been established in Kenya.

And the work continues… This past Wednesday, representatives from partner countries, along with a special guest from India showcasing success stories, gathered to launch a new phase of cross-country collaboration. This initiative focuses on enhancing integrated care for haemophilia and sickle cell disease through care strengthening, awareness, and data-driven advocacy. Stay tuned for more updates. Exciting times ahead!

Our heartfelt thank you 🙏 to our partners, volunteers and funders who have helped achieve this!

We invite you to dive into our project report and discover more of the remarkable work of our partners to improve access to care:https://nnhf.org/wp-content/uploads/2025/07/NNHF_Report-East-Africa_v4.pdf

Together, we are building a brighter future for those affected by blood disorders in East Africa. 🤝🌟

30/06/2025

🌟Celebrating World Sickle Cell Day in Kilifi, Kenya, was an amazing experience! 🌟

At the event, led by the Ministry of Health, we proudly launched the programme “An Integrated Approach to Haemophilia and Sickle Cell Disease Care in East Africa,” supported by the Novo Nordisk Haemophilia Foundation (NNHF) and the Novo Nordisk Foundation (NNF).

The launch was graced by distinguished guests, including:
• Dr Issak Bashir, Director of Family Health, Ministry of Health, Kenya
• H.E. Flora Mbasa, Deputy Governor of Kilifi County, Kenya
• Dr Gladwell Gathecha, Head of the Division of Non-communicable Diseases, Ministry of Health, Kenya
• Prof Karanja Njoroge, Chairperson of the Board, Kenya Haemophilia Association
• James Opere, Chairperson of the Sickle Cell Federation of Kenya

The programme unites four countries: Kenya, Uganda, Tanzania, and Rwanda, with the aim of advancing care for haemophilia and sickle cell disease. Together, NNHF and its East African partners will support the establishment of joint treatment centres, screening activities, advocacy, awareness, training, and capacity building for healthcare professionals, as well as strategic engagement with key stakeholders. 📣🩺🔬

Excitingly, this initiative was launched alongside the KeTan Project by the Fondation Pierre Fabre, with whom NNHF collaborates closely. 🤝

Together, we’re making strides toward a healthier future for those affected by these conditions! 🩸🌍

19/06/2025

🌟 Breaking News from NNHF! 🌟

This World Sickle Cell Disease Day, we are excited to announce a new era for our partnership with the Novo Nordisk Foundation! 🎉🚀

Thanks to this expanded partnership, NNHF projects are set to quadruple the number of direct annual beneficiaries by 2030! 🌍💖

Our incredible journey with the Novo Nordisk Foundation started back in 2019, with co-funded projects in East Africa and India that are benefitting people living with haemophilia, sickle cell disease and thalassaemia.

📽️ Don't miss our short video showcasing how the co-funded project in India is supporting the country's efforts to strengthen integrated care for haemophilia and haemoglobinopathies.

Curious to learn more? Read the full announcement about our expanded partnership here: https://bit.ly/446Ctnf

Novo Nordisk Foundation National Alliance of Sickle Cell Organisations - NASCO National Thalassemia Welfare Society Hemophilia Federation India Thalassemics India

12/06/2025

🇸🇳 Our partners in Senegal proudly inaugurated the newly renovated Centre international de traitement de l’hémophilie at the Centre National de Transfusion Sanguine during our recent visit to Dakar! 🎉 This centre will bring improved diagnosis, care services and support for those living with haemophilia. 🩸💪

Congratulations to our partners, including Prof Saliou Diop, Abdoulaye Loum and everyone at the Association Sénégalaise des Hémophiles ASH, healthcare professionals and authorities. Your dedication has made this possible! 🙏

Thank you to our partners from Mali, Côte d’Ivoire, Guinea, and Benin for joining the event as part of a busy visit schedule of strategy building and advocacy planning. Together, we will strengthen haemophilia care across our nations - stay tuned to find out more! 🌍🤝

Association Beninoise des Hemophiles ABH et autres maladies du sang de Cote d'Ivoire Aguilhamh

11/06/2025

🌍 **Exciting Update from Abuja, Nigeria!**

Last week, we hosted a workshop during the 5th Global Congress on Sickle Cell Disease at the request of key stakeholders, to explore how the NNHF model of improving access to care can be applied to sickle cell disease.

Some of the key needs discussed included:

🔍 Co-ordinated and decentralised newborn screening programmes

💡 Comprehensive insurance coverage for people living with sickle cell disease

👩‍⚕️ Empowered healthcare professionals, particularly in primary care

Thank you to the representatives from the Federal Ministry of Health, National Health Insurance Authority (NHIA), Centre of Excellence in Sickle Cell Disease Research and Training (CESRTA) at the University of Abuja, patient organisations and other foundations who joined us.

06/06/2025

What an incredible two weeks our NNHF team spent in Zurich last month!

🎤 We had an amazing opportunity to facilitate a lively panel discussion with members of the NNHF Council, where we explored our partnership approach and shared valuable insights.

🏥 Our visits to University Hospitals in Zurich, Geneva, and Milan brought us together with international experts and project partners, and we're excited to apply our learnings in the field.

💡 With fresh perspectives in hand, our strategic discussions focused on how we can build on 20 years of impactful programmes at NNHF.

The team spirit was electric! It was hard to believe that this was the first time our entire team came together in person! 🤝

We’re thrilled to continue our journey impacting care. Together! Thank you to all of our partners who make all of this possible.

25/04/2025

𝐀 𝐁𝐞𝐚𝐜𝐨𝐧 𝐨𝐟 𝐇𝐨𝐩𝐞 𝐟𝐨𝐫 𝐏𝐞𝐫𝐬𝐨𝐧𝐬 𝐰𝐢𝐭𝐡 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐢𝐧 𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧!

We are proud to celebrate the successful inauguration of 𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧’𝐬 𝐟𝐢𝐫𝐬𝐭 𝐩𝐮𝐛𝐥𝐢𝐜-𝐬𝐞𝐜𝐭𝐨𝐫 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐓𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭 𝐂𝐞𝐧𝐭𝐞𝐫 (𝐇𝐓𝐂), a landmark achievement in specialized healthcare!

This center, made possible through the collaboration of 𝐂𝐡𝐢𝐥𝐝𝐫𝐞𝐧’𝐬 𝐇𝐨𝐬𝐩𝐢𝐭𝐚𝐥/𝐔𝐂𝐇𝐒, 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧 𝐨𝐟 𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧 (𝐇𝐅𝐏), 𝐍𝐨𝐯𝐨 𝐍𝐨𝐫𝐝𝐢𝐬𝐤 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧 (𝐍𝐍𝐇𝐅), and Roche Pakistan Limited, now provides 𝐚𝐜𝐜𝐞𝐬𝐬𝐢𝐛𝐥𝐞, 𝐥𝐢𝐟𝐞-𝐜𝐡𝐚𝐧𝐠𝐢𝐧𝐠 𝐜𝐚𝐫𝐞 for thousands battling hemophilia and related bleeding disorders. We aim for no more endless struggles—just 𝐡𝐨𝐩𝐞, 𝐡𝐞𝐚𝐥𝐢𝐧𝐠, 𝐚𝐧𝐝 𝐚 𝐛𝐫𝐢𝐠𝐡𝐭𝐞𝐫 𝐟𝐮𝐭𝐮𝐫𝐞!

The honorable Chief Guest praised this initiative as a testament to Government's commitment to equitable healthcare, while medical experts highlighted how this facility will transform lives through early diagnosis, proper treatment, and improved quality of care.

𝐓𝐨𝐠𝐞𝐭𝐡𝐞𝐫, 𝐰𝐞'𝐫𝐞 𝐭𝐮𝐫𝐧𝐢𝐧𝐠 𝐡𝐨𝐩𝐞 𝐢𝐧𝐭𝐨 𝐡𝐞𝐚𝐥𝐢𝐧𝐠 - 𝐛𝐞𝐜𝐚𝐮𝐬𝐞 𝐞𝐯𝐞𝐫𝐲 𝐥𝐢𝐟𝐞 𝐝𝐞𝐬𝐞𝐫𝐯𝐞𝐬 𝐭𝐡𝐞 𝐛𝐞𝐬𝐭 𝐜𝐚𝐫𝐞.

Novo Nordisk Haemophilia Foundation

08/09/2025

05/09/2025

02/09/2025

22/08/2025

29/07/2025

18/07/2025

30/06/2025

19/06/2025

12/06/2025

11/06/2025

06/06/2025

25/04/2025

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