18/07/2025
I was diagnosed with Autism & Social Anxiety Disorder/Social Phobia on September 12, 2016.
Though I didn’t know it, I have always been Autistic (I can see it in my earliest baby videos, and so could the doctor who diagnosed me). However, I did NOT always have Social Anxiety/Social Phobia (even though I’ve seen and heard many people say “social anxiety is typical for Autistic People”).
For me, social anxiety was a learned response, resulting from trauma. It was a phobia that grew increasingly worse the more negative encounters I had with people, until I became phobic of social engagements (due to repeatedly being poorly treated by people).
While it was easy for me to embrace the label “Autistic,” I struggled to claim my “Social Phobia” with the same enthusiasm.
Saying I had “social anxiety” felt like a miss.
This label “social anxiety” or “social phobia” made it sound like I was the problem, that I was to blame for my own fear of people.
I was also encouraged to socialize less (so as not to aggravate my condition, so I started to self-isolate) - a suggestion that didn’t address the systemic issues (and ignored the fact that I was afraid of engaging with people for good reason, because people had hurt me).
I developed social anxiety because I didn’t know how to determine if people were safe people (or not), and kept sharing with, getting close to, and being hurt by people (because I couldn’t sense what people were genuinely kind and actually liked me, vs those who were only “being nice” because they wanted something from me).
I didn’t need to isolate to avoid aggravating my phobia; I needed to find safe people and relationships so that I could heal my social relationship trauma (but I didn’t know how).
Excerpt from today’s Substack post.
Story: https://neurodivergentrebel.substack.com/p/i-was-diagnosed-autistic-at-the-age
This post is also on Patreon: https://www.patreon.com/posts/134429361