Victory Speech & Language Therapy, Cambridgeshire

24/08/2022

https://www.nhsconfed.org/news/urgent-action-needed-staff-shortages-children-face-missing-out-life-changing-treatments

NHS leaders are raising the alarm over chronic staff shortages in critical community health services.

07/07/2022

Let’s get sharing..

This will be a devastating blow to us all as well as future families..

Not Fine In School - Public Page - School Attendance Difficulties

29/06/2022

Neurodiversity and Hypermobility.

Now available to watch on our website, is a talk with Dr. Jessica Eccles, Clinical Senior Lecturer in Psychiatry (Honorary Consultant) (Neuroscience and Imaging) at Brighton and Sussex Medical School.

Dr. Eccles joined our London support group to discuss hypermobility and neurodiversity including ADHD and Autism. Watch this talk now, here: https://www.ehlers-danlos.org/information/online-support-group-meeting-hypermobility-and-neurodiversity-adhd-autism-dr-jessica-eccles/

Neurodivergent people are more than twice as likely as the general population to have hypermobile joints and are far more likely to experience pain on a regular basis, according to new research led by Dr. Eccles. Learn more: https://www.bsms.ac.uk/about/news/2022/02-02-neurodivergent-people-more-likely-to-experience-pain-due-to-hypermobility.aspx

23/06/2022

All councils also face new guidance on making spending on pupils with special educational needs and disabilities 'sustainable'

23/06/2022

Are you a parent of a young person aged between 13-17 years or a young person aged 18 who has been diagnosed with symptomatic hypermobility, hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD)?

If so, researchers at UCL Great Ormond Street Institute of Child Health really need yours and/or your child’s help with the important development of a new screening tool to help guide treatment pathways and monitor change. The new tool is called The Spider because there are 8 different symptom domains (parts). Four of these domains have already been successfully validated, and we are now aiming to validate the final four domains before publishing the tool. With this survey the researchers are testing the gastrointestinal, urogenital, neuromusculoskeletal and cardiac dysautonomia domains. The project has University College London ethics approval.

The researchers are trying to find more adolescents with bladder dysfunction/symptoms to complete a questionnaire.

Do you/your child meet the following criteria?

Adolescent aged 13 to 18 either:

With symptomatic hypermobility (without another diagnosis such as inflammatory arthritis, a neurological condition such as cerebral palsy, or an unrelated joint or muscle injury).
Without symptomatic hypermobility – this may be siblings or friends of those with symptomatic hypermobility

Able to understand and communicate in English.

Take part here: https://www.ehlers-danlos.org/studies/testing-a-new-screening-tool-to-assess-the-impact-of-hypermobility-in-young-people-3/

23/06/2022

Stop the Schools Bill - don't prosecute when children can't, not won't go to school!

22/06/2022

13/06/2022

The £60 penalty wasn't used much in lockdown - but now some children have a habit of missing school.

10/06/2022

10/06/2022

An increasing number of parents are being fined for their child’s non-attendance at school – amounting to £3.7 million in fines so far in this...

28/05/2022

Transitioning from one school year to another can be stressful for children. Taking the time to prepare them for the changes can make a big difference.

Things that can help:
Visiting the new classroom and meeting the new teacher
Video tours of the new learning environment
Photo books of the classroom and staff
Social Stories
Practising what to do if there's a problem
A Personal Passport with key info for the teacher
Providing opportunities for the child to ask questions
Listening to the child's concerns and taking them seriously

27/05/2022

On SNJ Today: Does the newly-updated Schools’ behaviour guidance consider the needs of children and young people with SEND. Alex Stafford of says they are likely to make mainstream education more difficult. Read more:https://wp.me/p3S8eh-7Q3

26/05/2022

Our next parent & carer webinar on toileting and how to support children's bowel and bladder health is happening on June 8th.

If your child is struggling with a wee or poo problem, this online event with our Helpline Team, will help you to understand what is going wrong and how to support your child to resolve and manage their toileting issues.

Book a space now by clicking on the link below.

https://www.eric.org.uk/Event/talking-about-wee-and-poo-8622

25/05/2022

2️⃣0️⃣2️⃣3️⃣ Conference on HSD! ⁠
⁠
We are delighted to announce the focus of our first event of 2023: Hypermobility Spectrum Disorders (HSD).⁠
⁠
The EDS ECHO Summit Series event will be a two-day virtual event that will take place on April 1-2, 2023, and is suitable for both healthcare professionals, and members of the community, their families, and caregivers. ⁠
⁠
The event will cover all aspects of hypermobility spectrum disorders with presentations from leading experts.

⁠Visit the link below to register your interest for this event. You will receive updates via email and will be notified when registration opens:
https://www.ehlers-danlos.com/events/register-your-interest-eds-echo-summit-hypermobility-spectrum-disorders-hsd-learning-conference/