Gracić Foundation e.V.

07/05/2026

07/05/2026

YBRP directors with representatives from the German and Spanish sister organizations

06/05/2026

05/05/2026

Iza svake rijetke bolesti… stoji jedno dijete.
A iza svakog djeteta… stoji porodica koja se bori svaki dan. ❤️

HNRNPH2 je rijetka bolest — ali izazovi su stvarni:
terapije, njega, neizvjesnost i svakodnevni teret.

Kao Gracić Foundation, tu smo da:
podržimo porodice 🤝
povežemo ih 🌍
i unaprijedimo istraživanja 🧬

Ali to ne možemo sami.

👉 Tvoja donacija može napraviti stvarnu razliku.

Svaka pomoć znači:
manje opterećenje za porodice,
više podrške
i više nade.

💛 Skeniraj. Doniraj. Pomozi.

Zajedno možemo napraviti promjenu.

05/05/2026

Hinter jeder seltenen Erkrankung… steht ein Kind.
Und hinter jedem Kind… steht eine Familie, die jeden Tag kämpft. ❤️

HNRNPH2 ist selten — aber die Herausforderungen sind real:
Therapien, Pflege, Unsicherheit und ein Alltag voller Belastungen.

Als Gracic Foundation sind wir da, um:
Familien zu unterstützen 🤝
sie zu vernetzen 🌍
und die Forschung voranzubringen 🧬

Aber das schaffen wir nicht alleine.

👉 Mit deiner Spende kannst du wirklich etwas verändern.

Jede Unterstützung hilft,
Familien zu entlasten,
Zugänge zu ermöglichen
und Hoffnung zu geben.

💛 Scannen. Spenden. Helfen.

Gemeinsam können wir einen Unterschied machen.

05/05/2026

Behind every rare disease… there is a child.
And behind every child… there is a family fighting every single day. ❤️

HNRNPH2 is rare — but the challenges are real:
therapies, care, uncertainty, and constant support.

As the Gracic Foundation, we are here to:
support families 🤝
connect them 🌍
and push research forward 🧬

But we can’t do this alone.

👉 With your support, we can make a real difference.

Every donation helps families access support,
reduces financial burden,
and brings us one step closer to better care and future therapies.

💛 Scan. Donate. Help.

Together, we can give hope where it is needed most.

05/05/2026

What an inspiring and powerful time in Brighton 🇬🇧

Families from all over Europe — and beyond — came together to connect, share, and support each other. ❤️

Seeing familiar faces again and meeting new families reminded us:
we are not alone.

We had the opportunity to learn from incredible scientists and doctors,
including the team around Jennifer Bain,
who are working tirelessly to better understand HNRNPH2 and develop future therapies. 🧬

A big thank you to Trish, Stacy, and the entire organizations team for creating such a meaningful and well-organized meeting. 🙏

The message is clear:
we need to work closer, stronger, and faster — together.

Because behind every rare disease, there is a family.

And together, we can make a difference.