Help Little Ayah

26/08/2023

10/10/2022

Finally! No child born in Denmark will have to face the challenges Ayah and those before Ayah faced.

With the available treatments, early diagnosis is KEY.

22/09/2021

It is with utmost joy to announce that Ayah got Zolgensma on Monday the 20th of September 2021.

We could not have done it without your support. From sharing, talking about Ayah, donating and every simple mode of spreading the word.

We say thank you and as Ayah says ‘Tak’.

********************

Det er med kæmpe glæde, lettelse og håb for fremtiden, vi kan fortælle at Ayah mandag den 20. september 2021 endelig fik Zolgensma.

Vi kunne ikke have gjort det uden jeres støtte. Fra deling af opslag, omtale af Ayah´s historie, donationer og jeres hjælp med at sprede budskabet om indsamlingen til Ayah´s behandling med Zolgensma.

Tusind tak!!!

16/09/2021

Angel Flight Northeast] is so blessed to be part of beautiful .ayah journey from Copenhagen, Denmark to Medical City Children's Hospital in San Antonio, TX for treatment of Spinal Muscular Atrophy. With the generous support of the Alexion Charitable Foundation that supports patients with rare & ultra-rare diseases, our mission coordination team worked for several weeks to book commercial flights for Ayah and her family to travel safely the 5,300 mile journey.

Thank you Angel Flight Northeast] 🙏🏾 and as Ayah say’s Tak. We are truly grateful.

31/08/2021

After 33 weeks of sleepless nights and tears, we are here!!! We want to thank God for bringing us this far, for blessing us immensely even when we fall short of His glory, for guiding us and getting us here. For health and wealth.

To our family and friends… You were the very first to know, we requested for your support, and you went all out for us, you fought for Ayah like your own, even when the world didn't know about SMA or couldn't fathom a single treatment could cost millions of dollars!!...
Thank you for standing with us and helping us create a network and a community! 💜💜
You went ahead and formed Ayah support groups in Kenya, Denmark, all over Europe, and the US. Then most of you transitioned to Keyboard warriors who have been the true definition of resilience and support. Thank you for the endless meetings, strategizing, researching, tagging/dm’ing/posting, that helped us reach and connect to influential people and made Ayah's story reach more kind souls around the globe. God bless you.

To the management: A team of ten ladies and gentlemen that made sure that everything was in place even before we could come out. Thank you for donating your skills, time, and money to make sure that the Ayah Mithika Lundt Foundation is what it is today 💜💜

To all the people handling donations @ and , thank you so much for honouring our trust and making sure that each penny donated is accounted for.💜

Thank you to the media houses that have been on the forefront fighting for us: From Tuko, Tv2 Bornholm and CNN and all the other media houses that carried our story...we will never forget the role you played in getting us here💜

Our moderators: and thank you for the sleepless nights you spent to make sure that we got here…may God bless you immensely.

Our celebrities, DJs, media personalities and influencers: Kenyan, Danish and international, thank you for your donations, joining our lives, bringing your friends on board and walking this journey with us as Ayah's community.

To the churches, thank you for the spiritual and the financial support💜

To the businesses and the individuals that donated your expertise, products, and time to raise money for Ayah’s treatment, we thank you. 💜💜

And most of all, to you our dear donors, we did it, all because of you!! we wish we could thank you in person, for every shilling, or dollar that you offered for our child to be treated, for every prayer, kind thought and moral support you gave. You made the impossible possible! Thank you for being Ayah's angels. None of this would have been possible without your incredible outpouring of generosity and support! You have shown us the true meaning of a community💜
Love,
Ayah $ family.

12/08/2021

12/08/2021

Vi har gode nyheder! 🤩
Måned efter måned har vi rakt ud til hospitaler over hele verden, og nu er det endelig lykkes at få et bedre tilbud på behandlingen af Ayah. US-San Antonio Hospital.

Vores nye mål er nu 13,850.000 millioner. Vi har indtil videre indsamlet 13.333.012 millioner kroner. Det betyder at vi er endnu tættere på målet og nu "kun" mangler 509.987 kr for at kunne betale Ayah's behandling.

Det er helt fantastisk og et rent mirakel at vi er så langt. Men vi har stadigt brug for hjælp for at lykkes.

Hvis vi kan lykkes med at få 10.000 personer til hver at donere 50kr, så er Ayah på vej til USA!

Hjælp os! Del med venner, familie, kolleger, sportsklubben, hvem som helst. Jo flere vi når ud til, jo større håb om at nå det.

Du kan donere både via GoFund https://gofund.me/825d7475 og MobilePay 463363. Læse mere: https://www.helpayah.dk/

Ayah's forældre 👨‍👩‍👧‍👧😊

Please scroll down for the English version VORES HISTORIE Dette er Ayah (født den 15.01.20),… Kathure Mithika needs your support for Together for Little Ayah

04/08/2021

Dear all,
Here is the story of our happy bubbly daughter Ayah. She likes to sing, tell stories and her favorite word is ‘Thank You. Ayah was also born with Spinal Muscular Atrophy disease (SMA), which causes her muscles to degenerate, affecting both her internal and external organs.

At 18 months, she cannot sit unassisted for long, and neither can she crawl or stand. Fortunately, there is a treatment for this very rare disease, called Zolgensma, but it also happens to be the most expensive drug in the world. For the medicine and the treatment, we need to raise 2.4 million USD. Since January this year, we have raised about 85% of the total needed through the help of well-wishers and we are only remaining about 360,000 USD.

Please join us in our race against time, as Ayah needs to be treated before she turns 2 years old. Any contribution however big or small is welcome.

Kindly donate whatever you can to this GoFundMe link. https://gofund.me/b5baebbe

For more information about Ayah please read more at helpayah.dk or follow us on Instagram .ayah or our Youtube Channel at Ayah Lundt
Thanks for your support.

I'm Kati Wilkins, and recently a dear friend from my days living in Sweden re… Kati Wilkins needs your support for Extraordinary Medical Costs for Little Ayah

30/07/2021

God is great!! We are getting there..slowly but surely.

Have you invited five friends to the marathon? Let's gear up and finish this strong because we can.

August is SMA awareness month..let's do this harder than before..we can see the finish line.

25/07/2021

''Jeg kan ikke med ord beskrive, hvordan det føles at se sit barn få frataget sin fremtid på den måde'' Ayah's far... Politiken

https://politiken.dk/debat/debatindlaeg/art8294357/%C2%BBJeg-kan-ikke-med-ord-beskrive-hvordan-det-f%C3%B8les-at-se-sit-barn-f%C3%A5-frataget-sin-fremtid-p%C3%A5-den-m%C3%A5de%C2%AB

Ayah på 18 måneder kan reddes fra en dødelig sygdom med den rette medicin. Men den er dyr, og Medicinrådet vil kun godkende den til børn under seks måneder.

23/07/2021

Where we are as of today. Thanks to you all who are donating🙏..we will not be here without you. We are getting closer to our goal. 🤗

16/07/2021

Thank you Friends of Ayah. We are so close to reaching our goal 🥳🥳

We are now at 83.5%. Please continue donating.

GoFundMe links on our bio

Kenyan Paybill:80 30 789 acc: Ayah
Taptapsend/sendwave/remit: +254701 377 681
Name: Mary Kathure Mithika
PayPal: toninzomo@yahoo.com
Denmark MobilePay: 463363 Cashapp: $wagana

           

11/07/2021

Do you love art painting? Today, sunday, we are having an auction of various paintings that have been donated towards Ayah's treatment. Please join us at our Instagram account .ayah at 5pm Danish time/6pm Kenyan time. Some of the paintings are from know artist like sheilahsheldone and German artists. We look forward to hosting you.

10/07/2021

Tusind tak WebMD Health News for at bringe historien om Ayah.

Vi er kommet helt utroligt langt med indsamlingen til Ayah's behandling, som kan give hende chancen for et liv uden kørestol og hjælp til alt, døgnet rundt. Og ikke mindst mulighed for at overleve sin egen barndom. Desværre er tiden også gået, og snart rammer Ayah aldersgrænsen for at modtage behandlingen. Og vi er ikke i mål.

Lige nu føles det som en lang ørkenvandring med alt for langt mellem vandposterne, og vi har desperat brug for hjælp til at komme det sidste stykke vej.

######x English text below #########x

Thank you so much Health News for writing the story of Ayah.

We have come an incredible way with the fundraising for Ayah's treatment, which can give her the chance for a life without a wheelchair and needing help with everything 24/7. And to have a normal childhood. We are running out of time, and Ayah is soon reaching the age limit of 2 years to receive the treatment.

Right now it feels like we are stagnant and a long way to go before we reach the goal. We desperately need your help to help us reach the finish line. Thank you for your continued support.

To donate use the below methods:

DK- MobilePay 463363
US: GoFundMe https://gofund.me/b5baebbe
KE: Safaricom PLC+254701377681 name Mary Kathure Mithika
Paybill: 8030789 name Ayah



https://www.webmd.com/children/news/20210709/world-rallies-for-little-girl-to-purchase-2-1-million-drug

A young girl with spinal muscular atrophy receives tremendous support in the race to purchase the drug Zolgensma before she turns 2.

09/07/2021

Our updates on the fundraising. We are getting closer to our goal🤞. We deeply appreciate all the donations received. Thank you 🤗.

To donate please use the below methods:
DK- MobilePay 463363
US: GoFundMe https://gofund.me/b5baebbe
KE: Safaricom PLC +254701377681 name Mary Kathure Mithika
Paybill: 8030789 name Ayah

06/07/2021

Thank you, Jabra for donating 5- Jabra Elite Active 75t wireless headsets for supporting Ayah's cause.

We will pick 5 random lucky participants of "Run for Ayah" when the event ends on the 31st of July.

Please join the global virtual run to fundraise for Ayah. The minimum participation fee is $25. With your support, Ayah is a step closer to receive the urgent medication she needs, before she turns 2 years in January 2022. Please find the details on how to participate and register https://helpayah.jmvirtualraces.com/

Thank you to all the participants. Run for Ayah!

23/06/2021

Løb mod tiden - løb for Ayah!

Virtuelt løb fra 26. juni - 31. juli.

Deltag når det passer dig, og hvor det passer dig, uanset hvor i verden du er. Vær med til at give Ayah en chance for selv en dag at komme til at både gå, løbe og cykle.

Det koster 200 kr (25$) at deltage, og pengene går direkte til Ayah Lundt Fonden og Ayah´s behandling. Kan vi nå op på 22.000 deltagere, kan Ayah være ombord på det næste fly mod Boston, hvor hun kan få den behandling hun har brug for.

Vær med til at give Ayah en chance for selv en dag at komme til at både gå, løbe og cykle - deltag sammen med os den 26. juni- 31 juli.
https://helpayah.jmvirtualraces.com/

Join us for this fully-immersive virtual race event and raise funds for the cause!