Egyptian Hemophilia Forum

Egyptian Hemophilia Forum الصفحة الرئيسية I الملتقى المصرى لمرضى الهيموفيليا We ar We usually use the words "bleeding disorder" and not "disease."

يهدف هذا الملتقى الى:-
-نشر الوعى بضطرابات النزف الوراثية
-العمل من أجل تضافر الجهود وذلك للنهوض بالرعاية الطبية المقدمة لمرضى الهيموفيليا
-هدفنا الأسمى هو توفر العلاج للجميع .
والله من وراء القصد.
لمزيد من المعلومات والاقتراحات نرجو التواصل عبر خدمةالرسائل المدرجة فى الصفحة . The word "disease" makes people think of being sick and feeling bad. People with bleeding disorders usually feel fine. Their blood just doesn't work the way it is supposed to

for more information or suggestions please send us a message.

24/10/2025

Thinking about physiotherapy for hemophilia? Learn how it can help here: https://bit.ly/4kgZxGs

Physiotherapy plays a key role in managing hemophilia-related joint and muscle issues. Learn about exercises, benefits, and finding the right therapist.

First Oral FVIII Mimetic Treatment for Hemophilia A
03/10/2025

First Oral FVIII Mimetic Treatment for Hemophilia A

Wolfgang Miesbach: Jan Astermark at the BIC 2025 Presented Potentially the First Oral FVIII Mimetic Treatment for Hemophilia A

30/09/2025

Struggling with joint pain from hemophilia? Find relief strategies and advice here: https://bit.ly/43oZe5v

Joint pain is a common and challenging symptom of hemophilia. Discover strategies for pain management, physical therapy, and maintaining joint health.

26/09/2025

💡 Pain Awareness Month

Managing a complex and rare disease like a bleeding disorder can be physically debilitating. That’s why maintaining a healthy lifestyle is so critical. 💪

We’ve gathered resources on nutrition and movement to help you better manage your bleeding disorder and overall health.

🔗 Explore the list here: https://hubs.li/Q03Kk1N30

16/09/2025
19/08/2025
14/08/2025

📅Save the date! The WFH and the Hemophilia Society of Malaysia invite you to the WFH 2026 World Congress, happening April 19–22, 2026, in ! 🌏 Join the global community—healthcare professionals, PWBDs, NMOs, researchers, advocates, and industry leaders—for the largest and most comprehensive event of its kind in 2026. Learn more: https://bit.ly/3Jqp9TN

14/08/2025
25/07/2025

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