European Aniridia Conference

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European Aniridia Conference

The European Conference is the biennial scientific event dedicated to the genetic rare dis

05/08/2024

�We are excited to announce you, that all the recordings of the 7th European Aniridia Conference 2024 are available on Aniridia Europe’s YouTube channel! Thanks to a great job of our volunteers that recorded and edited all the videos! You can find them here��https://www.aniridia.eu/2024/07/31/recordings-of-the-7th-european-aniridia-conference-2024-available/

21/06/2024

Let’s mark Aniridia Day and create a collective impact ! Here are a few ways you can join us in this campaign: Support AE projects, consider participating in research trials, raise awareness, volunteer. WE CAN DO IT TOGETHER! 👉https://www.aniridia.eu/about-us/support-us/

11/06/2024

We are pleased to present the 7th European conference summary for patients, meticulously prepared by Prof. Neil Lagali. This conference has been exceptional and immensely valuable, and we continue to share its results ! Additionally, conference recordings will be available in the next few weeks on AE youtube channel.
You can read a summary here: https://www.aniridia.eu/2024/06/11/summary-of-the-european-aniridia-conference-available/

02/06/2024

European Aniridia Conference 2024.

02/06/2024

The 7th European Aniridia Conference ends here.

There were a lot of topics diiscussed, great conversations and also some advices for professionals.

🙏Thanks to all specialists, medical doctors, professors and patients who have contributed to this edition of the .

“The next European Aniridia Conference will be in Bulgaria! See you in 2026!”.

02/06/2024

“Today, from the researches stats we know we have more than 8K people with Aniridia all over the world”. At the European Aniridia Leadership Academy, during the 7th European Aniridia Leadership Academy, Ivana Kildsgaard, President of Aniridia Sweden and Aniridia Europe Board Member, and Barbara Poli, President of Aniridia Europe – Introduction, talks about the importance of research and kowledge about scientific, clinical and also genetical topics.

02/06/2024

From Graffiti style project to a long weekend to share experience and from a sports day for visual impaired people to a project management workshop, the young leaders who attended the first edition of the European Aniridia Leadership Academy, during the 7th European Aniridia Conference, in Stockholm, Sweden, give and present a lot of good ideas to build together.

Find out more: https://aniridiaconference.org/eac2024/academy/

02/06/2024

“When you present yourself to someone raise your voice, make a solid shaking hands and listen to him/her, getting more information you can and showing as much interested as possible in knowing more about the other person in front of you”. At the European Aniridia Leadership Academy, during the 7th European Aniridia Conference, in Stockholm, Sweden, Matteo Castelnuovo, journalist, communication manager, Vice President at Aniridia Italy and Digital team Leader at Aniridia Europe, gives some advice of public speaking and professional networking.

Find out more:

02/06/2024

Take home message from prof. Tor Paaske Utheim, MD, Oslo university hospital, Norway concerning dry eye disease at the last day of 7th European Aniridia conference in Stockholm

02/06/2024

“Leading on accessibility, enabling success
When we discuss accessibility today, our thoughts instinctively turn to the
digital realm. This immediate association is made possible by the
interconnectedness facilitated by the Internet, smartphones, tablets, PCs,
and the broader digital landscape, alongside the myriad devices
propelling our world forward”. At the European Aniridia Leadership Academy, during the 7th European Aniridia Conference, James Buller, Accessibility Consultant and Aniridia Network trustee, explains how to manage in the best way possible all the common situation happening in a day thanks to the usage of technologies and digital devices.

Find out more: https://aniridiaconference.org/eac2024/academy/

02/06/2024

“Please, you never think you are wrong or you’re not enough. You’re right as you are and this is what matters”. At the European Aniridia Leadership Academy, during the 7th European Aniridia Conference, in Stockholm, Sweden, Sølvi Ørstenvik, Aniridia Norway Board Member, Katie Atkinson, President of Aniridia Network and AE Board Member, talks about what could be the best approach to manage the situations when you are a visual impaired or blind individual.

02/06/2024

“ Sutureless AMT are a promising tool for specialised care - potentially prevent Aniridia-Associated OSD
progression” conclusion by prof. Andrew Hopkinson, University of Nottingham, UK

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http://www.aniridiaconference.org/

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