02/09/2020
Taas on aika tuoda Dystoniaa esille 🤗 itsekin ajattelin kantaa korteni kekoon ja laitan tänne sivuilleni tietoiskuja aina kun inspiraatio iskee. Te voisitte kuitenkin auttaa mua! Laita sähköpostiin mimmin.fysio@gmail.com kysymys/mitä haluatkin lyhyesti ja julkaisen sen täällä facebookissani ja/tai instagramissani. Kysymyksiin pyrin vastaamaan 😊 Instasta löydät 🌻
September is finally here!!! We are once again celebrating and acknowledging Dystonia Awareness Month and we are excited to share a full month of fun activities and interesting/educational content. 2020 has been a year that has introduced us to , closed borders, and in many countries complete lockdown. But out of physical separation, has grown a new sense of community... Community in families that are used to spending most of their days apart. Community in our neighborhoods, villages and cities, as locals have done their best to support each other, save jobs, and businesses. Community on a global scale, as nobody has gone unaffected by this global crisis.
Within Dystonia Europe we have seen our community grow, to include even more followers and supporters, from around the world. No matter where we are from, what language we speak, what hobbies we choose, or what food we eat, we are all in this together! That is why we felt that this is no better time than to bring our growing community together for . This year we will be sharing real stories from around the world, spotlight research, and people on the frontier of treating and managing Dystonia under the hashtag ...
We can't wait to share all of the content and activities that we have planned for this year!!! Here's a list of the content you can expect...
- - educational posts highlighting a specific condition or treatment
- - interviews with top experts about dystonia
- - relatable quotes when living with dystonia
- - real stories from real people living with dystonia
- - we are relaunching the JUMP challenge. Submit your jump picture between Sep1-Sep31 and get a chance to win up to €500!!!
- - a podcast about dystonia. In each episode we interview an expert, a patient or a caretaker. They tell their story, always ending with a positive twist 😉
You can join in raising awareness, simply by liking, commenting and sharing the Dystonia Europe's posts. As an orphan disease we need all the help we can get. Let's do this!!!🧡💪