EuroBloodNet - European Reference Network on Rare Hematological Diseases

14/04/2026

🚨​Last chance to register for the upcoming session of the Focus on Genetic Therapy for people living with !

Tomorrow at 17:00, don’t miss the fourth session: "Genome Editing: CRISPR/Cas9 Advanced Tools and SCD – Using New Methods."

🔗​Register now and take the opportunity to learn from leading experts: https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/4/session-4-genome-editing-crispr-cas9-advanced-tools-and-scd-using-new-methods

10/04/2026

👉 Group Discussions at 2026! All those planning to attend ECRD 2026 in-person are invited to submit proposals for small-group discussion topics.

This is a unique opportunity to help shape meaningful conversations and foster collaboration across the rare disease community. Selected contributors will have the chance to moderate a group discussion on their proposed topic during a dedicated in-person networking session, taking place on 3rd June.

🗓️ Deadline: 17 April 2026
🔗 https://www.rare-diseases.eu/groupdiscussions/

09/04/2026

📢 Fresh news! The ERN-EuroBloodNet monthly newsletter is out now!

Stay up to date with the latest news and updates on rare haematological diseases and don’t miss any upcoming events and opportunities.

👉 Subscribe now: https://eurobloodnet.eu/newsletter/

07/04/2026

🚨Last chance to register! Don’t miss the 7th session of the Inherited Platelet Function Disorders series.

🩸Register now: https://eurobloodnet.eu/education/topic-on-focus-webinars/inherited-platelet-function-disorders/8/session-7-diagnostic-and-management-of-dense-granule-deficiency-including-hermansky-pudlak-syndrome

31/03/2026

🚨​Only two weeks left until the 4th webinar session of the EDITSCD & ERN-EuroBloodNet program on Genetic Therapy for People Living with Sickle Cell Disease!

Register now! https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/

🎞️​Missed the previous sessions? Watch them all on our YouTube channel: https://www.youtube.com/playlist?list=PLpldFGPsMHrl64SoC7feIzIIx6SKFC7UG

27/03/2026

✴️Yesterday, Dr María del Mar Mañú Pereira, Scientific Coordinator of ERN-EuroBloodNet and current Vice-Chair of the 24 , partcicipated in the High-level conference on Patients’ Rights and the European Reference Networks in the European Union.

She contributed to Interactive Forum III: “Let’s talk about the European Reference Networks for Rare Diseases: success stories and future opportunities”, where one message emerged clear: 𝙀𝙍𝙉𝙨 𝙖𝙧𝙚 𝙣𝙤𝙩 𝙥𝙧𝙤𝙟𝙚𝙘𝙩𝙨, 𝙩𝙝𝙚𝙮 𝙖𝙧𝙚 𝙖 𝙛𝙪𝙣𝙙𝙖𝙢𝙚𝙣𝙩𝙖𝙡 𝙥𝙞𝙡𝙡𝙖𝙧 𝙤𝙛 𝙀𝙪𝙧𝙤𝙥𝙚’𝙨 𝙞𝙣𝙛𝙧𝙖𝙨𝙩𝙧𝙪𝙘𝙩𝙪𝙧𝙚 𝙛𝙤𝙧 𝙧𝙖𝙧𝙚 𝙙𝙞𝙨𝙚𝙖𝙨𝙚𝙨.🌍​

This important event, featuring the participation of European Commissioner Olivér Várhelyi, brought together representatives from all 24 European Reference Networks, National Contact Points, and leading experts from across Europe.

European Commission

26/03/2026

📣​The European Commission is looking to engage advanced healthcare organisations that deploy, pilot or evaluate solution in prevention, early detection and diagnosis of cancer or cardiovascular diseases.

This call for expression of interest is meant for healthcare organisations who would like to join the network of European AI-powered advanced screening centres under the Apply AI strategy. The call is open until 10 April.

🔗Find out more:

The European Commission is looking to engage advanced healthcare organisations that deploy, pilot or evaluate AI solution in prevention, early detection and diagnosis of cancer or cardiovascular diseases.

23/03/2026

📣​Register now for the fourth webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.”

🔗Join us to better understand how innovative therapies are moving from lab to clinic, and what they could mean for the future of care! https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/

Missed the previous sessions? Watch them all on our YouTube channel:

​🔶​Session 1: Introduction to Sickle Cell Disease ( ) and Gene Therapy

https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/1/session-1-introduction-to-sickle-cell-disease-scd-and-gene-therapy

​🔶​Session 2: Basics of Gene Therapy with Lentiviral Vectors

https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/2/session-2-basics-of-gene-therapy-with-lentiviral-vectors

🔶​Session 3: Genome Editing: CRISPR/Cas9 and SCD - How It Works and Its Uses.

https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/3/session-3-genome-editing-crispr-cas9-and-scd-how-it-works-and-its-uses

18/03/2026

🚀​Are you ready to explore the cutting-edge world of Artificial Intelligence in hematology?

ERN-EuroBloodNet and SYNTHEMA are proud to launch a joint educational program on AI, designed for both the public-at-large and expert audiences.

The program aims to increase awareness and understanding of cutting-edge AI approaches in hematology, with a particular focus on synthetic data generation and federated learning methodologies, demonstrated through two clinical use cases: Acute Myeloid Leukemia (AML) and Sickle Cell Anaemia (SCA).

🎓 Registration is now open! Secure your spot to access this unique opportunity to learn from leading experts.

🔗 Learn more about the program content and featured speakers here:
https://eurobloodnet.eu/education-2/ern-eurobloodnet-synthema-educational-program/synthema-ern-eurobloodnet-educational-program/

European Hematology Association European Commission EURORDIS-Rare Diseases Europe

17/03/2026

🗣️​Patients’ rights in cross-border healthcare and the European Reference Networks

Join Olivér Várhelyi , European Commissioner for Health and Animal Welfare, on 26 March for a high-level conference bringing together representatives from the 24 European Reference Networks, National Contact Points on cross-border healthcare, and leading European experts.

We are proud to announce that María del Mar Mañú Pereira, Scientific Coordinator of ERN-EuroBloodNet, will contribute to Session 3 of the program in her role as Vice-Chair of the TRIO of the 24 ERNs.

🔗Discover more and register to attend either on-site or online:

https://eurobloodnet.eu/news/716/high-level-conference-on-patients-rights-and-the-european-reference-network-in-the-european-union

17/03/2026

🚀​Register now for the Session 6 of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders!

​This accredited program is designed for healthcare professionals and is organized by ERN-EuroBloodNet, in collaboration with Centre de Référence des Pathologies Plaquettaires (CRPP) & Filière de santé maladies rares MHEMO.🤝​

🎯The main objective of the program is to disseminate up-to-date knowledge among hematologists, pediatricians, internists, clinical pathologists, and other health care professionals involved in the diagnosis and care of patients with .

Register now! https://eurobloodnet.eu/education/topic-on-focus-webinars/inherited-platelet-function-disorders/7/session-6-inherited-thrombocytopenias-associated-with-platelet-dysfunction-nbeal2-and-others

12/03/2026

📢​Not registered yet? Don’t miss today’s session of our Thursday Webinar Series!

Join us for a session on von Willebrand factor and von Willebrand disease in ageing: mechanisms, evolving phenotypes and clinical implications.

👉​Register now! https://eurobloodnet.eu/education/thursdays-webinars/69/von-willebrand-factor-and-von-willebrand-disease-in-ageing-mechanisms-evolving-phenotypes-and-clinical-implications