19/06/2025
🩸June 19th is , and to mark the occasion, ERN-EuroBloodNet & RADeep Network are proud to launch a 2-minute animated video 𝗰𝗼-𝗰𝗿𝗲𝗮𝘁𝗲𝗱 𝘄𝗶𝘁𝗵 𝗮𝗱𝗼𝗹𝗲𝘀𝗰𝗲𝗻𝘁𝘀 𝗮𝗻𝗱 𝘆𝗼𝘂𝗻𝗴 𝗮𝗱𝘂𝗹𝘁𝘀 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗦𝗖𝗗 𝗮𝗰𝗿𝗼𝘀𝘀 𝗘𝘂𝗿𝗼𝗽𝗲.
Its aim? To raise awareness on the emotional and systemic challenges of transitioning from pediatric to adult care—a process that’s often abrupt, unsupported, and deeply misunderstood.
🧭In pediatric care, support systems are community-based, relational, and proactive. In adult care, everything is more individualized, fragmented, and clinical. Young people often go from being accompanied… to being alone.
🚑 And if they’re not followed in a dedicated SCD center, many struggle to find competent care, risking misdiagnosis, stigma, or under-treatment in emergency settings.
💡Transition isn’t just about patients.
It also requires preparing parents, who must learn to step back while continuing to support their children’s growing autonomy. This emotional shift can be as complex as the medical one.
➡️ For healthcare professionals, a well-transitioned patient is more empowered. When patients understand their disease and care path, the doctor-patient relationship strengthens and outcomes improve.
🎥 This video tells their story. It was shaped in the ERN-EuroBloodNet patient workshop held during 2024 and coordinated by Mariangela Pellegrini.
🌍 Available in 8 languages (Dutch, English, French, German, Italian, Polish, Portuguese, and Spanish) to reach and reflect the diversity of voices across Europe.
▶️ Watch the full multilingual playlist on YouTube: https://www.youtube.com/playlist?list=PLpldFGPsMHrkxflcq9hlLodrGLuT3_itK
Let’s listen, amplify their voices, and reimagine the path to adulthood for young people with SCD!
Mariangela Pellegrini European Commission European Hematology Association
