Epodin

16/01/2025

🚨 Save the Date! 🚨

📅 On January 23, 2025, at 16:00 CET, join us for the webinar "Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies"

🎤 Hear from Dr. Filip Eftimov (Amsterdam University Medical Centers) and Jean-Philippe Plançon (EPODIN) as they tackle critical topics like diagnostic tools, chronic inflammatory neuropathies, and patient advocacy.

👉 Don’t miss this opportunity to learn and connect. Register Here
https://ern-euro-nmd.eu/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/

The webinar is the first of a series promoted by ERN Euro NMD

  …TIMESLOT: Thursday 23 January 2025 16:00 CET …THEME: Challenges in the diagnosis and treatment of Inflammatory Neuropathies …PRESENTERS: Dr. Filip Eftimov (Amsterdam UMC, the Netherlands) and Jean-Philippe Plançon (EPODIN) Filip Eftimov is a neurologist at the Amsterdam University Medical...

16/01/2025

🌟 Interesting Webinar Series Alert! 🌟

Join the EURO-NMD Webinar Series on Dysimmune and Inflammatory Neuropathies, running from January 23 to March 27, 2025. Learn more about diagnostic challenges, treatment advancements, biomarkers, and patient quality of life.

🎤 Featuring top experts in the field and a Q&A finale where your questions take center stage

📅 More information and registration https://ern-euro-nmd.eu/breaking-news/euro-nmd-webinar-series-on-dysimmune-and-inflammatory-neuropathies/

The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar series dedicated to Dysimmune and inflammatory neuropathies. This seven-episode series brings together clinicians, researchers, and patients to discuss a range of neuropathies and address key topics, includin...

19/11/2024

Incentivizing the European market is a key issue to fight against supply chain shortages.

In this regard, the Critical Medicines Act will be an essential tool. Shortages may pose patients life at risk and we collectively should share the responsibility to stop this.

EPODIN, as a member of the Critical Medicine Alliance, is fully mobilized on this issue.

19/11/2024

Day 1 at the Summit in Brussels, the opportunity to meet many relevant stakeholders involved in health at the European level and to highlight the actual and future health challenges in the European area.

Stella Kyriakides, commissioner for Health and Food Safety during the opening session talked about European citizens expectation, shortages and the absolute necessity to work on the question of equity.
This is precisely what we fight for within EPODIN: To give the opportunity for each patient to reduce the burden of Dysimmune Inflammatory Neuropathies

11/10/2024

For people affected by Guillain-Barré Syndrome, immunoglobulins are a life-saving therapy that can stop the progression of paralysis before it becomes potentially fatal.

For individuals with chronic dysimmune neuropathies (such as CIDP, MMN, LSS, MFS, and others), immunoglobulins are the first-choice treatment to ensure a good quality of life.

Without plasma donors, people with dysimmune inflammatory neuropathies - - wouldn't be able to receive the necessary care.
That's why we have participated in the International Plasma Awareness Week to underline the need of increasing knowledge about plasma donation worldwide.

Now that the campaign has come to an end, our commitment remains strong. We will continue to advocate for plasma donations, ensuring that everyone has access to the treatment they need.
And, in the meanwhile, as always: Thanks to donors

10/10/2024

The human kindness heals humankind.
Share your healing power, donate plasma.

Thanks 💛

International Plasma Awareness Week - Day 4

09/10/2024

Whatever you see, please donate.
Thanks 💛

International Plasma Awareness Week - Day 3

08/10/2024

Human is the treatment for a large number of pathological conditions, included Dysimmune Inflammatory Neuropathies ( )
Among the , are the most requested and therefore constantly subjected to shortages.

Immunoglobulins demand has been constantly increasing for nearly a decade and it is considered «the main cause of the worldwide in both private and public sectors».

According to a paper published in October 2023, «there is an estimated 38% deficit of plasma in Europe, which is equivalent to 4–8 million litres of blood plasma. This implies that around 2–4 million extra are needed from donors who donate their whole blood at least twice a year or their plasma five times per year» (Vox Sanguinis, The International Journal of Transfusion Medicine https://onlinelibrary.wiley.com/doi/10.1111/vox.13540 )

Today is the second day of the the campaign held by Plasma Protein Therapeutics Association (PPTA) to raise global awareness about source plasma collection, recognize the valued contributions of donors, and increase understanding about plasma protein therapies and rare diseases.

07/10/2024

What is and why is it so vital for people living with rare conditions such as ?

We start the International Plasma Awareness Week taking you back to basics with a new section on our website dedicated to
https://www.epodin.org/plasma-donation/

Have a look and, please, donate. Thanks 💛

27/07/2024

Human beings may be chronically ill but, they remain chronically fabulous. Ever.

Thanks to extraordinary Celine Dion for reminding it to all of us.
Thanks for her invaluable testimony in behalf of the many who, like her, suffer for rare, autoimmune neuromuscular diseases - and remain fabulous too

Céline Dion a produit l'ultime show de la cérémonie d'ouverture des Jeux Olympiques de Paris 2024, ce vendredi depuis la Tour Eiffel. La chanteuse canadienne...

22/07/2024

August is still the month during which many Europeans take their summer leave.
It is also the period of the year when reach their lowest and this will have an impact on the long-run for those relying on derived treatments to keep going with their lives.

So please think about before packing your suitcase, go and donate!
It is easy and safe.
Thanks 🙏

You find more about Dysimmune Inflammatory Neuropathies ( ) and plasma-derivated treatment on our website at https://www.epodin.org

17/07/2024

Diseases do not go on vacation.
People with Dysimmune Inflammatory Neuropathies need access to immunoglobulins all year round in order to keep going with their lives.

So, before you leave, make something great: Go and donate your plasma. It is easy and safe.
Thanks 🙏