Quel est le site Web ?

CURE 51, Paris (2025)

18/07/2025

🌍 Standing with patients worldwide

🧠 Earlier this month, we had the pleasure of co-hosting a live webinar alongside Brainstrust, a UK-based patient advocacy organization, just for you, Glioblastoma patients, and your loved ones.

Hosted by our Patients’ Committee Manager, Yann Bizien, the webinar featured Dr. Adrien Paix, our Medical Director, who shared meaningful insights into our Rosalind Study, dedicated to understanding long-term survivors of brain cancer, pancreatic cancer, and extensive small cell lung cancer. Dr. Paix also explained how you can take a vital role in this important journey as patients.

We were especially moved by Catherine Rey, a long-term glioblastoma survivor, who opened her heart and reminded us all of the strength and resilience within this community.

To every person who joined, asked a question, or simply listened: thank you. You are the reason we do what we do. Your stories, your voices, your hope, they’re what drives us forward in our mission. 💪🧡

16/07/2025

🔬 Cancer Dictionary: Biomarker

If you or someone you love is facing cancer, you’ve probably heard the term “biomarker” at some point. But what does it really mean, and why does it matter?

Think of a Biomarker as a biological clue, a small signal that helps your care team understand what’s happening inside your body:
🧭 It can help guide a diagnosis
🎯 It can help doctors choose the treatment that’s most likely to work for you
📊 It can help track how things are going, or warn us early if there’s a risk the cancer might come back

Every person, every story, every cancer is different. That’s why cancer care is becoming more and more personal and personalized, designed for you, not just your disease, and biomarkers are one of the reasons why.

🙏 Have you come across a medical term that left you feeling confused or overwhelmed? Drop it in the comments, we’d be honored to explain it!

11/07/2025

🧡 Your Voice, Your Story with Yann Bizien

We’re proud to launch a new video series featuring inspiring stories of Cancer Survivors!
Our guide on this journey is Yann Bizien, a long-term Cancer survivor and now our Patients’ Committee Manager.

🎥 In this first episode, Yann speaks with Kalliopi, a small cell lung Cancer survivor from Greece, who has been in remission for over five years.

Kalliopi shares the emotional and unexpected parts of her story. Her medical team became much more than caregivers: they became real friends, supporting her every step of the way, a reminder that healing draws strength from connection, compassion and trust.

💬 Let’s hear from you: what was your relationship with your medical team like? Discuss in the comments!

🎥 Watch Kalliopi’s full testimonial! The link is in the first comment 🔗

09/07/2025

🧡 A new study offers real hope for Pancreatic Cancer patients
⠀
Pancreatic Cancer is one of the most aggressive and difficult-to-treat forms of the disease. Together, we’re seeing change: The CASSANDRA Study, presented at ASCO 2025, tested a new approach: giving chemotherapy before surgery, not after, when the body is stronger and more resilient.

💪 Results were remarkable! Patients who received this treatment had stronger tumor responses and longer time without relapse. ⠀

And even more powerful: this study was fully funded by patient associations. People like you: patients, families, advocates, who believed in the research and made it possible.

💬 Do you know someone who’d feel at home here? Tag them in the comments!
⠀

04/07/2025

🧡 Today our Facebook Community reached 2k members, and we just want to say: thank you! 🧡

This milestone isn’t just ours, it's yours too:
– The patients who keep going, day by day
– The families who stand strong beside them
– The researchers who work relentlessly behind the scenes

You’re the reason we do what we do.
Let's continue to grow this community.

💬 Know someone who’d feel at home here? Tag them in the comments!

#2000

30/06/2025

Words can’t cure, but they can comfort, empower, and remind us we’re not alone.
Here are a few that keep us moving forward. 💛

Know someone who’d be uplifted by this? Tag them in the comments below!

Visual: David Hockney, 2020, iPad Painting © David Hockney

27/06/2025

J-5 before our live webinar for glioblastoma patients and their families.
We’re proud to partner with to introduce The Rosalind Study, a research initiative focused on long-term survivors of brain cancer.
⠀
🧠 Whether you're living with glioblastoma, supporting a loved one, or simply want to learn more, this webinar is for you.
⠀
🗓 When? July 1st, 2PM (UK) / 3PM (CET)
🖥 Where? Online via Eventbrite → Register now → Link in the first comment.
⠀
💬 On the agenda:
– Introduction by Yann Bizien, Patients’ Committee Manager
– Overview of The Rosalind Study by Dr. Adrien Paix
– A powerful testimonial from Catherine, a long-term glioblastoma survivor
– Live Q&A with the panel
⠀
✨ Got a question you’d like answered during the session? Leave it in the comments, we’ll make sure it’s heard.
⠀

26/06/2025

🇩🇪 You beat Cancer. We believe survivors like you hold the key to future cures. Together, let’s move closer to a world without Cancer.

23/06/2025

🧡 Why reach out to a support group?
Everyone deserves support and strength in their fight against cancer.

Whether you're navigating treatment, coping with side effects, or rebuilding after remission, support groups connect you to other patients and their loved-ones. They offer emotional support, tips and insights from real experiences, practical help with daily challenges and a space to be heard, without judgment.

We’ve gathered lists of trusted cancer support associations in the UK and in Germany - check the first comment for more info!

🌍 Are you from another country?
Let us know in the comments!

20/06/2025

🧠 Join our Live Webinar for Glioblastoma Patients on July 1st!

We’re excited to partner with UK to introduce our Rosalind Study, a groundbreaking initiative focused on long-term brain cancer survivors.

🗓 When? July 1st at 2PM (UK Time), 3PM (CET)
🖥 Where? Online via Eventbrite → Register here → Link in the first comment

💬 What’s on the agenda?
* Intro by Yann Bizien, our Patients' Committee Manager
* Study overview by Dr. Adrien Paix: Introducing The Rosalind Study
* Testimonial from Catherine, a long-term brain Cancer Survivor
* Live Q&A - your chance to ask questions!

✨ Got a question you’d like the panel to answer during the webinar? Drop it in the comments!

19/06/2025

In a significant advancement for pancreatic Cancer research, scientists in South Korea (Severance Hospital, Yonsei University College of Medicine in Seoul) have developed 3D tumor organoids, miniature tumors grown from patient cells that replicate the tumor’s real-life structure, genetics, and treatment response.

When tested with current chemotherapy drugs, these models reflected actual patient outcomes with high precision. Unlike older 2D systems, this approach provides a realistic, predictive tool for understanding how a patient’s tumor may respond, before treatment begins.

This marks an essential step forward in personalized medicine and redefines what’s possible in preclinical testing.

Want to stay informed about what’s next in Cancer care? Follow us!

1 IMG source: https://eu1.hubs.ly/H0l7dxR0

17/06/2025

Last week, we had the honour of welcoming Catherine Rey, a super survivor of glioblastoma and a treasured member of our Patients’ Committee.

Catherine generously shared her journey with us. Catherine shared personal anecdotes from her journey with us, from the challenges of treatment to her funny and sometimes unpleasant interactions with her medical team. She spoke about the vital support she received from her family and her passion for traveling. Her story made us laugh, brought some tears, and most importantly, reminded us why you - every Cancer patient - are at the heart of everything we do.

Catherine is living proof that life after cancer is possible: she travels the world, cherishes time with her family, and now dedicates herself to a new mission: helping other patients. She’s joined our Patients’ Committee, stands alongside us in our work, and advocates for progress in Cancer care.

🧡 Thank you, Catherine, for your strength, your story, and your voice!

A big shoutout to Yann, our Patients’ Committee Manager, for organising this event.

CURE 51

18/07/2025

16/07/2025

11/07/2025

09/07/2025

04/07/2025

30/06/2025

27/06/2025

26/06/2025

23/06/2025

20/06/2025

19/06/2025

17/06/2025

Adresse

Site Web

Notifications

Raccourcis

Partager

Type