Living with a chronic illness.

19/11/2022

https://hailstones86.wordpress.com/2022/11/19/some-s**t-you-couldnt-make-up/

Where to start with what’s been happening. I had a wee surprise visit back to the green isle as my daddy was back in hospital so I couldn’t stay over in England knowing he was over there sitting in…

27/10/2022

A new blog post, channelling my inner positivity and not focusing on the negatives in my day to day 🧘‍♀️

So i have been encouraged to write something positive in this blog post. I have been encouraged to “focus on the positive” in my life and not on the everyday life mundane, which i thought i always …

25/09/2022

The past month in a couple of paragraphs…

Ive not written in some time as life has just been so much, almost too much to handle if i’m honest this past wee while. Ive been to Northern Ireland for Garth Brooks concert which was bloody amazi…

19/09/2022

This is after a weekend at home, going to a concert (where I was in my wheelchair) I had an over stimulation attack( only way I can describe it) and as a result lost control of my body and lost my speech. We are over a week later and I still can’t speak properly.
My body reminding me who the boss is!

18/07/2022

18/07/2022

12/07/2022

I avoid since I have investigated for as my is a bit crazy BUT returned last night so iced coffee, sitting in the garden is as much as I’m doing today.

11/07/2022

So I braved the shave a week ago, the were getting so big and it was bothering my boys so off it came! I forgot how much I enjoy having a

11/07/2022

This is an honest blog, it was hard to write so it will be hard to read.

https://hailstones86.wordpress.com/2022/07/11/ending-it/

Have you ever thought about ending it all. Has it all ever got too much for you and you have thought that it may be better for you to have it all stop, to not have to deal with it all anymore? Not …

08/07/2022

Seen this on another long covid group and it just resonated so much. It is hard to describe my pain. People don’t understand it because I still function even when it is so bad it takes my breath away and has me doubled over. As much as my body is me recently it really is a wonderful thing to be able to deal with so much and yet keep going.

05/07/2022

https://hailstones86.wordpress.com/2022/07/05/when-do-you-stop/

So Saturday was my 26 month ‘anniversary’ but i felt like I couldn’t write about it. I couldn’t blog it because it was 26 months. When do i stop counting and accept this life sentence that i have b…

29/06/2022

https://hailstones86.wordpress.com/2022/06/29/trying-to-get-a-simple-diagnosis/

So i had a call today with my doctor. I have been having new weird and wonderful symptoms and wanted to talk them through with her along with the antihistamines that I’ve been trialling for the pas…

29/06/2022

On tough days it’s hard to see the wood for the trees, but this is a really beautiful reminder that they pass. The tough days don’t last forever. The light at the end of the tunnel may be hard to see right now, even with squinting 😉 but the storm will pass, until it does find a warm cosy comfortable place to ride it out in with the people you love. 💕

24/06/2022

New blog post alert 🚨🚨🚨

https://hailstones86.wordpress.com/2022/06/24/does-it-harden-you/

22/06/2022

This is amazing news!!

https://www.telegraph.co.uk/news/2022/06/20/long-covid-disability-tribunal-rules-landmark-case/

22/06/2022

When you feel like you are getting better and coming out of the slump that you have been in for the past couple of weeks only to wake up with the biggest coldsore on your lip that is throbbing and has its own postcode… a sign from the gods above that you are in fact not in charge, you have no say in the matter of what goes on in your body and you are simply a vessel for what they decide to throw your way….. a day spent in bed trying to recharge it is then…👎 #

22/06/2022

22/06/2022