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Cardiomyopathy UK

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Cardiomyopathy UK

Cardiomyopathy UK is the specialist national charity for people affected by cardiomyopathy.

We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

07/05/2026

A diagnosis of cardiomyopathy can bring with it all kinds of worries - including uncertainty about what the future might hold. While many people with cardiomyopathy live full, active lives with the right support in place, it's normal to experience anxiety.

Some people receive a diagnosis following the death of a family member, which can make these feelings even more complex.

This , the Dying Matters campaign is focused on talking about death, dying and grief. Hospice UK is encouraging everyone to have the conversations that might feel challenging - whether that's with loved ones, a healthcare team or people with the same diagnosis.

We're here if you'd like to find a support group, chat to someone else living with cardiomyopathy, or speak to a specialist nurse ❤️

www.cardiomyopathy.org/support

03/05/2026

A huge thank you to Leon and his friends for taking on the Jurassic Coast Challenge, covering nearly 30km over the day and raising an incredible £4,000 for Cardiomyopathy UK!

Leon took on the challenge after his mum became seriously ill with ARVC and his older brother was later diagnosed with the same inherited condition. Seeing the impact first-hand made it clear just how important awareness and early diagnosis are.

Leon says: "Walking the Jurassic Coast for Cardiomyopathy UK was a really great day. We had such a good time raising money for such a good cause."

We're beyond grateful for Leon's determination and support! ❤️

01/05/2026

❤️ May Support Group Meetings ❤️

Want to meet others affected by cardiomyopathy, or know someone who might? Our support groups are a great opportunity to connect in a relaxed environment, whether in person or online.

See more information and joining instructions:

🌐 www.cardiomyopathy.org/supportgroups
📧 services@cardiomyopathy.org

30/04/2026

We still haven't come down from the TCS on Sunday... especially because our incredible runners raised over £300,000! 🤩

To everyone who ran, everyone who donated, and everyone who supported us on the day or in the lead-up: thank you. Your efforts mean we can keep working for everyone living with cardiomyopathy, by funding research, raising awareness and delivering vital services.

Inspired to join us in 2027? The public ballot is open until 4pm tomorrow. You can also apply for a Cardiomyopathy UK charity place here 👉 www.cardiomyopathy.org/support-us/fundraise/take-challenge/tcs-london-marathon-2027

Mo Farah, we can save you a shirt if you want 😉

28/04/2026

The theme for this year's is 'Awareness today, protection tomorrow'.

Not everyone with cardiomyopathy develops heart failure, but it's important to be aware of symptoms to look out for. Think BEAT (Pumping Marvellous Foundation):

❤️ Breathlessness
❤️ Exhaustion
❤️ Ankle swelling
❤️ Time for a simple test

Find out more about heart failure 👉️ www.heartfailurematters.org

27/04/2026

26.2 miles ✅️

What a day at the TCS , and what an effort from the 88 amazing runners who took on this iconic challenge for Cardiomyopathy UK. We couldn't be prouder! ❤️

The support for our charity has been just as amazing, with an incredible fundraising response still coming in.

Feeling inspired? Applications for Cardiomyopathy UK charity places in the TCS London Marathon 2027 are now open, and we'd love for you to join us!

👉️ www.cardiomyopathy.org/support-us/fundraise/take-challenge/tcs-london-marathon-2027

25/04/2026

It's finally time.

Tomorrow, 88 amazing runners take on the TCS for Cardiomyopathy UK, and we want to thank each and every one of them. Not just for choosing us - but for continuing to choose us through the months of early starts, long runs and blisters.

Your incredible fundraising efforts mean we can be here for everyone living with cardiomyopathy, by funding research, raising awareness and delivering vital services. We're so grateful - and we'll be cheering you on every step of the way.

Let's go ! You've got this! ❤️

23/04/2026

Day 2 of meeting our 2026 London Marathon team❤

The countdown continues as our Team Cardio runners get ready to take on 26.2 miles at the London Marathon this weekend! Every runner has a story. Different motivations, different journeys, but all united by the same determination to reach that finish line.

We couldn’t be prouder of what they’ve already accomplished just getting to this point. Now it’s about soaking up the atmosphere, trusting their training, and giving it everything on race day. Let's go Team Cardio!

22/04/2026

This weekend, 88 incredible runners from Team Cardio will take on the 26.2 mile London Marathon, our biggest team ever! Each of them has their own reason for stepping up to the start line, some of who wanted to share their story ❤

We’re so proud of the dedication, resilience, and hard work that has brought them to this moment. Months of training, early mornings, long runs, and unwavering commitment all leading to race day, their victory lap.

To every single one of our runners: we’re behind you all the way. You’ve already achieved something amazing just by getting here. Join us in wishing Team Cardio the very best of luck this weekend, we’ll be cheering you on every step of the way!

21/04/2026

Many people have heard of palliative care, but aren’t completely sure what it is.

It isn't just about end of life - it’s about support, comfort and quality of life.

Join our free webinar with Marie Curie UK to understand when palliative care might be needed and how it can support people living with cardiomyopathy and those close to them.

📅 Monday 27th April
🕑 2pm–3pm
🎟 Free to attend

Book here: www.eventbrite.co.uk/e/living-well-with-cardiomyopathy-understanding-palliative-care-and-support-tickets-1986008655350

17/04/2026

We're thrilled to share that applications for the next round of our cardiomyopathy research grants are now OPEN! 🥳

Our Catalyst Grants are for researchers across the cardiomyopathy landscape to test new ideas, develop proof-of-concept studies or gather data. They help move us towards a future where everyone with cardiomyopathy lives a long and fulfilling life.

Thanks to our first round, researchers are already:

👨‍💻 testing a new AI tool which analyses routine heart recordings to predict risk
🧬 looking at how hypertrophic cardiomyopathy (HCM) progresses in the hope of identifying new targets for treatments

We can’t wait to see what the next round brings!

As ever, we’re committed to keeping our community at the heart of research, so all applications we receive are assessed not just by peer reviewers but by people affected by cardiomyopathy too.

🔗 www.cardiomyopathy.org/news-blogs/latest-news/applications-are-now-open-our-2026-catalyst-grant-round

Address

75A Woodside Road
Amersham
HP66AA

Opening Hours

Monday	8:30am - 4:30pm
Tuesday	8:30am - 4:30pm
Wednesday	8:30am - 4:30pm
Thursday	8:30am - 4:30pm
Friday	8:30am - 4:30pm

Website

http://www.cardiomyopathy.org/

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